SILC Needs Assessment Survey: A Discussion on Current Approaches and Practices in Needs Assessment in SILCs
Presented by Valerie Barnum-Yarger, Deb Cook, Susan Fager, Jeff Sheen, Larry Wanger and Brad Williams on November 21, 2013
> TIM FUCHS: Good afternoon. I'm Tim Fuchs 
with the national coin sill on independent living 
here in Washington D.C. I want to welcome you all 
to SILC-NET's newest webinar SILC needs assessment 
survey: A discussion on current approaches and 
practices and needs assessment at Centers for 
Independent Living. Excuse me. Statewide 
independent living councils. What a way to start 
a call. Today's webinar is being presented by the 
the SILC-NET, a program of the IL NET training and 
technical assistance project for CILs and SILCs 
around the IL NET is operated through a 
partnership among ILRU, NCIL and APRIL with 
support provided by RSA at the U.S. Department of 
Education. 
So we are recording today's call so we can awr 
Clive it on ILRU's website and we're going to have 
a different format today. For those of you that 
posh dissipate in these calls from time to time 
you know it's typically kind of a lecture-based 
program with Q&A but we really do want today's 
call to be an open discussion. We're going to 
start off with a presentation. But after we 
listen to Jeff Sheen's presentation we're going to 
open the call up, have some panel questions from 
our speakers today, and then take your comments 
and questions to lead the discussion. So the 
second half of the call is really intended to be 
very interactive. We're going to open the line up 
and hear from all of you, too. 
So I'll give you some instructions about that when 
we get there. Until that time your lines are 
muted. When we open up the line I will ask you to 
individually mute your lines so we don't have a 
lot of background noise. I'll walk you through 
that when we get there, about halfway through the 
call. 
Before we start I want to ask you to please fill 
out the evaluation form for today's call. Despite 
the fact it's a little less formal than some of 
our other calls we still need to know what you 
thought of it and if it was helpful for you in 
your role with the SILC. And it only takes a few 
moments to complete. It's very easy. We really 
would appreciate your thoughts. That will be 
included on the final slide of the webinar if 
you're on the webinar today. If you're listening 
on the phone you can access that link in the 
confirmation email that was sent to you. 
We do have a short PowerPoint today. If you are 
on the webinar it's going to display automatically 
but for those of you that have just called, which 
is fine, you'll want to open up that PowerPoint 
that was sent to you in the confirmation email. 
If you don't have that in front of you, you can 
email me. I'm at . Thanks. 
That's as much housekeeping as I had to handle 
today. I just want to introduce some of our 
speakers before we begin. First and foremost I 
want to thank Jeff Sheen for all of his work 
organizing this call. Jeff is with us from Utah 
State University's center for people with 
disabilities, and Utah state is also an integral 
part of the IL NET project, and Jeff has done a 
lot of work putting together this SILC survey, 
analyzing the results from many of you that 
responded. So thank you for that. And helped us 
put together our presenters for today that I'll 
walk through now. And I want to thank all of 
them, too, for responding to the survey. Jeff was 
instrumental in helping us identify states that 
really had some promising practices, and I'm 
pleased to say that all five of the states that we 
reached out to agreed to participate today. We're 
excited -- were excited to participate today. 
It's wonderful. Really, I think, it is a 
testament to the peer support that happens in IL 
on a macrolevel as well as on a service level at 
centers. So thanks in advance to all of you. 
With us from the Michigan SILC we have Valerie 
Barnum-Yarger. From the Washington SILC Deb Cook. 
From the DSU in Colorado, Susan Fager. From the 
Arizona SILC we have Larry Wanger. And from the 
New York SILC we have Brad Williams. 
We had a call the other day to prepare and just a 
wonderful discussion, and I know we'll repeat that 
today. Thanks to all of you for being with us. 
In the meantime I'm going to turn it over to Jeff 
to get us started with the presentation. Jeff? 
> JEFF SHEEN: Thank you, Tim. Good afternoon, 
everyone. It's nice to be here with you this 
afternoon. I'm going to take just a few minutes 
and go over some of the -- give you an overview of 
the survey that we conducted and some of the key 
findings that informed the recommendations that we 
have come up with based on conducting this survey. 
So to give you a sense, the overall purpose of 
this survey was just to get a better understanding 
of how the statewide independent living councils 
are currently going about conducting their needs 
assessment activities. In particular in relation 
to their state plan development. So that the 
folks at the IL NET project could get a better 
sense of how we might shape training and technical 
assistance efforts in the future to help the SILCs 
do a job that they're comfortable with as far as 
conducting needs assessments, can really help them 
move forward in productive and comprehensive ways. 
The basics of the survey, we developed a 
23-question telephone survey that many of you 
participated in. That was developed by staff here 
at the center for persons with disabilities as 
well as staff at ILRU, and we conducted these 
surveys between July and August. The thing I'm 
most excited about, we had 54 out of the 56 SILCs 
that compleaptd this survey. So we almost had 
100% response rate. That is fantastic. So we're 
really pleased that so many of your colleagues and 
yourselves participated when we called and helped 
us complete this important survey. 
As far as who we talked to when we reached the 
Statewide Independent Living Councils, 39 of the 
respondents were executive directors, six were the 
designated states units liaisons and eight of the 
surveys were completed by current SILC chairs or 
vice chairs. 
Just a little bit of demographic information, the 
median number of years with the SILC was six. So 
half of the people that we talked to had been at 
the Statewide Independent Living Council for more 
than six years and half had been there just under 
six years. We had three that had been with the 
SILC for less than a year and so you can imagine 
this was a new experience for them. And then we 
had three who have been with their Statewide 
Independent Living Council essentially since the 
inception, over 20 years ago. So kind of a broad 
cross section of folks that we talked to. 
I want to go into a few of the key findings from 
this survey, and the ones that we selected to 
present today are really because they tie into 
some of the primary recommendations that we have 
moving forward for how we can address these 
issues. 
So the first two bullet points on this shrined 
this slide is dealing with key findings around 
methods, methodology of conducting needs 
assessments. Over half of the folks we talked to 
use some form of survey to collect data, a mail 
based survey, a web-based survey or telephone 
survey. But only 5% of these folks knew actually 
how many surveys were distributed. That's one of 
the issues we have with web surveys. We send out 
a link, and we ask people in our network to send 
that link out to their network and then to their 
network, and so it's really difficult to know how 
many surveys actually get distributed or how many 
people actually get the link to a -- in particular 
to a web-based survey. That has some implications 
for methodology as far as sample size that I'll 
talk about in a minute. 
The majority of the respondents didn't on the 
other side have a good sense of how many responses 
they ultimately received from not just their 
surveys but other data collection activities which 
often include focus groups or public hearings. 
Part of that is because we caught people on the 
phone and we were kind of asking how many 
responses, and they might not have had the exact 
number in front of them at the time. But most of 
the folks we talked to had essentially an educated 
guess but weren't certain really how many 
responses their data collection efforts had led 
to. 
That third bullet point, we only had three 
respondents we talked to out of the 54 that had 
actually established a predetermined response rate 
for data collection. So they had looked at the 
demographics of their state, and they had decided 
that in order for their data collection to be 
complete they needed to reach a certain number of 
people, and that varied across respondents. But 
most folks were simply using a cut-off date. The 
surveys were open. Focus groups were held until a 
certain point in the year, and then at that point, 
whatever data had been collected was the data that 
was going to be used. And so that has some 
implications again, like I said earlier. Sample 
size is -- having a Good Sam pull size when 
you're -- a good sample size is important giving 
confidence that you have a representative 
understanding, a good representation of the 
different opinions and thoughts and things that 
are going on among the population that you're 
trying to survey. So if we're not clear on how 
many surveys we're not sending out, we're not 
clear on how many we're getting back and we're not 
establishing kind of ahead of time a number of 
folks that we need to get to to get a 
representative sample, it kind of makes our 
methodology a little less rigorous, which can have 
some implications for essentially how many 
confidence we can place in the we're getting the 
best information that we can. And so that's kind 
of an interesting finding. And I'll come back to 
a recommendation around that in just a minute. 
As far as satisfaction, we asked respondents how 
satisfied they were with the needs assessment 
process and results of their most current needs 
assessment, and if you look at this graph, we had 
a small number that was not very satisfied with 
the process. We had almost a third that were 
somewhat satisfied. We had slightly higher, 
another third, that was satisfied, 31%. And we 
had 30% of our respondents that were very 
satisfied. So the nice thing is two-thirds 
essentially of our respondents were either 
satisfied or very satisfied with the needs 
assessment process and results. The group that is 
the somewhat satisfied, you know, that's 
essentially folks that have a recognition that 
they would like to do things differently. They 
maybe would like to tighten some things up or do a 
better job of data collection, or something about 
what they did this last round wasn't up to their 
satisfaction. Those that were satisfied are more 
in the group -- they felt like they did an 
adequate job but realized there could still be 
some things they could improve. 
The next slide talks about some miscellaneous 
findings but some things that I think are 
important as far as how they relate to our 
recommendations. We did have 33 respondents, 
which is 61% of our sample, that indicated they 
use center-level consumer satisfaction data as 
part of the needs assessment. Just over half of 
those, which is 18 respondents, indicated that the 
center consumer satisfaction data is actually 
standardized. And I'm going to come back to that. 
So there's a number of centers, over half of the 
SILCs, excuse me, are using consumer satisfaction 
data, which we think is a good thing. But the 
data they're getting is maybe not standardized 
across the centers in their state. So that's an 
issue that we'll try to address in the future. 
The next bullet point, and this was really an 
important one that we'll come back to as far as 
promising practices and we'll talk about this in 
our discussion... 20 respondents reported they 
used the results of their needs assessment for 
purposes beyond the state plan development. They 
have invest add lot of time and resources in 
completing the needs assessment and they have 
proactively kind of found ways that they can use 
that information for multiple purposes beyond 
creating a nice state plan. 
Finally, on this slide 14 respondents indicated 
that members of the SILC had not received training 
on how to conduct an effective needs assessment 
and there was an additional 13 that were unsure. 
If anybody on the council had actually received 
training specific to needs assessment. So we had 
just over half of our respondents that either did 
not have any training or weren't sure if anybody 
on the council had received training. So that 
obviously gives us some information that we can 
use to develop some additional targeted training 
around this topic. 
Got a handful of slides left and then I'll go 
ahead and take questions regarding any of this 
information. 
When we looked a little bit closer at the data 
from the survey, there was some interesting 
relationships that we found, or correlations. We 
found that the longer somebody had been with the 
council, the greater chance that they had a higher 
level of satisfaction with the needs assessment 
process. There was a higher likelihood that they 
had used CIL data as part of the needs assessment. 
And they were more likely to have used the 
information they collected for purposes beyond 
developing the state plan. So that kind of tells 
us the longer somebody has been around, they've 
kind of figured out some things that increase 
their satisfaction. They figured out that the CIL 
data is good to pull in and they found some 
additional ways to use all of the information that 
they're gathering for purposes beyond developing 
the state plan. So we felt that was a fairly 
important relationship. 
The next relationship we found was between folks 
that expressed a higher level of satisfaction. 
These folks were typically more likely to use 
data -- collect data from sources beyond the 
typical sources, such as VR data or CIL data. 
They were a little bit more comprehensive in who 
they worked with to get information about the 
needs for people with disabilities in their state. 
And these folks that had high levels of 
satisfaction were also more likely to use -- again 
to use their data for purposes beyond the state 
plan. They essentially found a way to get more 
bang for the buck. If you're going to already 
conduct a needs assessment and put the time and 
effort into it, the more you can leverage that 
information, the more efficient that is for you 
and your council. 
So from these kind of key findings and results, a 
couple of key recommendations. The first one is 
based on the methods slide where we found out a 
lot of folks didn't have a really solid sample 
size in mind. They weren't sure how many surveys 
had been distributed or returned. To work with 
the councils to develop and provide training on 
the fundamentals of really effective needs 
assessment in order to improve the rigor of the 
methods that are being used and the idea behind 
that is to improve the quality of data that 
ultimately is collected, and the reason we spend 
this kind of time trying to collect good data is 
we need good quality data and information to make 
good strategic plans and decisions going forward. 
So that's an issue that we think that we can 
address in the future. The second piece is really 
going back to the CIL consumer satisfaction data. 
Where we don't have standardized data across the 
centers in a state, and it's certainly not across 
the country, we'd like to explore the pros and 
cons of working towards that, that at least the 
data is standardized at the state level. Whether 
it makes sense to standardize that across the 
country is a discussion to be had, but it does 
make sense that at least at the state level there 
would be some pros, there would be some benefit to 
standardizing how the centers are collecting 
consumer satisfaction data. That may be my bias 
coming from a relatively small state that has six 
centers. That may be a different discussion in 
states that have many more. 
The third recommendation is to encourage the 
statewide independent living councils to really 
broaden the sources of data they're pulling in, 
and these are existing data sources. So figuring 
out who in the community is gathering data that 
could really help us get a more complete picture 
