SCHOOL CARE PLAN

A / Personal Details
Name / xxx / DOB / xxx
Age xxx / Address
Tel. / Xxxxxx
xxx
B / Medical Condition / Hereditary Angioedema (C1 Esterase Inhibitor Deficiency)
A rare blood disorder leading to episode attacks of swelling.
Episodes can be triggered by trauma, illness, hormones, stress and also for no determinable reason.
Episodes can be life threatening and must be treated without delay.
C / Assessment of Risk
Common Swellings / Symptoms / Risk / Action / Treatment Required
FACE & THROAT
Common Swellings / Puffiness on the face or neck
Difficulty swallowing
Difficulty breathing
Panic
Pale pink rash similar to marble
Do not confuse symptoms with allergic reaction (anaphylaxis) as this will delay medical treatment
Symptoms / HIGH
Risk / This is a medical emergency that can lead to death by asphyxiation
Paramedic Ambulance required to take patient to xxxHospital
Protocol agreed with xxx
Telephone in advance on
Xxx to advise them to prepare medication
Give doctor’s letter to medical staff
Action / C1 Esterase Concentrate (Berinert)
To be administered intravenously
Medication only stored at larger hospitals
Patient has supply at home, mother trained to administer
Treatment Required
ABDOMINAL
------
HANDS, FEET, ARMS, LEGS, GENITALS / Swollen tummy
Abdominal pain
Nausea/sickness
Diarrhea
Pale pink rash similar to marble
------
Dehydration - dizzy, headache, lightheaded, lethargic, confused, unable to urinate, dry mouth and eyes
------
Soft tissue swellings
Pale pink rash similar to marble
Discomfort / MEDIUM
------
HIGH
------
LOW / Call parents
Any episode can lead to further swellings, so close supervision is required until the pupil is collected.
------
Ambulance required to take patient to xxx Hospital
Protocol agreed with xxx
Telephone in advance on
xxx to advise them to prepare medication.
Give doctor’s letter to medical staff
------
Call parents
Any episode can lead to further swellings, so close supervision is required until the pupil is collected / C1 Esterase Concentrate (Berinert)
To be administered intravenously, can be done by mother at home
------
C1 Esterase Concentrate (Berinert)
To be administered intravenously
Intravenous fluids
------
Painkillers
Rest
Depending on severity of attack, C1 Esterase Concentrate (Berinert)
D / CONTACT DETAILS
Name / Mobile No. / Address / Work No. / Email
xxx (Mother) / xxx / xxx / xxx
xxx (Father) / xxx / xxx / xxx
xxx (Consultant) / xxxHospital, Immunology / xxx
xxx (Grandparents) / xxx / xxx

OTHER USEFUL INFORMATION

xxx takes TRANEXAMIC ACID daily, which helps to control frequency and severity of attacks.

xxx wears a MEDICALERT bracelet and carries a wallet card.

This provides details of his condition and a telephone number for medical staff to call if this plan is not available.

Xxx’s father also suffers with the condition, which is hereditary.

The emergency treatment C1 Esterase Concentrate (Berinert) is also stored at home in the fridge and xxx’s mother is trained to administer it.

This could save valuable time in an emergency.