Imagine you have an 8 mm stone in your kidney. It is currently not causing any symptoms or risk of infection. Please select which of the following options you would choose, regardless of potential costs involved:
- Observation
-would follow your stone annually with an x-ray to see if it grows
-it is very unlikely that the stone will cause any problem with kidney function
-30% chance that the stone will not grow or cause pain or need a surgery over 4 years
-Risks:
- Stone growth – odds of this are 40% over 4 years
- if it gets larger than 10mm then shockwave lithotripsy will no longer be an option
- Moves into the ureter – odds of this is 30% over 4 years
- If it moves into the ureter – chance of passage 25%
- If it moves half-way down and gets stuck – shockwave lithotripsy will no longer be an option
- Shockwave lithotripsy
-out-patient surgery, non-invasive (no scopes or stents)
-takes one hourunder conscious sedation (in a “twilight state”, still awake during procedure, but given medication to relax and relieve pain)
-minimal pain, back to work in 2 days on average
-no heavy lifting or vigorous exercise for 2 weeks
-typically fragments are about the size of a grain of sand and pass easily
-Success: 65%
-Risks:
- 1 in 1000 risk of a serious bleed requiring transfusion
- 1 in 100 risk of needing an emergent second procedure if a larger stone fragment gets stuck
- Ureteroscopy
-out-patient surgery, minimally invasive
-scope goes into your bladder, up the ureter and laser breaks up the stone
-takes one hour, general anesthesia
-you need a stent for one week – 80% of patients will have some discomfort
- pain in bladder and/or pain in kidney
- 1 in 10 will be significant discomfort
-No restrictions on activity other than any limitations due to stent discomfort
-Stent comes out in clinic (short 5 min procedure where a scope is placed in your bladder)
-Success: 90%
-Risks:
- 1 in 1000 risk of a serious injury to the ureter – would require major surgery to repair
- 1 in 100 risk of a minor injury requiring a stent for 2-3 weeks
- Small risk of a urinary tract infection
SUMMARY
1. Observation / 2. Shockwave / 3. UreteroscopySuccess / 25% passage / 65% / 90%
Anesthesia / None / Sedation / General
Stent / No / No / Yes
Main risks / Pain (30%)
Stone growth (40%)
Need for surgery (25%) / Serious bleed - (1 in 1000)
Need for ureteroscopy - (1/100) / Serious injury
(1 in 1000)
Minor injury
(1 in 100)
Age:______
Gender: Mor F
I chose:
- Observation
- Shockwave lithotripsy
- Ureteroscopy
In the above scenario, would youprefer to:
- follow the doctors recommended treatment
- Make your own treatment decision based on the written information provided.
What variable was most important to you in your decision?
- Success rate
- Risk of complication
- Anticipated post-operative pain
- Other: ______
Have you passed a stone before? Yes or No
If yes, how many stones have you passed?______
When was the last stone you passed (days/months/years):______
How big was the largest stone you passed (mm): ______
What has been the worst kidney stone pain you have had? 1 2 3 4 5 6 7 8 9 10
More pain
Have you had any of the following procedures (circle all that apply):
- Ureteral stent: Total # ______
- Shockwave lithotripsy: Total # ______
- Ureteroscopy: Total # ______
- Percutaneous Nephrolithotomy (PCNL or PUP): Total # ______
Any comments?