Advocacy Services – Northamptonshire County Council – 2005
‘Total Voice’ – Advocacy services across Northamptonshire / www.totalvoicenorthamptonshire.org
Total Voice Northamptonshire
VoiceAbility
Doddridge Centre
109 St James Road
Northampton
NN5 5LD
Tel: 02033 558846
Email: / Total Voice is an advocacy service providing independent advocacy for people aged over 18.
They support people who use adult mental health care services in Northamptonshire with issues about mental health and social care.
Akwaaba Ayeh / www.akwaabaayeh.com
40 Chandos Street
Highfields
Leicester LE2 1BL
0116 247 1525
/ Formally the Mental Health Shop. Provides advocacy to people of African, African-Caribbean and Asian origin with mental health needs. Also provides advice, information and support. Home and hospital visits are available on request. Punjabi, Hindi and Patois spoken, interpreters for other languages can be arranged. Transport available for client support group meetings.
Service for African, African Caribbean & Asian people.
Braunstone Alert / Braunstone Neighbourhood Management Board
Residents Network
Neighbourhood Support Team
45 Wellinger Way
Braunstone
LE3 1RG
RETIRED MARCH 2013 – any replacement? / “Braunstone Alert” Magazine
Services for Older Residents
Health & Social Care Centre
Crime & Grime
Bendbow Site
Braunstone Awards
British Charities / http://www.britishcharities.com/ SITE UNDER CONSTRUCTION MARCH 2013
42 Graham Road
Newtown
Southampton
Hants
SO14 0AW
Tel: +44 (0)23 80227949 / British Charities portal provides directory of UK registered charities, charity shops, charity suppliers and charity news. The main aim is to assist people in giving to charity.
Carers Development Project, Mental Health, Health & Social Care Projects / www.communityactionpartnership.org.uk
Carers Development, Mental Health, Health & Social Care Projects
The Pavilion
Sportsfield Lane
Huncote Leicestershire LE9 3BN
Tel 0116 272 7669
Mental Health Services Manager Annette Boon
Email: / Community Action Partnershp's Mental Health Project offers a variety of social groups, befriending scheme, sporting activity and organic gardening, all aiming to enable recovery by providing the space and skills people need to cope with their difficulties, increase their confidence and self esteem and lead an independent life.
CLASP / www.claspthecarerscentre.org.uk
CLASP The Carers Centre
Unit 19, 4th Floor
Matrix House
Constitution Hill
Leicester
LE1 1PL
Tel: 0116 2510999
Email: / CLASP The Carers Centre is a registered charity which was set up in 1994 to provide a wide range of support services for carers living in Leicester, Leicestershire and Rutland.
Communities in partnership (CiP) / www.communitiesinpartnership.org.uk
Beaumont Enterprise Centre, Boston Road, Leicester LE4 1HB
Tel: 0116 234 1577 Fax: 0116 235 1844 email:
And Jen Lovegrove (Engagement Manager) / Communities in Partnership aims to improve the lives of the people of Leicestershire, Rutland and Leicester City by encouraging individuals and organisations to work in partnership with each other, and with government, to build stronger, safer and better communities.
Desmond / www.desmond-project.org.uk
Desmond National Office
Ward 5/6
Leicester General Hospital
Leicester, LE5 4PW
Tel: 0116 2585881
/ Patient structured education and educator training in Type 2 diabetes
East Midlands Funders’ Forum / By post c/o:-
Social Enterprise East Midlands
Ian Fisher, Administration officer
Contact: Tel: (0115) 871 4760
Fax: (0115) 871 4768
Email:
Suite 28 Minerva House
Spaniel Row
Nottingham
NG1 6EP / Provides opportunities for funders to meet together to share ideas, discuss and learn about funding policy and disseminate information. Provides support and advice for those seeking funding and a range of training programmes and resources on securing funding. EMFF is hosted within the Funding Access Section of Regeneration East Midlands
EQUIP / www.equip.nhs.uk
Sarah Greening,
Health Information Co-ordinator,
Library Services Development Unit,
NHS West Midlands Workforce Deanery
St. Chad's Court,
213 Hagley Road,
Birmingham
B16 9RG
Telephone: 0121 695 2227
/ Electronic Quality Information for Patients (National support groups & W.Mids)
The database lists 3500 groups. Each entry includes the support group's address, telephone number, helpline, email, website (if available), services and the date it was last checked. Updated annually.
Search by location - you can choose from either searching the whole of the 'UK' for national support groups; the 'West Midlands' for groups covering the whole region; or choose an individual county or Primary Care Trust area for more local groups (West Midlands counties only).
Search by health topic - there is a drop down list of health topics to choose from.
Search by topic AND location - For example, you could look for Hearing disorders contacts in Worcestershire.
FAIRDEAL / Unit 15, 3rd Floor,
Matrix House
7 Constitution Hill
Leicester LE1 1PL
0116 251 3351
/ Works for and with people with disabilities, including learning difficulties and people with physical and sensory impairments and/or mental health difficulties. Offers a wide range of support to people involved in assessments, reviews and complaints proceedings. Provides an individual as well as group advocacy service.
Infolinx / www.leicestershireconnect.org.uk/about_infolinx / Community Information Website, covering Leicestershire, Leicester and Rutland
Database holding details of 5,000 clubs, societies, organisation and self help groups based in the region.
Kettering Voluntary Network / www.kvn.org.uk
Unit 3 The Business Exchange, Rockingham Rd,
Kettering,
NN16 8JX
Tel 01536 526422 / Kettering Voluntary Network (KVN) supports voluntary and community groups throughout the Borough of Kettering by providing
· A volunteer brokerage service
· Advice and signposting for new and existing groups
· Assistance for groups in finding funding sources and making grant applications
· A quarterly newsletter
· Regular networking opportunities for the Kettering Voluntary Forum
· Representation for local groups on local and countywide partnerships.
· Workshops on topics such as supporting volunteers, marketing your organisation and writing funding bids.
LAMP Leicestershire Action for Mental Health Project / www.lampdirect.org.uk
65 Regent Road
Leicester LE1 6YF
0116 255 6286
/ Gateway to information on mental health throughout Leicester, Leicestershire and Rutland. Works primarily with people experiencing mental distress and with carers. Closely involved in consultation and development of local services. Its advocacy services empower people to make informed choices, to express their views, and to access rights and entitlements. Information services provide leaflets, signposting and advice to its target group, mental health professionals and the general public. Manages a mental health web site
Leicester Centre for Ethnic Health Research / Leicester Centre for Ethnic Health Research Coordinator
Asma/
Tel 0116 295 4140
92 Regent Road
Third Floor, Enkalon House, Leicester
LE1 7PE / Launched in 2006 to aid the delivery of equitable health care in the UK through investigation of disease patterns in ethnic minority population
Consumer Panel
To promote the LCEHR
To become involved in research projects either as individuals or as a panel
To facilitate access of researchers to ethnic minority communities and organisations
To assist in the recruitment of participants to research studies
To identify the areas of research that are important to the local ethnic minority communities
To assist in the dissemination of research findings in the local communities
Leicester City and Leicestershire County Carers Project / 1st Floor Tornos House, Garden Road
Whitwick Business Park
Coalville
Leicestershire
LE67 45Q
01530 836289
/ This project in Leicester City and Leicestershire County supports carers of those with serious mental illness. Primarily we offer information, one-to-one support and develop new groups for carers in the city. Advocacy and signposting to local services as well as national networks. CETP (Carers Education and Training Programme) courses have been provided. Carers also have access to information about Rethink events.
The Leicestershire Diabetes Focus Group / Lead: Michelle Izzard – Diabetes Research Network Support Manager, Tel: 0116 2587250,
/ Reviews of study literature, some members attend national PPI training events and conferences, developed review sheets for grant applications
Leicester, Leicestershire & Rutland Focusline / Churchill House
14 Heathcote Street
Nottingham
Nottinghamshire
NG1 3AA
0800 027 2127 (Helpline)
/ The Churchill House project includes a telephone helpline service known as Focusline, which offers confidential support, information and emotional support to the Leicester, Leicestershire and Rutland areas. This service is available to any adult who has a mental health problem, carers and professional agencies.
Leicester Link / Jon Davis
Community Engagement Worker
Freepost RRHL-BYCU-EGSU, Threadneedle House, 27 Copdale Road, Leicester
LE5 4FG
0116 273 6506
Laura Marano
Community Engagement Worker Leicester City LINk Team
Business Box, 3 Oswin Road, Leicester, LE3 1HR
Tel: 0116 279 5075
Mobile: 07525 237 742
Email: / Network of local people, organisation and groups who want to strengthen the quality of local health and social care services.
Leicester LINk Participation Forum
“Stronger Voice, Better Care” booklet
Mission Statement
Distribution of Contact Details LINk Consent Form
Leicestershire Partnership / Leicestershire Partnership NHS Trust
George Hine House
Gipsy Lane
Leicester
LE5 0TD
Tel 0116 225 6000
http://www.leicspt.nhs.uk/_Forpatients-Supportgroupsandadvocacy.aspx / Leicestershire Partnership NHS Trust offers a wide range of services and support including
Child and adolescent mental health services, mental health services for adults and older people, learning disability services, specialist services, e.g. drug and alcohol services, eating disorder services, psychotherapy services, patient and liaison service (PALS), advocacy services and support groups.
Mental Health Research Network / http://www.ukmhrn.info/index/ppi/service-user-involvement.html
MHRN East Midlands Hub plus South Yorkshire
Hub manager: Anne Priddey
email:
telephone: 0115 823 1302
MHRN East Midlands Hub plus South Yorkshire
Institute of Mental Health
Sir Colin Campbell Building
University of Nottingham Innovation Park
Triumph Road
Nottingham NG7 2TU / SURGE (Service User Research Group for England) supports mental health service users, clinicians and academics as they work together on mental health research.
SURGE plays an important part in making sure research across the MHRN is valuable for and makes sense to service users. SURGE support service user input into the MHRN through service user involvement in local hub committees, research project teams and at a national level.
National association of LINks members (NALM) / http://www.networks.nhs.uk/network_finder
National Organisations / Patient Support
http://www.patient.co.uk/selfhelp.asp
To learn more about LINks go to the Department of Health website www.dh.gov.uk
http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_4137040
The ‘host’ agency for the LINk in Leicester:
Unit 55, The Business Box,
2 Oswin Road,
Braunstone,
Leicester.
LE3 1HR
James Hellard
LINks Administrator
Tel: 0116 279 5075
Email:
For general enquiries:
Registered Address: 1 Beech Avenue, Sherwood Rise, Nottingham, NG7 7LJ / Details of 1910 UK patient support organisations, self help groups, health and disease information providers, etc. Each entry is cross referenced and details are checked annually. Browse by A-Z, by subject category, or search using the search box above. (Regularly updated)
A free directory that lists self help groups, support groups and charities in the UK.
Patient and public involvement
The PPI Forums closed at the end of March 2008 and were replaced by Local Involvement Networks (LINks).
A stronger local voice: A framework for creating a stronger local voice in the development of health and social care services.
The LINk will be launched Sept/Oct 08 and should eventually have a website in the meanwhile contact via phone.
National Youth Agency / National Youth Agency, Eastgate House, 19-23 Humberstone Road, Leicester, LE5 3GJ
Tel 0116 242 7350
Website www.nya.org.uk / “Involving Children and Young People – An Introduction”
NHS Leicester City
NHS Leicestershire County and Rutland / Deb Wall, Directorate of Public Health & Improvement, NHS Leicester City / Publication “Get Involved in Research” A Brief guide for patients, carers and the public who want to find out more about health based research and how to become involved in research projects
NHS National Institute for Health and Clinical Excellence / National Institute for Health and Clinical Excellence
MidCity Place
71 High Holborn
London
WC1V 6NA
www.nice.org.uk / “A Guide for Patients and Carers” Contributing to a NICE clinical guideline”
· How Patient and Carer organisations can contribute – the stakeholder process
· How individual patients and carers can contribute
· What happens when NICE guidelines are published?
NHS National Institute for Health Research
NIHR Local Research Networks within East Midlands SHA / South East Midlands DRN (Part of the NIHR Diabetes Research Network)
Network Leads Professor Melanie Davies and Professor Kamlesh Khunti
Network Manager: Susan Enright
Host Organisation University Hospitals of Leicester NHS Trust
Tel 0116 204 7818
Address Department of Diabetes Research, Victoria Building, Level 0 University Hospitals of Leicester, Leicester Royal Infirmary, Leicester, LE1 5WW
Website www.ukdrn.org.lrn_semidlands.html / The NIHR Clinical Research Network (NIHR CRN) is managed by the NIHR Clinical Research Network Coordinating Centre (NIHR CRN CC) and is one of the four Networks in the UK that comprise the UK Clinical Research Network. The Networks support and deliver high quality clinical research studies.
www.crncc.nihr.ac.uk
NIHR CLAHRC
Leicestershire, Northamptonshire and Rutland / Partner Organisation in CLAHRC
University Hospitals of Leicester et al
http://clahrc-lnr.nihr.ac.uk / Collaboration for Leadership in Applied Health Research & Care
“Working Together to conduct high quality research to improve the health of the population of Leicestershire, Northamptonshire and Rutland”
Northampton Charities and Voluntary Organisations
/ Northampton Volunteering Centre
15 St. Giles St
Northampton
NN1 1JA
Tel: 01604 637522
http://www.northampton-volunteers.org.uk/aboutus/index.aspx?id=36 / Northampton Volunteering Centre is an independent, registered charitable company, established in 1990. Aims to provide highly effective infrastructure support and services for voluntary sector organisations in Northampton and surrounds.
Northamptonshire County Council Children’s and Young People’s Service
/ Northamptonshire County Council, Children and Young People’s Service, Early Years and Childcare Team
PO Box 216, John Dryden House, 8-10 The Lakes, Northampton, NN4 7DD.
email:
Tel: 01604 237935
http://www.northamptonshire.childrensservicedirectory.org.uk/default.aspx / This on-line directory provides information on a range of services and activities for children and young people aged 0-20 years across Northamptonshire.
NYA Hear by Right
Standards for the active involvement of children and young people / Eastgate House, 19-23 Humberstone Road, Leicester, LE5 3GJ
Tel 0116 242 7350
Hear by Right booklet and CD Rom