SHEFFIELD CLINICAL IMMUNOLOGY AND ALLERGY SERVICE

These constitute guidelines for the diagnosis/management of the condition stated, for use by immunology doctors and nurses within the Sheffield Clinical Immunology and Allergy Service.
Clinical judgement supersedes these guidelines whenever necessary.
GUIDELINES FOR:
TRANSITION FROM PAEDIATRIC TO ADULT SERVICE
Index No: / LG 55 / Version No: / LG 55.01
Name,
Designation / Date / Signed
Approved for local use at this centre by: / Dr Egner/ Dr Shrimpton/ Dr Sargur
Consultant Immunologist
Date operational: / MARCH 2014
Date for review: / MARCH 2016
Filename:
Status: / Operational /Controlled
Location of copies on this site: / Copy 1: Immunology Office CIAU
Copy 2: Shared Drive Limited Access
Copy 3: Nursing Station CIAU
This is copy number:
Summary of changes compared to previous version: / Nil - this is first version


Informationforpatientsand carers

TheSheffield Clinical Immunology and Allergy UnitTransition Team

NorthernGeneralHospital

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LG 55 01 Transition from Paediatric to Adult Service – Expires March 2016

Whatisthis leafletabout?

We have written this leaflet to give you information about the Sheffield Clinical Immunology and Allergy transition team. It will tell you how the transitions team might help you, and the people who look after you.

Whatdoesthe word‘transition’mean?

‘Transition’ is another word for a change. The transition will be a gradual move from the Children’s service to the adult team; this will take place when you feel you are ready to transfer. As you become an adult there will be many changes in your life. For you, one of these changes is that you will be joining the adult Clinical Immunology and Allergy (CIAU) services at the NorthernGeneralHospital here in Sheffield.

Whodo theSheffield CIAUtransitionsteamhelp?

We offer help and support to all young people who are new to adult CIAU services. This will include:

•Youngpeople whoaremovingfromchildren’s servicestoadultservices.

•Young people who are new to Immunology and Allergy services

•Thepeople wholookafteryoungadultswhoarenewtoImmunology and Allergy services.

We will carry on offering you, and the people who look after you, support foras long as you need it in order to settle into adult services.

What will happen when?

We would normally start discussing transition from Children’sto adultcare at the age of fourteen. This is to prepare you for the move to CIAU and the adult team

We would usually expect to start talking about transition when you are about 14 years old. Although this sounds quite a young age to be thinking about moving to adult services, it’s just the starting point. We may ask youif you want to come in to your regular consultation at the Children’s Hospital on your own to “practice” answering questions and telling us how you’ve been. You can do this without your mum or dad being there and they can be invited in later in the session.

When you’re about 15, we will invite the Adult team over to the Children’s Hospital transition clinic from the NorthernGeneralHospital. There will be1 Doctor and 1 Nurse so it’s not too overwhelming. There will be other young people your age at the same clinic.

Your second clinic will be at the NorthernGeneralHospital, where you will see the same adult team you met at the Children’s but you will still see your team from the Children’s there too.

If you are receiving treatment for your condition at home, the Children’s and adult nurse will do a joint visit at your home so you can meet her at home and ask any questions.

After that,and ifyou feel ready, you will start to have your appointments at the NorthernGeneralHospital with the adult team.

Whatmight theSheffieldCIAUtransitionsteam dotohelpmesettlein?

ThemovefromChildren’s servicestoadultservicesisaveryimportanttimeforyouandyourfamily.Thetransitionsteam isheretomakethischange goaswellaspossibleforyouandthepeople wholookafteryou.

Thetransitions teamwillhelpandsupport youinmanydifferent ways.Thesemayinclude:

Anamed member ofthetransitions teamtowelcomeyouandtohelpyousettleintoadultservices. They will show you around the unit and will keep working with you to help you to settle in, for as long as you feel you need their help.

You may also be introduced to one of our patients who has already settled into the adult services. They can talk to you about the unit and may be able to answer some of your questions about adult services. Pleaseask usifyouthink thismayhelpyou.

Whoisinthe SheffieldCIAUtransitionsteam?

Thetransitions teamhasmanydifferent peopleinit.Thisincludes:

•Medicalstaff

•Nursingstaff

•Other people working at the adult CIAU unit like dieticians and

physiotherapists.

Youcanfindoutabitmoreabout eachmember ofthetransitions teaminourtransitions teaminformation folder.Pleaseaskyournamed workerifyouwouldliketolookatacopyofthis.

Where is the Clinical Immunology and Allergy Unit?

We are located at the NorthernGeneralHospital.We have a dedicated unit to look after people with primary antibody deficiency and allergies.

What happens if I do not find it easy to settle into adult services?

Firstly, your named worker will talk to you and the people who look after you about what you are finding difficult in adult services. They will do everything they can to make things easier for you. You are free to ask any questions you wish and tell us about any anxieties you have about moving to the adult services in confidence.

Then we can work together to improved things.

What happens when I think I have settled into adult services?

Ameetingwillbesetup.Youwillbeabletoinviteanyoneyouwant tothemeeting. Yournamedworkerwillcomealongtoo, andmaybeanyone elseatthehospitalwhoknowsyouwell.

Atthismeeting, wewillaskyouhowyouthinkyouhavesettled intoadultservices.Wewillalsoaskother peoplewhoknowyouhowtheythinkyouhavesettled in.

Ifeveryoneagrees thatyoudonotneed anymoresupporttosettleintoadultservicesthen thetransitions teamwillcloseyourcase.

Thetransitions teamwillstillbethere foryoutocontact inthefuture ifyouneed them.

Howdo I find out moreaboutthe SheffieldCIAU transitionsteam?

Youcanaskanystaffmember hereattheSheffield Immunology and Allergy Unit. Theyshouldbeabletoputyouintouch withtheirwardordepartment'slinkworkerfromthetransitions team.

Youcanalsocontact thetransitions teamdirectlyusingthecontact detailswehaveputonthenextpage.

Can I still contact the Children’s team?

You can contact the team until you feel you are comfortable with the

team at the Northern General.

Can my parents / carers attend my appointments with me?

We would encourage you to have the consultation alone for experience but have your parents with you and they can be invited to the consultation at a time you wish them to be there.

How do I contact theSheffield CIAU transitionsteam?

•Youcanring

Dr Egner via his secretary / 0114 2269052
Sister Fran Ashworth / 0114 2266964 or bleep 2918

•Youcanemail

Fran Ashworth /

•Youcanwrite touswith ourname andjobtitle to:

Clinical Immunology & Allergy Unit

TheNorthernGeneralHospital

Herries Road

SheffieldS57AU

You can also ask any member of staff at Sheffield Clinical Immunology and Allergy unit to contact Fran Ashworth.

We hope to have reassured you by this information leaflet. We will support your at all times duringyour transfer to the adult service. Please feel free to contact us at any time for an informal chat.

Clinical Immunology and Allergy Unit opening times

Monday –Wednesday 8am - 4.30 pm

Tuesday –Thursday 8am - 5.30 pm

Friday 8am - 3pm

Thisinformationcan bemadeavailableon requestinalternativeformatsincludingBraille,largeprint,audio,electronicallyandotherlanguages.Forfurtherdetailsemail:

©Sheffield TeachingHospitalsNHSFoundationTrust2010.

Re-useofalloranypartofthisdocumentisgoverned bycopyrightandthe“Re-useofPublic Sector Information Regulations2005”SI2005 No.1515. Information onre-usecanbeobtainedfromtheInformationGovernance Department,SheffieldTeachingHospitals.

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LG 55 01 Transition from Paediatric to Adult Service – Expires March 2016