MDS Patient and Family Forum

London, UK

Friday 24th September, 2010

This FREE event will be held at the

Royal Lancaster Hotel

Lancaster Terrace, London W2 2TY

beginning 10.30 am

Lunch will be served.

This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in this informal discussion regarding their quality-of-life issues living with MDS. New therapies and patient treatment options will be discussed. You will also be given the opportunity to participate in a question and answer segment.

Our guest speakers will be Dr Chris Dalley, Consultant Haematologist at The RoyalHallamshire Hospital, Sheffieldand a Clinical Nurse Specialist from one of the Centres of Excellence (to be determined).

For more information, please call

Sophie Wintrichon 020 7733 7558


Sponsored by

MDS UK Patient Support Group

Information material and guidance provided by

MDS Foundation

MDS Patient Forum

Royal Lancaster Hotel

Lancaster Terrace

London W2 2TY

Friday 24th September, 2010

A g e n d a

10.00 - 10.30amWelcome and registration process

* Tea/Coffee *

10.30 - 11.00Introduction to the afternoon presentations and activities

David Hall – Chairman, MDS UK Patient Support Group

11.00 – 11.15 Introduction to Website and Online Discussion Forum

Sophie Wintrich – Patient Liaison, MDS Foundation

11.15 -13.00Patient Forum Discussion - Quality of Life Session

Janet Hayden, CNS, King’s CollegeHospital, London

13.00 - 13.45Lunch

13.45 – 14.15Fundraising brain storming session

14.15 – 15.00 Current Issues in the Diagnosis and Treatment MDS

Chris Dalley, MD, The Royal Hallamshire Hospital, Sheffield

15.00 - 15.10Questions

15.10 - 15.30Clinical Trials

Clinical Nurse Specialist – MDS Centre of Excellence

15.30 - 15.50General Questions and Answers Session from Panel

Chris Dalley, Janet Hayden

15.50 pmTea+ creation of local groups London/Kent/Essex

For registration, please call Sophie at The MDS Foundation on

020 7733 7558 or email