Job Description:Information Officer

Hours:Six month contract. 3 days per week (21 hours)

Reports to: Information Manager

Location:This role will be based at our Head Office, Vauxhall, with some home working

Salary: Circa £25-30,000(pro rata),depending on experience

Pancreatic Cancer UK

We are the only national charity fighting pancreatic cancer on all fronts: support, information, campaigning, research. We are striving for a long and good life for everyone diagnosed with pancreatic cancer.

We have a campaign goal to double pancreatic cancer survival rates within the next five years (helping to save the lives of up to 250 people each year) – and to move the experience of people affected by pancreatic cancer in the UK from being one of the worst to one of the best.

Dedicated pancreatic cancer support and information services

The Charity has a growing range of services which it provides to people affected by pancreatic cancer.

  • We run a confidential Support Line for anyone affected by pancreatic cancer. Our Pancreatic Cancer Nurse Specialists provide individual specialist information about pancreatic cancer, treatment options and managing symptoms and side effects. They also listen to concerns and provide support.
  • We run online discussion forums for pancreatic cancer patients and carers and families to enable them to share experiences, information, inspiration and hope –
  • We provide easy access to the best and most up-to-date information on pancreatic cancer through our website and a growing range of printed materials –
  • This year we are piloting new local ‘Pancreatic Cancer Information Sessions’ to provide more support to newly diagnosed patients and families at a local level.
  • We are supporting people affected by pancreatic cancer to set up support groups around the country.

Nurse training programme and health professional network

  • We provide training for nurses who are involved in the care of pancreatic cancer patients through a national HPB study day and regional training events.
  • We have set up and are developing a health professional network for nurses and other health professionals working in pancreatic cancer care to provide support to each other and share new developments.

Involvement

  • We have a network of Pancreatic Cancer Voices. These are people with a personal experience of pancreatic cancer who get involved in our work through a variety of ways including – providing the patient or carer perspective at events and conferences, taking part in user research, reviewing our information, sharing their story with the media, helping us campaign locally and representing the charity at events.
  • We aid supporters to set up local support groups by providing a helping hand to get them started.

In addition the Charity:

  • Funds research and other projects of benefit to patients and their families
  • Raises awareness of pancreatic cancer, particularly among GPs, policy makers and politicians and the general public, providing a powerful campaigning voice for all people living with pancreatic cancer, and their families.

Purpose of role

The main purpose of the role will be to develop our web information and resources about clinical trials for pancreatic cancer, and help us establish contact with key clinical trial contacts. This information is aimed at pancreatic cancer patients, families and carers. This will include adhering to our Information Standard accredited information production system.

The Services Team

The Services Team consists of eightposts –Head of Services,four Pancreatic Cancer Specialist Nurses (with their own regional areas of responsibility), Information Manager, Community Involvement Coordinator and Operations Administrator. The Team is managed by the Head of Services.

Duties and key responsibilities

The postholder will:

  • Be responsible for producing health information for the public on pancreatic cancer clinical trials, ensuring compliance with the requirements of the Information Standard and the Pancreatic Cancer UK information production processes and policies.
  • Write, edit and proof health information about pancreatic cancer clinical trials.
  • Carry out research into clinical trials, conduct literature searches for high quality evidence, and evaluate evidence, to ensure all information is based on up-to-date, high quality research.
  • Conduct user research into the information needs of pancreatic cancer patients, families and carers to support the development of information products.
  • Work with information volunteers to review information and ensure it meets users’ needs.
  • Build links and work with health professionals and individual trials to ensure accuracy and relevance of the information, working with the Head of Research.
  • Liaise with the Pancreatic Cancer Specialist Nurses to ensure information about clinical trials is presented in a clear and accurate style.
  • Work with the Information Manager and Communications Manager to develop the clinical trials section of our website, including a database of pancreatic cancer clinical trials.
  • Work with the communications team to promote the clinical trials information.
  • Support the Communications Manager in developing videos about clinical trials, contributing expertise and ensuring compliance with the Information Standard, as appropriate.
  • Contribute to other areas of work relating to this project, as required.
  • Contribute to the development of the information and support services provided by the Charity through involvement in consultations, team meetings, training and away days, ensuring that services develop in line with national trends and policies, and user needs.
  • Keep up to date on treatment and care of pancreatic cancer and patient information, to ensure all work is evidence based and conforms to good practice.
  • Maintain confidentiality of information shared by users, and work within the guidelines of the Data Protection Act 1998.
  • Develop good relationships with internal stakeholders and staff including our Trustees, Chief Executive, and our Communications, Research, Campaigns and Fundraising teams.

General Responsibilities

  • Contribute to team meetings and organisational priorities.
  • Be proactive in keeping up to date with developments affecting the role.
  • Carry out other associated duties as may arise, develop or be assigned in line with the broad remit of the post.
  • Support diversity and equality of opportunity in the workplace.

Person Specification

Essential

Skills and personal attributes

  • Excellent written and verbal communication skills
  • Excellent information writing, editing and proofing skills, including writing for the web.
  • Commitment to providing and developing high quality information.
  • Able to translate complex health information into clear, easy to understand information for patients and families.
  • Proven excellent interpersonal skills including the ability to establish good working relationships with service users, health professionals and researchers.
  • Excellent project management skills.
  • Excellent time management skills, with the ability to plan and develop a varied workload in a pressured environment.
  • Ableto work autonomously, and effectively within a team.
  • Great attention to detail.
  • Able to have empathy with people with pancreatic cancer and their families.
  • Ableto show tact and discretion when dealing with sensitive and confidential information.
  • Excellent Microsoft Office skills.
  • Willingness to undertake training and develop skills in IT programmes used to update our website.
  • A willingness to work occasional evenings and weekends.

Experience

  • At least threeyears’experience of producing health or social care information for patients and families in different formats, including online information.
  • Experience of carrying out online research, conducting literature searches and evaluating evidence
  • Experience of carrying out user and health professional review of patient information.
  • Experience of using web content management systems to upload web content.
  • Experience of working with people affected by cancer or another health condition.

Education, training, qualifications

  • A high level of literacy and numeracy.
  • Educated to degree level.
  • An understanding of best practice in producing health information.

Desirable

  • Experience of producing information on cancer and treatment.
  • Experience of carrying out quantitative and qualitative research.
  • Good understanding of NHS, primary care cancer services and clinical trials.
  • Experience of promoting information.


Application Form
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REFERENCES
Please name two professional referees. One referee should be your present or last employer. School leavers/students should provide the details of a Teacher/Tutor. Employment is subject to two satisfactory references.
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Thank you for completing this form
Please return to:
Emily Morgan
Information Manager
Pancreatic Cancer UK
2nd floor Camelford house,
89 Albert Embankment,
London,
SE1 7TW
Or email
The Data Protection Act 1998
Pancreatic Cancer UK will use the information you have provided for recruitment and monitoring purposes only. The information will be held on file for a maximum of six months after which it will be destroyed.