MDS Patient and Family Forum
London, UK
Friday 24th September, 2010
This FREE event will be held at the
Royal Lancaster Hotel
Lancaster Terrace, London W2 2TY
beginning 10.30 am
Lunch will be served.
This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in this informal discussion regarding their quality-of-life issues living with MDS. New therapies and patient treatment options will be discussed. You will also be given the opportunity to participate in a question and answer segment.
Our guest speakers will be Dr Chris Dalley, Consultant Haematologist at The RoyalHallamshire Hospital, Sheffieldand a Clinical Nurse Specialist from one of the Centres of Excellence (to be determined).
For more information, please call
Sophie Wintrichon 020 7733 7558
Sponsored by
MDS UK Patient Support Group
Information material and guidance provided by
MDS Foundation
MDS Patient Forum
Royal Lancaster Hotel
Lancaster Terrace
London W2 2TY
Friday 24th September, 2010
A g e n d a
10.00 - 10.30amWelcome and registration process
* Tea/Coffee *
10.30 - 11.00Introduction to the afternoon presentations and activities
David Hall – Chairman, MDS UK Patient Support Group
11.00 – 11.15 Introduction to Website and Online Discussion Forum
Sophie Wintrich – Patient Liaison, MDS Foundation
11.15 -13.00Patient Forum Discussion - Quality of Life Session
Janet Hayden, CNS, King’s CollegeHospital, London
13.00 - 13.45Lunch
13.45 – 14.15Fundraising brain storming session
14.15 – 15.00 Current Issues in the Diagnosis and Treatment MDS
Chris Dalley, MD, The Royal Hallamshire Hospital, Sheffield
15.00 - 15.10Questions
15.10 - 15.30Clinical Trials
Clinical Nurse Specialist – MDS Centre of Excellence
15.30 - 15.50General Questions and Answers Session from Panel
Chris Dalley, Janet Hayden
15.50 pmTea+ creation of local groups London/Kent/Essex
For registration, please call Sophie at The MDS Foundation on
020 7733 7558 or email