PATIENT-POWERED RESEARCH NETWORKS (PPRN)LOI TEMPLATE
Use this template to complete the requirements for the Infrastructure Patient-Powered Research Networks (PPRN) letter of intent (LOI). Do not exceed four pages. Note that included URLs providing additional information to expand the LOI will not be reviewed.
Refer to the PCORI PPRN announcementandApplication Guidelines for additional guidance.
PROJECT/NETWORK PLAN
1. Concisely describe the network’s origin, mission, and current size.
2. Describe or demonstrate the following:
a. Capacity of the network to grow during the 18-month period:
b. All current partnerships and/or plans to partner with other organizations during the 18-month funding period:
c. Capacity and willingness to link and collaborate with other networks:
d. Readiness to adequately perform on each of theeight ideal features of the PPRN, described in the Opportunity Snapshot of the PFA.Utilize the table below to indicate for each feature whether the network: (1) has already achieved the feature; (2) has plans to achieve the feature (provide a timeline with milestones); or (3) does not anticipate having the capacity to address this feature during the study period.
Feature / Achieved (Y/N) / If Not Yet Achieved, Describe Plan(Include timeline and milestones) / No Capacity within study period (Y/N)
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LEADERSHIP AND PERSONNEL
1. Briefly state the qualifications of the PI and key personnel to perform the described project.
IMPACT ON CAPACITY, SCALABILITY, AND SUSTAINABILITY
1. State explicitly how the proposed work will, if successful, impact the capacity, scalability, and sustainability of the existing patient-powered research network; on patient involvement in governance; on policies for including/engaging patients and families, patient education on privacy and confidentiality issues, and other indications of how patients are at the center of this work.
IMPACT AND RELEVANCE TO PATIENTS AND PCOR
1. Briefly describe how the network being created or further developed will benefit patients and which populations will benefit most.
2. Describe how the establishment of the applicant’s network will contribute to PCORI’s overall goal of establishment of a unified research infrastructure for future PCOR studies.
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PCORI PPRN LOI Template