Postal address: Street address:

PO Box 28391 118 Andries Pretorius Street

Danhof Naval View

9310 9301

NPO No. 003-863

Introduction

Naledi Hospice has been providing palliative care for people of all races with life limiting diseases since 1989. Presently we employ 50 staff members who deliver quality holistic care and support to patients and their families in the Motheo district of the Free State Province. We have approximately 500 patients registered on our Home-based Care Programme, 9 patients at our In-patient Unit, and 50 patients on our Day Care Programme. We also have an outpatient clinic and Training Department for professionals and staff, as well as an Arts & Craft and Vegetable Garden Project.

Mission

Our mission is to provide specialized palliative care for patients and families facing life limiting diseases by means of a trained interdisciplinary team and training of professionals and community members in palliative care. Our aims and objectives are in line with the national strategic plan (NSP) of the Dept of Health.

Objectives

The objectives of our Programmes at Naledi Hospice are to:

·  Provide quality palliative care for patients who are well enough to travel to our Hospice and receive skills training, counseling and HIV testing, bereavement support, and information on HIV &AIDS related issues and to be encouraged to join Support Groups in their communities;

·  Provide monthly nutritional support and Home-Based Care disposables for patients in the community;

·  Provide palliative care training for professionals and community members;

Services

Our services include:

·  Training for professionals, corporate sector and community members

·  Skills development through our Arts & Craft Project.

·  Home-based Care (HBC) for community members

·  9-bed In-patient Unit for end of life care, and pain and symptom control

·  Out-patient Clinic and outreach programme

·  Day Care Programme for patients with life-limiting diseases

Business Management

Title and Initials

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Surname

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Position In

Organisation

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Contact Tel.

Number

Mr Robbie / Millward / Chairperson / 083 344 8316
Ms Joyce / Tlhoro / Vice Chairperson / 082 934 1023
Mr Antonio / Pereira / Treasurer / 051-436 9359
Dr MV / Tshabalala / Board member / 051-436 5994
Mr Oupa / Molema / Board member / 051-435 1453
Mr Ben / Burger / Board member / 082 818 9666

Operational Staff

Title, Initials And Surname / Position / Activity
Sr Diane Keegan / General Manager
Ms Elsabe Maartens / Financial Officer
Ms Sandra Moos / Admin Officer
Mr Dennis Flanegan / Stock Controller
Ms Leanne Posthumus / Funding Coordinator
Sr Gertrude Mekwa / Training Manager
Sr Naledi Sout / Prof Nurse
Ms Deliwe Mashibini / Admin Officer
Sr Dinah Molme / IPU Sister
Sr Lowe Kgaile / IPU Sister
Sr Thelma Thulo / IPU Sister
Sr Ntsiki Sikiti / IPU Sister
Sr Congy Kaile / Community Sister
Sr Dikeledi Leinaeng / Community Sister
Sr Sonja Pienaar / Community Sister
Sr M Ponoane / Professional Nurse
Mr John Sout / Social Worker

Skills Profile

·  Nursing skills
·  Training skills
·  Marketing skills
·  Management skills
·  Formal Administration
·  Bookkeeping
·  Business skills

Beneficiaries

Naledi Hospice is focusing on development and sustained socio-economic well-being of patients and their families through skills training in arts and craft. Thus generating income for the patients to increase their livelihood and empowering them to raise their level of household income. Our focus is women, men, youth, the elderly, and people with disabilities and life-limiting diseases, i.e. CANCER, HIV & AIDS. Approximately 95% of our patients are HIV infected, of which 50% of these are terminally ill and bedridden, and come from the poorer communities surrounding Bloemfontein, Mangaung, Botshabelo and Thaba ‘Nchu. The majority are unemployed women who are HIV infected and suffering from AIDS related diseases.

How many women / 184
How many men / 329
Total beneficiaries / 513

Needs statement

The Free State Province has the fourth highest incidence of HIV infection in our country (30.3% as at 2005). Unemployment and migration are some of the factors that contribute to the spread of the HI virus in our Province. Poverty and a lack of health services and transport facilities in the rural areas and informal settlements are challenges that we daily face.

Households affected by the HIV pandemic have to cope with the multiple consequences, and the grants provided by government to assist families is insufficient to feed, clothe and educate their children or themselves.

Naledi Hospice provides a needed service to the communityYes, we provide a needed service to all patients in poor communities of the Motheo district (Bloemfontein, Mangaung, Botshabelo and Thaba ‘Nchu) of which the majority is unemployed women and HIV infected people, the elderly and people with disabilities and life-limiting diseases.
·  Provide holistic care for patients and their families through our Home-based Care Programme.
·  Provide quality Palliative Care at our 9-bed In-patient Unit for terminally ill patients.
·  Empower people through training for professionals, corporate sector and community members.
·  Provide skills for patients through our Arts & Craft and Vegetable Garden Project that generates income to improve their livelihood.
·  Control the spread of TB by monitoring patients and give guidance to Carers.
·  Provide nutritional support, counseling, bereavement support, information on HIV & AIDS related issues through our Day Care Programme.

Credibility

Naledi Hospice is a member of HPCA (Hospice Palliative Care Association) of SA, and is the accredited ‘Center of Palliative Care Training’ for the Free State and Northern Cape. We were accredited by HWSETA for home-based care and palliative care training in the Free State. Monitoring and evaluation is of our programmes is an ongoing process, facilitated by ensuring that our supervisors are skilled and educated in palliative care, by maintaining records and statistics, and regular reports on the project.

Sustainability

Sustainability is achieved through ongoing fundraising, community participation through donations, membership fees and sound financial control. There is a vegetable garden project, arts and crafts project (shoes, needlework, jewels, etc), as well as a second hand clothing and book shop that generates income for Naledi Hospice. Expertise training for professionals and community members, corporate, health sector and other NGO’s also generates income for hospice.

Swot Analysis

Strengths:

·  Communities are benefiting from professional holistic Palliative Care through our Home-based Care, Day Care Programme and In-patient Unit for terminally ill patients, out-patient clinic and arts and craft project.
·  Staff, community members and professionals are empowered through various training courses provided by Naledi Hospice facilitators.
·  Positive working relationship (teamwork) between different departments at Naledi Hospice.
·  Accredited as Centre for Palliative Care Learning for the Free State and Northern Cape.
·  Good governance, fiscal and admin control managed by Professional staff.
·  Accountability to donors and accurate record keeping of statistics and stock.
·  Sustained and quality service to patients.

Weaknesses:

·  Lack in resources (transport for ill patients, home-based care kits and disposables) is a challenge to staff that need to serve terminally ill patients.
·  Shortage of healthy and nutritional meals, blankets and clothes for patients in black rural areas and informal settlements.
·  Not enough equipment and/or material for Vegetable Garden and Arts & Craft Projects at Naledi Hospice and St Andrew’s Day Care Centre in Botshabelo.

Opportunities:

·  Staff has huge potential for development through further training (internal and external).
·  Patients could benefit through income generating activities (arts & crafts and vegetable garden) through the Day Care Programmes.
·  Improve the quality of life and sustain the livelihoods of community members.
·  More patients could receive nutritional supplements through the Home-based Care Programme.
·  Various training courses could empower community members and family members of the terminally ill patients.
·  More patients could benefit from health care at the In-patient Unit.
·  Bi-monthly newsletter could provide information on and promotion of hospice training courses and services to the community of Motheo.

Threats:

·  Increase in the number of AIDS patients that need palliative care and prophylaxis
·  TB and ARV defaulters
·  Opportunistic Infections, STI’s, unplanned pregnancies and alcohol abuse
·  Unemployment and poverty in rural and informal settlements
·  Stigma, discrimination and ignorance about HIV & AIDS
·  Inadequate security and fencing around the premises at Naledi Hospice
·  Funding for hospice services are not always consistent and sustainable
·  Costly building and vehicle maintenance

Conclusion

In an effort to reduce HIV & AIDS morbidity and mortality, as well as its socio-economic impact on HIV infected community members and their families, Naledi Hospice is in the process of expanding its special kind of caring.

Contact details:

Leanne Posthumus

Funding Coordinator

Naledi Hospice

Tel 051-433 4462

Fax 051-433 4465

Cell 072 136 9652