14th Annual TSSS Conference Sat 12th of October 2014 – Conference Programme- all times is subject to change.

Colour code Orange Parents, Red Women, Women & Partners, Blue Open Sessions,Teens Green

If you have any questions? Ask anyone in a RED TSSS POLO SHIRT or ZIPPER

PARK SUITE / Parents / Women with TS / Women with TS Partners / Teens
All members
Welcome & AGM / 9.10 - 9.20
9.20 -10.20 / Don’t stop me now
Welcome & AGM / Park Suite & then the Lancastrian
Comfort Break / 10.20 - 10.25 / Park Suite / Eccleston Suite- Women with TS/Women with TS Partners / Lancastrian Suite
SESSIONS / 10.25- 11.25 / Growth, Puberty optimum management of TS
Dr Caroline Brain
Paediatric Endocrinologist
GOSH , London / Ask the experts about all aspects of TS
An opportunity to ask about any health issues you are facing in small groups
Miss Melanie Davies & Prof Gerry Conway- ULCH London
Natalie Briggs and Antoinette Pimblett Research Assistants / Musical Performance
With Sam, Dan & Sam
Coffee & chat / 11.25-11.45 / Park Suite / Eccleston Suite-Women with TS only / Lord Lilford-Women with TS & Partners ONLY / Lancastrian
SESSIONS / 11.45 - 12.45 / Behavioural implications of short and long term Glue Ear
Carmel Capewell Northampton University / Over 40’s fact sheet
Discussion on what to include with Hayley Cleaver & Kerry Bruerton
Sr Claire Goedhart GOSH London / Fertility Options in 2014
Miss Melanie Davies & Dr Gerry Conway- ULCH London / Musical Performance
Lunch
Lunch Meeting
Tea & Coffee
Kids Club / 12.45 - 13.45
12.45 – 14.15
13.45 - 14.15
14.00 - 16.00 / Lancastrian Suite
Brookes Restaurant or Lord Lilford – LIFE COURSES RESEARCH MEETING
Park Suite
Rivington Suite / Dance rehearsal in the Lancastrian Suite at 13.45-14.15
OPEN SESSIONS / 14.15-15.15 / OPEN SESSION Park Suite / OPEN SESSION Park Suite / OPEN SESSION Park Suite
You are free to
Attend any of the OPEN SESSIONS in Blue / The importance of Oestrogen Treatment across all ages
An expert panel to discuss what you need to know about the Oestrogen Treatment in TS.
Ms Melanie Davies, Prof Gerry Conway, Dr Caroline Brain, Sr Claire Goedhart
Comfort Break / 15.15- 15.20
OPEN SESSIONS / 15.20-16.00 / OPEN SESSION
Park Suite / OPEN SESSION
Eccleston Suite Front / OPEN SESSION
Lord Lilford / Lancastrian
You are free to
Attend any of the OPEN SESSIONS in Blue / Fertility & Adoption in TS
Miss Melanie Davies & Prof Gerry Conway- ULCH London / Understanding the thyroid & treatment needed
Sr Claire Goedhart - London
Nurse Specialist / Footwear advice & information from the expert. Help us compile a shoe shopping fact sheet.
Dr Gordon Watt- Glasgow / Teens
Social Media Rules & Tips Workshop
with Dan & Sam
Tea & Chat / 16.00 - 16.15 / Time to get dressed up for The Ball
Close / 16.00 -18.00 / Hair & make up sessions in the Heskin Suitea team of volunteers will help members get ready. We have 15 min slots available they must be booked at registration on a first come first served basis and a donation to the TSSS is welcome.
Optional dress rehearsals in the Lancastrian with Sam / 16.00 - 16.15
16.15 -16.30 / Mums, Dad, Husbands. Etc.
Teens, ladies with TS
Time to get glammed up for the Crystal Ball, Champagne Reception & Photos at 18.00 followed by dinner at 19.30
prompt with awards at 20.15 the show 20.30- 21.30

Sunday 14th October 2013 Workshop Programme

Please sign up for workshops as soon as possible to help with allocation of rooms for each one.

Colour code Mum’s,Dad’s, Women, Women & partners, Open Sessions, Teens,Kids Club.

If you just want a chat you can do so in the lounge area.

Workshop 1
10.00 – 10.50 / Workshop 2
10.00-10.50 / Workshop 3
10.00 – 10.50 / Workshop 4
10.00-10.50 / Kids Club
10.00-11.30 / Workshop 5
10.00- 10.50
Park Suite / Eccleston Suite Front / Lord Lilford / Lounge Area / Rivington Suite / Heskin Suite
Heart to Heart
Mum’s ONLY
Sam/ Jane GA / Heart to Heart
Women who have TS only
Hayley/Kerry/ Dinah / Heart to Heart
Mum’s of young adults
Jane/Christine/Julie / Dad’s/Partners
MEN ONLY
Duncan / TSSS Movies / Teens
How TS affects you
Elaine O’Shea, Dr Stewart Rust & Dr Jackie Nicholson
Coffee break 10.50 – 11.10
Park Suite / Coffee break
10.50-11.10 / Coffee break
10.50 – 11.10 / Coffee break 10.50-11.10 / Juice will be served / Coffee break
10.50 – 11.10
Park Suite
Workshop 6 11.10-12.00 / Workshop 7
11.10-12.00 / Workshop 8
11.10-12.00 / Workshop 9
11.10-12.00 / Kids Club
11.30 -12.55 / Workshop 10
Park Suite / Eccleston Suite
Front / Eccleston Suite
Rear / Lord Lilford / Rivington Suite / Heskin Suite
Heart to Heart
Women ONLY / Lymphodema all you need to know
Julie Norris
Lymphatic Nurse Specialist / Driving Instruction
with DavidMarshall / Fertility in TS
Midwife Mimi Younger & Prof Caroline Hollins Martin from Manchester talk about what is involved. / See Wonderful Jono until 12.50 join main session / Teens & Young Adult
Conference feedback & planning or Heart to Heart or both
12.00-13.00
Park Suite / Final session for all conference delegates feedback & discussion and about thoughts for the future

Lunch is available to those who have booked it in the Medieval Banquet Suite (not the Lancastrian Suite)