Table of contents
1 Table of contents 3
2 Table of figures 5
3 Table of tables 6
4 Summary 8
5 Consultation survey 10
5.1 Question 1 10
5.2 Question 2 11
5.3 Question 3 12
5.4 Question 4 / 5 13
5.5 Question 4 / 5 18
5.6 Question 4 / 5 20
5.7 Question 6 25
5.8 Question 7 27
5.9 Question 8 30
5.10 Question 9 35
5.11 Question 10 38
5.12 Question 11 44
5.13 Question 12 45
5.14 Question 13 50
5.15 Question 14 52
5.16 Question 15 53
5.17 Question 16 59
5.18 Question 17 63
5.19 Question 18 67
5.20 Question 19 71
5.21 Question 20 73
6 Appendices 79
Note on ‘free text’ responses 79
Appendix 1 – (Question 4): If you think that the scope is too small or includes something that it should not, please explain here? 80
Appendix 2 – (Question 5): If you believe that the scope is too big or includes something it should not, please explain here? 95
Appendix 3 – (Question 7): If you think the steps / requirements are too big or include something which they should not, please explain here? 113
Appendix 4 – (Question 8): If you think the steps / requirements are too small or do not include something which they should, please explain here? 118
Appendix 5 – (Question 9): If you believe one or more aspects of the requirements is / are wrong, please explain here? 134
Appendix 6 – (Question 10): What do you think about the types of communication support and information formats we have included? 139
Appendix 7 – (Question 12): If you have comments on the quality considerations we have included, please explain here? 169
Appendix 8 – (Question 15): What do you think about our plans for making sure that organisations follow the standard? 190
Appendix 9 – (Question 16): Do you have any comments on the specification for the standard which are not included as part of other questions? 214
Appendix 10 – (Question 17): Do you have any comments on the implementation plan for the standard? 224
Appendix 11 – (Question 18): Do you have any comments on the implementation guidance for the standard or support for organisations? 230
Appendix 12 – (Question 20): Due to the short timescales we have to read everyone's responses and make changes to the final standard, we have limited the space for free text. If you have already given your views as part of the engagement phase, these have been considered in drafting the standard. If you do not feel that you have been able to share your views as part of this survey, please use the space below. We will try to consider any views you record in this section, but will not be able to respond or report on them in detail. 235
Appendix 13 – Assumptions 253
1 Table of figures
Figure 1: Survey response by type: 9
Figure 2: Method of collection of survey responses: 9
Figure 3: Do you agree with the vision for the standard? 10
Figure 4: Do you agree with what the standard will do? 11
Figure 5: Do you agree with what the standard includes? 12
Figure 6: If you believe that the scope is too small, please explain here? 13
Figure 7: If you believe that the scope is too big, please explain here? 18
Figure 8: If you believe that the scope is about right, please explain? (Please note this section contains some suggested minor amendments to the scope) 20
Figure 9: What do you think about the steps of the standard / the requirements set out for health and social care organisations and IT suppliers? 25
Figure 10: If you think the steps / requirements are too big or include something which they should not please explain? 27
Figure 11: If you believe the steps / requirements are too small, or do not include something which they should, please explain? 30
Figure 12: If you believe one or more aspects of the requirements is / are wrong, please explain? 35
Figure 13: What do you think about the types of communication support and information formats we have included? 38
Figure 14: Do you agree with the quality considerations we have included? 44
Figure 15: If you have any comments on the quality considerations we have included please explain? 45
Figure 16: What do you think about the advice and support which we are planning to give to organisations? 50
Figure 17: We are planning to give organisations 12 months to implement the standard. What do you think about this? 52
Figure 18: What do you think about our plans for making sure that organisations follow the standard? 53
Figure 19: Do you have any comments on the specification for the standard which are not included as part of other questions? 59
Figure 20: Do you have any comments on the implementation plan for the standard? 63
Figure 21: Do you have any comments on the implementation guidance for the standard or support for organisations? 67
Figure 22: What do you think the impact of the standard will be? 71
Figure 23: Due to the short timescales we have to read everyone's responses and make changes to the final standard, we have limited the space for free text. If you have already given your views as part of the engagement phase, these have been considered in drafting the standard. If you do not feel that you have been able to share your views as part of this survey, please tell us? 73
2 Table of tables
Table 1: Method of collection for each survey 8
Table 2: Do you agree with the vision for the standard? 10
Table 3: Do you agree with what the standard will do? 11
Table 4: Do you agree with what the standard includes? 12
Table 5: If you believe that the scope is too small, please explain here? 14
Table 6: If you believe that the scope is too small please explain? 14
Table 7: If you believe that the scope is too big, please explain here? 18
Table 8: If you believe that the scope is too big please explain? 19
Table 9: If you believe that the scope is about right, please explain? (Please note this section contains some suggested minor amendments to the scope) 21
Table 10: If you believe that the scope is about right please explain? (Please note this section contains some suggested minor amendments to the scope) 21
Table 11: What do you think about the steps of the standard / the requirements set out for health and social care organisations and IT suppliers? 26
Table 12: If you think that the steps / requirements are too big or include something which they should not please explain? 28
Table 13: If you think the steps / requirements are too big or include something which they should not please explain? 28
Table 14: If you believe that the steps / requirements are too small or do not include something which they should please explain? 30
Table 15: If you believe that the steps / requirements are too small or do not include something which they should, please explain? 31
Table 16: If you believe one or more aspects of the requirements is / are wrong, please explain? 35
Table 17: If you believe one or more of the requirements is / are wrong, please explain? 36
Table 18: What do you think about the types of communication support and information formats we have included? 38
Table 19: What do you think about the types of communication support and information formats we have included? 39
Table 20: Do you agree with the quality considerations we have included? 44
Table 21: If you have any comments on the quality considerations we have included, please explain? 46
Table 22: If you have any comments on the quality considerations we have included, please explain here? 46
Table 23: What do you think about the advice and support which we are planning to give to organisations? 51
Table 24: We are planning to give organisations 12 months to implement the standard. What do you think about this? 52
Table 25: What do you think about our plans for making sure that organisations follow the standard? 54
Table 26: What do you think about our plans for making sure that organisations follow the standard? 54
Table 27: Do you have any comments on the specification for the standard which are not included as part of other questions? 59
Table 28: Do you have any comments on the specification for the standard which are not included as part of other questions? 60
Table 29: Do you have any comments on the implementation plan for the standard? 63
Table 30: Do you have any comments on the implementation plan for the standard? 64
Table 31: Do you have any comments on the implementation guidance for the standard or support for organisations? 67
Table 32: Do you have any comments on the implementation guidance for the standard or support for organisations? 68
Table 33: What do you think the impact of the standard will be? 71
Table 34: Due to the short timescales we have to read everyone's responses and make changes to the final standard, we have limited the space for free text. If you have already given your views as part of the engagement phase, these have been considered in drafting the standard. If you do not feel that you have been able to share your views as part of this survey, please tell us? 74
Table 35: Due to the short timescales we have to read everyone's responses and make changes to the final standard, we have limited the space for free text. If you have already given your views as part of the engagement phase, these have been considered in drafting the standard. If you do not feel that you have been able to share your views as part of this survey, please tell us? 74
3 Summary
From 13 August until 9 November 2014 there was a consultation on the draft ‘accessible information standard’.
The experiences and opinions people shared as part of the ‘engagement phase’ during winter 2013 / 2014 were used to write the draft standard.
As part of the consultation, NHS England asked people what they thought about the draft accessible information standard. This is a report detailing the responses which were received to a survey as part of the consultation. This report will be used to write the final accessible information standard.
In total there were 393 surveys completed. The surveys could be completed and submitted in a variety of different ways; online, posted, or emailed. There was also an “Easy Read” version of the survey which could be emailed or posted.
All of the responses to questions which required a “free text” answer have been included in the appendices.
In the interest of transparency, the ‘free text’ responses are published verbatim, and key themes have been drawn out from these – these do not therefore represent the view of NHS England.
A breakdown showing the method of collection for all the surveys completed is shown in Table 1.
Table 1: Method of collection for each survey
Method of collection / SurveyOnline / 283
Posted / 8
Posted (Easy Read) / 64
Emailed / 30
Emailed (Easy Read) / 8
Grand Total / 393
Source: Accessible Information Standard Consultation, NHS England, 2014
The charts and tables within this report contain the results of all surveys completed, including online, posted, emailed, and those in “Easy Read” format.
Note that some questions from the “Easy Read” version of the survey were numbered differently from the equivalent questions in the standard survey. Also some questions from the standard survey were omitted from the “Easy Read” version.
Appendix 13 contains a list of assumptions that have been made when producing this report.
A breakdown of the type of survey responses received is shown in Figure 1.
Figure 1: Survey response by type:
A breakdown of the method of collection of survey responses is shown in Figure 2.
Figure 2: Method of collection of survey responses:
4 Consultation survey
4.1 Question 1
Figure 3: Do you agree with the vision for the standard?
Source: Accessible Information Survey Consultation, NHS England, 2014
Table 2: Do you agree with the vision for the standard?
Response / Total / Percentage of RespondentsYes / 353 / 89.8%
Not sure / 23 / 5.9%
No / 15 / 3.8%
Not answered / 2 / 0.5%
Total Respondents / 393 / 100.0%
Source: Accessible Information Survey Consultation, NHS England, 2014
The highest proportion of respondents (89.9%) stated they agree with the vision for the standard, whereas 3.8% of respondents stated they did not agree with the vision for the standard.
4.2 Question 2
Figure 4: Do you agree with what the standard will do?
Source: Accessible Information Survey Consultation, NHS England, 2014
Table 3: Do you agree with what the standard will do?