Samples of a Brief Explanation About Genomeconnect

We encourage clinicians to copy and paste wording about GenomeConnect into clinical and lab reports, patient letters, and any other materials sent to patients. We have provided different wording options so that you can select the one that works best for your practice. If you decide to “tweak” the wording, it is acceptable as long as the message and content remainconsistent and accurate. If you would like us to review your wording, please send it to the GenomeConnect Coordinator, at.

Samples of a brief explanation about GenomeConnect:

1) An online research opportunity called GenomeConnect is available for the recipient of this genetic test to advance knowledge of genetic variants by sharing de-identified genetic and health information. Please visit genomeconnect.org to learn more.

2) Visit genomeconnect.org to anonymously share your genetic information and help advance knowledge about genomic variants.

3) GenomeConnect is an NIH-funded online patient portal supported by the Clinical Genome Resource (ClinGen) project. Patients willing to share their genetic and health data (de-identified for privacy) to advance knowledge about their genetic variants and to connect with others with the same variant/condition can visit genomeconnect.org or email the coordinator at to learn more.

4) An online research opportunity called GenomeConnect (genomeconnect.org) is available for the recipient of this genetic test to advance knowledge of genetic variants by sharing de-identified genetic and health information.

5) An online research opportunity called GenomeConnect (genomeconnect.org) is available for the recipient of this genetic test. This patient registry collects de-identified genetic and health information to advance knowledge of genetic variants.

A longer, more detailed explanation about GenomeConnect:

GenomeConnect is “Partnering with YOU to advance genomic health”!

Patients undergoing genetic testing can help improve the quality of genetic testing and a doctor’s ability to understand the results by registering at GenomeConnect, an online community designed to increase our understanding of genetic variants, allow patients to connect with other individuals with the same genetic changes and connect patients to research opportunities. GenomeConnect is an NIH-funded online patient portal supported by the Clinical Genome Resource (ClinGen) project.

Participation is open to patients who have had genetic testing and their family members and is accomplished entirely online using a computer, smartphone or tablet. Participants sign up through a secure portal, complete a general health survey and upload a copy of their genetic test report. Genetic variants on the report are de-identified by GenomeConnect staff before the information is transferred to ClinGen-approved variant databases. Participants will receive updates in their individual accounts when there is a potential to make connections with other GenomeConnect participants with the same condition, gene, or genetic variant and/or research studies.

Visit genomeconnect.org or email for more information!