First Paneuropean Meeting on IchthyosisAugust 31 until September 02
Friday, August 31, 2007
From 4 pm onwards arrival of the participants
19:00 dinner at the Möwenpick Hotel
20:30 loose discussion rounds to become acquainted with each other
Saturday, September 01, 2007
08:45 departure from the hotel to the Hautklinik Münster
09:00 welcome and announcement of final programme
09:15 different speakers about:
- structure of the different patient groups
- ideas for better cooperation between the groups within Europe
- therapy and care
12:30 lunch
14:00 Joint workshop together with “First World Conference on Ichthyosis”
Therapy of ichthyosis: a challenge in daily practice
A. Vahlquist, Uppsala
Introduction to the topic: therapy of ichthyosis/general principles and substances
14:20 M.L. Preil, Bad Salzschlirf
Managemant of ichthyosis: The TOMESA experiences
14:40 A. M. van Steensel, Maastricht
Our experience with RAMOAs in treatment of congenital ichthyosis
14:55 H. Traupe, Münster
Results of an ongoing study with Liarozol for lamellar ichthyosis
Topical treatment/the patient perspective
15:10 A. Brünner, Bargen
Ichthyosis in Switzerland – Infections with EHK
15:25 J. Devidts, Mortsel
Ichthyosis in Belgium
15:40 Flavio Minelli, Italy
Treatment in Italy, special focus on the scalp
16:10 M. Sandström, Sweden
Experiences from Sweden, treatment of palms and soles
16:25 Panel discussion and questions for experts
16:45 Coffee break
Experimental therapies
17:15 M. Braun-Falco, Freiburg
Genetherapy for keratinization disorders, what is the current state?
17:35 D. Roop, Denver
Oligonucleotide therapy for keratin disorders
17:55 H. Traupe, Münster
Enzyme replacement therapy of lamellar ichthyosis: the current state
18:15 J.A. McGrath, London
Cell therapy approaches: the example of Epidermolysis bullosa
18:35 End of program return to Hotel
19:00 dinner (not yet decided where)
Sunday, September 02
08:45 departure from the Hotel to the Hautklinik Münster
09:00 workshop Networking Ichthyosis
several speakers
10:20 coffee break
11:00 resumee of the meeting
12:45 lunch
end of the conference