MCR MINI-UPDATE JULY 2015

Fellow Registrars,

Jeanette, Angela, Shari and I are just back from an interesting NAACCR annual meeting in Charlotte (complete with record-breaking heat!). We learned a lot about new ideas in central registry operations as well as trends in the national registry landscape. I’ve got lots of notes and resource links to check! Some initial items of general interest are mentioned below. MCR-ARC will be hosting the annual meeting in St. Louis next year. MU staff development funds allowed us to send a larger than usual contingent so that we could learn about behind the scenes work that we’ll be involved with next year. Stay tuned as our plans develop!

DUE DATES

Large hospitals (>500 cases/yr.) are to report Dec. 2014 cases by July 15 and smaller facilities (<300 cases /yr.) report the 4th Quarter of 2014 by July 15.

If you have already converted to v15, you must hold cases until we are ready to accept v15 in August (date to be announced)

·  One transmittal form saying that you are converted to v15 and hence holding cases helps us know that you are not delinquent.

If your database software is still in v14

·  Please upload any completed 2014 and earlier cases in v14 by July 15.

·  If you have started abstracting any 2015 cases in v14, hold those to submit to MCR in v15 in August.

·  Then work with your software vendor to convert your software to NAACCR v15. We want everyone to be able to make an August submission in v15.

·  If you have remaining 2014 or earlier cases to abstract after your conversion to v15, that will be OK.

EDUCATION

NAACCR Webinars – Get 3 CEs By Viewing Recorded Webinars. Request Access Now! Check out our Education and Training page to find out how you can receive access to the recorded NAACCR Webinars.

July 9, 2015 – Survivorship Care Plans

GoToMeeting - There are only 25 lines available so it will be a first come first serve on the day of the meeting. I recommend that if there are several of you from one facility that want to participate in a meeting that you call in together. For those of you not familiar with GoToMeeting, you can listen via your computers speakers and ask questions via a mic or the chat within GoToMeeting. If you have to call in you will be charged a long distance call.

August 12, 2015 – SEER Summary Stage: Lung

To register for any of our educational opportunities, call 1-866-240-8809 or contact Shari Ackerman at .

MCR NEWS

Gold Again!

MCR-ARC was once again awarded NAACCR GOLD certification for quality and completeness of data. Thank you for your work in case-finding, abstracting, quality control and timely reporting that make this possible!

Death Clearance

Death Clearance followback for the year 2013 is fast approaching. There are some significant changes to the process this year that will be presented to registrars in an upcoming Go to Meeting which will also serve as a refresher on how to use the Web Plus application to process followback. Please watch for further information on the date and time and plan to join us.

Nancy Cole Retirement Party

Check out the photos below from Nancy Cole’s retirement party. She is doing great! A wonderful time was had by all.

MCR-ARC Presentations

Missouri was well represented at the NAACCR 2015 meeting in Charlotte. The following presentations should be posted to our website in the near future.

Presentations:

Mapping with Cancer, Demographic and Behavioral Risk Data – Chester Schmaltz

Meaningful Use Stage 3: Potential Impact on Central Cancer Registries – Jeannette Jackson-Thompson

Posters:

Data Analytics and Cancer Data: Meaningful Cancer Data Presentation – Iris Zachary

Evolution of the Central Tracing Database: Opportunities for Enhanced Operations – Wesley Padron (GRA)

Big Data: The Future of Central Cancer Registries – Payal Patel (GRA)

Jeannette also moderated a panel of 4 speakers on the topic: Launching a New Era in Cancer Control and issued an invitation to all to join us in St. Louis in 2016.

STANDARD SETTER NEWS

Notes from NAACCR 2015

FORDS Revision Project: Dr. Greene reported that they had over 800 suggestions offered on their input surveys. They will be analyzing each of them, consulting focus groups and deliberating on changes with a goal of implementation in January 2018. He also mentioned that the 8th edition of the AJCC Cancer Staging Manual is due to be released for use in January 2017.

SEER Educate was highlighted as a very useful (free!) tool for staying updated on abstracting, because it shows you how the correct codes were determined. You also earn CEUs! Some managers have their staff complete a case regularly and submit a proficiency report of their findings. Many reports types are available. This helps to identify strengths as well as needs for further training or quality control. Standard setters can see aggregated results for reliability and determine where certain standards need to be clarified.

Synoptic Reports for Radiology: A radiologist association is exploring the feasibility of adding synoptic report checklists to their oncology imaging reports. These would function much like the CAP protocols that pathologists use and hopefully make data mining and case ascertainment more efficient.

Genomics continue to be a hot topic. One presenter from Duke offered findings that indicate that prostate cancer disparities that appear racial may be more related to RNA splicing of genes that regulate androgen receptor pathways and allow for cell proliferation and metastasis. Such gene variants are much more common in African American males, but 14% of Caucasians also carry this genotype and 17% of African American males do not. Thus genetic classification may be more important to outcome than stated racial identity. This knowledge could pave the way for drugs to correct or prevent the aberrant splicing.

The Future of SSFs: SEER is reviewing all of the CS Site Specific Factors to determine which need to continue to be collected. There will be an emphasis on biomarkers. Assessment includes determining if a factor is available, prognostic or relevant. A committee has made preliminary recommendations which are now being reviewed by a registrar focus group. A panel of medical experts will also be involved. They expect that collection of a set of SSFs will continue to evolve over time as oncology practices change. Automated collection of values from lab feeds or linkages is being explored.

NAACCR Data

The 25th edition of the publication Cancer in North America (CINA): 2008-2012 is now available on the NAACCR web site. Please visit www.naaccr.org and select Data and Publications for free access/downloading of the publication. This publication series presents cancer incidence data as collected by the regional, state, provincial and territorial NAACCR member registries across North America. This publication is possible due to the ongoing and excellent efforts of our member registries to assemble high quality and timely cancer incidence data.

NCRA

Learn More! NCRA Education Foundation's Telecommute Tool-Kit Do you have questions about whether telecommuting is right for you? Does your facility have a formal Telecommute Program? If not, would you like to see one implemented? NCRA's Education Foundation has developed a tool-kit to help. Learn what it takes to develop a Telecommute Program and what makes a good telecommute worker. Understand administrators' reservations and how to overcome them. http://ncraeducationfoundation.org/links.html

SEER

There is still time until July 31 to earn CEUs by voluntarily participating in the SEER 2015 Assessment of Building Blocks for Stage for Transition from Collaborative Stage study. This study is designed to assess overall registrar training needs by analyzing de-identified results of coding exercises for 10-20 cases. You will get to see the preferred answers and study results. The study can be started by logging on to the SEER reliability studies site (https://reliability.seer.cancer.gov). If you have previously created an account but forgot your password, please use the Forgot My Password link instead of creating a new account. If you do not have an account, please create one by following the Create An Account link on the sign-in page. Please email for technical questions and Annie Noone () for study-related questions.

AJCC

Module IV of the AJCC Curriculum for Registrars is due to be released by July 15 with a webinar in August. This is the final module. Recordings of previous modules are also available. You can earn free CR credits for completing modules II-IV. It is highly recommended that you assure understanding of the principles of TNM staging by attending trainings such as these. https://cancerstaging.org/CSE/Registrar/Pages/AJCC-Curriculum.aspx

REGISTRY TO RESEARCH

Cervical cancer is not just a young woman’s disease (United Kingdom registry statistics)

http://www.bmj.com/content/350/bmj.h2729

Most Men With Low-Risk Prostate Cancer Can Receive Active Surveillance (prostate cancer clinical registry)

http://www.practiceupdate.com/c/25238/32/1/?elsca1=emc_conf_AUA2015Post-1&elsca2=email&elsca3=practiceupdate_onc&elsca4=201552_AUA2015Post-1&elsca5=conference&rid=NTU2MjE4MTE1NjYS1&lid=10332481

Trends in demographics, incidence, and survival in children, adolescents and young adults (AYA) with melanoma: A Surveillance, Epidemiology and End Results (SEER) population-based analysis

http://meeting.ascopubs.org/cgi/content/short/33/15_suppl/9058?rss=1

Elevated Cancer-Specific Mortality Among HIV-Infected Patients in the United States (data from 6 state registries)

http://jco.ascopubs.org/content/early/2015/06/15/JCO.2014.59.5967.full

SEER: Breast Cancer Survivors at Increased Risk of Thyroid Cancer

http://www.practiceupdate.com/c/22875/2/0/?elsca1=emc_enews_daily-digest&elsca2=email&elsca3=practiceupdate_onc&elsca4=oncology&elsca5=newsletter&rid=NTU2MjE4MTE1NjYS1&lid=10332481

Disparities in the Use of Breast-Conserving Therapy Among Patients With Early-Stage Breast Cancer (NCDB data)

http://archsurg.jamanetwork.com/article.aspx?articleid=2322835

Probability of Dying From Ovarian Cancer Decreases Over Time (SEER data)

http://www.sciencedirect.com/science/article/pii/S0090825815300287

RESOURCES

Patients to be Treated Based on Tumor Genomics, Not Disease Type, in ASCO’s First Clinical Trial - See more at: http://www.curetoday.com/articles/Patients-to-be-Treated-Based-on-Tumor-Genomics-Not-Disease-Type-in-ASCOs-First-Clinical-Trial?utm_source=Informz&utm_medium=Cure+Today&utm_campaign=CURExtra%5Femail%5F6%2D10%2D15#sthash.cTLUgImM.dpuf AND

NCI to Fulfill "Ongoing Dream" With 20-Arm Precision Oncology Trial - See more at: http://www.curetoday.com/articles/NCI-to-Fulfill-Ongoing-Dream-With-20-Arm-Precision-Oncology-Trial?utm_source=Informz&utm_medium=Cure+Today&utm_campaign=CURExtra%5Femail%5F6%2D10%2D15#sthash.RnbN8Uie.dpuf

Immunotherapy heralds 'new era' for cancer treatment

http://www.medicalnewstoday.com/articles/294737.php?tw

Global cancer cases 'still rising' - now 15 million a year

http://www.medicalnewstoday.com/articles/294513.php?tw

Study shows colorectal cancer genetically different in older and younger patients

http://www.medicalnewstoday.com/releases/294641.php?tw

Scientists find way to disrupt brain tumor stem cells (Washington University study)

http://www.sciencedaily.com/releases/2015/06/150611122654.htm?utm_source=feedburner&utm_medium=email&utm_campaign=Feed%3A+sciencedaily%2Ftop_news%2Ftop_health+%28ScienceDaily%3A+Top+Health+News%29

New method detects early breast cancer via urine

http://www.sciencedaily.com/releases/2015/06/150611091935.htm?utm_source=feedburner&utm_medium=email&utm_campaign=Feed%3A+sciencedaily%2Ftop_news%2Ftop_health+%28ScienceDaily%3A+Top+Health+News%29

Stage I and II Low-to-Intermediate-Risk Thyroid Cancer Can Be Treated Without Radioactive Iodine Using Postoperative Non-suppressed Thyroglobulin

http://www.practiceupdate.com/c/25193/3/0/?elsca1=emc_enews_top-10&elsca2=email&elsca3=practiceupdate_onc&elsca4=oncology&elsca5=newsletter&rid=NTU2MjE4MTE1NjYS1&lid=10332481

ASCO: Longevity Improving for Childhood Cancer Survivors

http://www.practiceupdate.com/c/25873/2/0/?elsca1=emc_enews_daily-digest&elsca2=email&elsca3=practiceupdate_onc&elsca4=oncology&elsca5=newsletter&rid=NTU2MjE4MTE1NjYS1&lid=10332481

I am out of the office next week. Have a great 4th of July weekend!

Nancy H. Rold, CTR

Operations Manager

Missouri Cancer Registry and Research Center