Recording Your Continuing Professional Education s3

coping with disfigurement

The Activities on these Portfolio Pages correspond with the learning objectives of the Guided Learning unit published in Nursing Times 104: 12 (25 March, 2008) and 104; 13 (1 April, 2008). The full reference list for this unit follows Activity 4.

Before starting to work through these Activities, save this document onto your computer, then print the completed work for your professional portfolio. Alternatively, simply print the pages if you prefer to work on paper, using extra sheets as necessary.

Recording your continuing professional education

To make your work count as part of your five days’ CPD for each registration period, make a note in the box below of the date and the total number of hours you spent on reading the unit and any other relevant material, and working through the Activities.

Hours: / Date:

Nursing Times Portfolio Pages: Coping With Disfigurement 1

coping with disfigurement
ACTIVITY 1

Learning objective: Be aware of the myths and assumptions associated with disfigurement.

Activity: Explain some of the ways in which the myths and assumptions associated with disfigurement might have implications for the following people:

· A young woman with a port-wine stain applying for work in a department store;

· A man with facial burns standing in a queue at a bus stop.

RESPONSE

Begin your response here.

Nursing Times Portfolio Pages: Coping With Disfigurement 1

coping with disfigurement

Nursing Times Portfolio Pages: Coping With Disfigurement 1

coping with disfigurement
ACTIVITY 2

Learning objective: Understand the psychological and social effects of disfigurement, and the feelings and behaviours of those affected and their families.

Activity: A father of two young children has sustained severe burns to his face and upper body in an industrial accident. Explain how he and his family might be affected by this trauma, both from emotional and practical perspectives.

rESPONSE

Begin your response here.

Nursing Times Portfolio Pages: Unit Title

coping with disfigurement

Nursing Times Portfolio Pages: Unit Title

coping with disfigurement

Nursing Times Portfolio Pages: Coping With Disfigurement 3

coping with disfigurement
ACTIVITY 3

Learning objective: Understand the importance of social skills training for patients.

Activity

· How might you approach or introduce to patients on the ward the subject of dealing with other people’s reaction to their changed appearance?

· How might you discuss with an outpatient, or a patient on a home visit, their responses to other people’s questions?

RESPONSE

Begin your response here.

Nursing Times Portfolio Pages: Coping With Disfigurement 4

coping with disfigurement

Nursing Times Portfolio Pages: Coping With Disfigurement 4

coping with disfigurement
ACTIVITY 4

Learning objective: Know of ways to help patients think about how they are going to manage awkward social situations.

Activity: What sort of information would you feel appropriate to offer a patient who felt reluctant to think about how they might respond to questions or staring in social situations?

RESPONSE

Begin your response here.

Nursing Times Portfolio Pages: Unit Title

coping with disfigurement

Nursing Times Portfolio Pages: Coping With Disfigurement 5

coping with disfigurement
FULL REFERENCE LIST: Part 1

Bessell, A., Moss, T.P. (2007) Evaluating the effectiveness of psychosocial interventions for individuals with visible differences: A systematic review of the empirical literature. Body Image; 4: 227-238.

Bradbury, E. (1993) Psychological Approaches to Children and Adolescents with Disfigurement: a review of the literature. ACPP Review & Newsletter; 15: 1-6.

Clarke, A. (1999) Psychosocial aspects of facial disfigurement; problems, management and the role of a patient-led organisation. Psychology, Health & Medicine; 4: 2, 129-142.

Clarke, A., Cooper, C. (2001) Psychosocial rehabilitation after disfiguring injury or disease: investigating the training needs of specialist nurses. Journal of Advanced Nursing; 33: 6, 1-9.

Cobb, S. (1976) Social support as a moderator of life stress. Psychosomatic Medicine; 38: 5, 300-314.

Coutinho, W. (2006) ‘Don’t Let the Way I Look Affect the Way You See Me’. London: Changing Faces.

Dropkin, M.J. (2001) Anxiety, coping strategies, and coping behaviours in patients undergoing head and neck cancer surgery. Cancer Nursing; 24: 2, 143-8.

Kapp-Simon, K. et al (1992) Self-perception, social skills, adjustment and inhibition in young adolescents with craniofacial anomalies. Cleft Palate-Craniofacial Journal; 29: 352-356.

Kleve, L. et al (2002) The effectiveness of cognitive-behavioural interventions provided at Outlook: a disfigurement support unit. Journal of Evaluation in Clinical Practice; 8: 4, 387-395.

Kleve, L., Robinson, E. (1999) A survey of psychological need amongst adult burn-injured patients. Burns; 25: 575-579.

Kubler-Ross, E. (1969) On Death and Dying. New York, NY: Macmillan.

Lansdown, R. et al (eds) (1997) Visibly Different: Coping with Disfigurement. London: Butterworth Heinemann.

Moss, T.P. (2005) The relationships between objective and subjective ratings of disfigurement severity, and psychological adjustment. Body Image; 2: 151-159.

Office of Population Censuses and Surveys Social Survey Division (1988) Surveys of Disability in Great Britain, Report I: The Prevalence of Disability Among Adults. London: OPCS.

Partridge, J. (1990) Changing Faces: the Challenge of Facial Disfigurement. London: Penguin.

Partridge, J., Robinson, E. (1995) Psychological and social aspects of burns. Burns; 21: 6, 453-457.

Picker Institute (2007) Information for People Living with Conditions that Affect their Appearance. Oxford: Picker Institute.

Robinson, E. et al (1996) An evaluation of the impact of social interaction skills training for facially disfigured people. British Journal of Plastic Surgery; 49: 281-289.

Rumsey, N. et al (2003) Exploring the psychosocial concerns of outpatients with disfiguring conditions. Journal of Wound Care; 12: 7, 247-52.

Rumsey, N. et al (2002) Altered body image: the psychosocial needs of patients. British Journal of Community Nursing; 7: 11, 563-566.

Rumsey, N. et al (1986) A preliminary study of the potential of social skills for improving the quality of social interaction for the facially disfigured. Social Behaviour; 1: 143-145.

Thompson, A., Kent, G. (2001) Adjusting to disfigurement: processes involved in dealing with being visibly different. Clinical Psychology Review; 21: 5, 663-682.