Dear Cystinosis Community,

Included in this packet is information about the 2013 CRN Family Conferenceto be held at the Washington MarriottWardman Park Hotel in Washington D.C. on July 18th–20th. This year’s conference is being sponsored in part by Platinum Sponsor Sigma-Tau Pharmaceuticals, Inc. and Raptor Pharmaceutical Corp.

Hotel and Room Reservation Information

Washington Marriott Wardman Park

2660 Woodley Road NW–Washington D.C. 20008

Reservations: 1-877-212-5752 or 1-800-228-9290

Website:

Group code: “Cystinosis Research Network”

Room Rate: $159.00/night plus tax

Check-in Time: 4:00pm / Check-out Time: Noon

Parking at Hotel: $20.00/per 24-hour period (regular $34.00)

Refrigerators are available at no charge just need to request one when making your reservations

The CRN block of rooms will be released on June 26th, so please plan to make your reservations before this cut-off date.

Travel and Ground Transportation

The closest airport to the Hotel is The Regan Washington National (DCA) 8 miles, Washington Dulles (IAD) is 24 miles and Baltimore (BWI) is 34 miles. Check all three (3) as sometimes one is cheaper than the other two (2).

There are several options available for ground transportation:

  • WM Metro: The Hotel is located on the Red Line next to the Woodley Park-Zoo/Adams Morgan Metro station. Fare from DCA is around $7.00 round trip and children under 4 are free with a paying adult.
  • Rental Car and Shuttles: Check the airports websites for rental car companies and shuttle services located at the airport that you will be flying into.

Conference Registration

Located at the end of this packet is the official Conference Registration form. Please complete and return the form (along with a check for the registration fee) to the following:

CRN Conference Committee – Attn: Pam Woodward – 1368 W 2600 N – Pleasant Grove, UT 84062

Registration can also be completed online at the CRN website: The registration fee can also be submitted at the same time through the CRN Authorize.net link.

Childcare & Teens

Childcare will be provided during the conference for children ages 1-12 years. There will be age-appropriate activities, games, crafts, and entertainment. Snacks and plenty of water will be provided. Parents will be responsible for administering all medications. There will be a teen(13-18) room. We are also in need of teens to volunteer in the childcare. If you have someone coming with you that would like to help please make a note on your registration form. We are exploring activities for the teen group - more information will be forthcoming with your registration confirmation letters.

Conference Scholarships

A limited number of conference scholarships are available to individuals and families affected by cystinosis. Scholarship information and the application are included in this packet. The deadline for submitting application materials is May 1, 2013.