September 2014

Dear Colleague

Re: South West and South Wales Regional Teaching in Adult Congenital Heart Disease

Advanced ACHD

Engineers’ House, Bristol

16th March 2015

Most children born with congenital heart disease now survive into adulthood and now around two thirds of patients with congenital heart disease are adults. In the UK it is estimated that there are 1500 patients entering adulthood every year. In spite of this, there are still not enough cardiologists in the UK who are fully trained to care for these patients, and significantly less than those caring for children. It is therefore becoming increasingly common for general cardiologists to come across adult patients with congenital heart disease on their wards and in their clinics.

Although Bristol remains the regional referral centre for these patients and the centre for intervention and surgery, it will become increasingly important for cardiologists and trainees working in other hospitals throughout the South West and South Wales to have a working knowledge of the common lesions encountered and their management. Ultimately, as the patient numbers continue to increase, it is the Department of Health’s aim that centres of shared care will develop, where a local cardiologist will develop an interest in this field and manage simple and moderately complex lesions with the support of the Bristol team. This will not only improve emergency care for the patients, but allow them to have much of their out-patient care delivered closer to home.

The aim of this training programme is to offer education to all cardiologists and trainees in the region so that they might be more confident in caring for these patients. It is hoped that junior SpRs and STs will attend these days and that they might encourage some to pursue this subspecialty of cardiology; trained ACHD cardiologists are so desperately needed. Any cardiology trainee pursuing a career in imaging will also need to be able to echo these patients effectively and indeed some knowledge and training in ACHD is mandatory for completion of specialist training.

Training Days will occur twice a year in September and March from approximately 9:00am to 4:40pm. Each training day will be focussed around practical management of the conditions. The talks will be given by doctors working in the area of adult congenital cardiology and there will be discussion and problem-solving, particularly around real life cases. Delegates are encouraged to bring cases to discuss, either for presentation or informal discussion. No question or case will be deemed too simple to be asked or discussed! Prior to each training day, information and questions for consideration will be sent to delegates to enable them to get the most out of the day. A learning syllabus will be available to take away. The curriculum is designed so that, over a period of 2 years, most areas of ACHD will be covered. Feedback in the past has emphasised the value of case-based discussion to aid learning.

The training days were initially supported by the AGW Network and now by Actelion. There will be no charge for attendance, though we will have to charge £50 to those who have registered but do not attend without 48 hours notice of cancellation. It is hoped that the short day will make it easier for delegates coming from the more distant parts of the region to attend and the days of the training are on different days of the week to allow as many cardiologists in the region as possible to attend over time. The third day of this cycle is scheduled for Monday 16th March 2015.

I would be grateful if you could complete the reply slip at the end of this letter to indicate whether or not you are able to attend. Many thanks in advance for your interest in learning more about this most interesting and challenging group of patients.

Warmest wishes,

Yours sincerely,

Dr Stephanie Curtis BSc(Hons) MBChB MD FRCP

Please could you complete the enclosed reply as soon as possible and return it to: Edith Taylor, ACHD Secretary, Level 7, Bristol Heart Institute, Marlborough Street, Bristol, BS2 8HW.


South West and South Wales Regional Teaching in Adult Congenital Heart Disease

Advanced ACHD

Engineers’ House, Bristol

Monday 16h March 2015

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Regional Training Programme in Adult Congenital Heart Disease: Advanced ACHD

Monday 16th March 2015

Engineers’ House, Bristol

09.00-09.30 Registration

09.30-09.45 Welcome and Overview Dr Stephanie Curtis

Session 1: Ebstein’s Anomaly
09.45-10.05 / Disease spectrum and when to operate / Dr Stephanie Curtis
10.05-10.25 / Cardiac surgical issues in Ebstein’s anomaly / Mr Andrew Parry
10.25-11.05 / Ebstein Cases Discussion

11.05-11.25 Coffee

Session 2
11.25-11.45 / Sinus of Valsalva Aneurysms: what are they and do they matter? / Dr Gareth Morgan
11.45-12.05 / Transition from Paediatric to Adult Cardiac Services: how to do it right / Mrs Sheena Vernon
12.05-12.25 / Primum atrial septal defects: just another ASD? / Dr Stephanie Curtis
12.25-12.45 / Case Discussion

12.45-1.35 Lunch

Session 3: Transposition Complexes
1.35-1.55 / Surgical Repair of Transposition of the Great Arteries / Mr Andrew Parry
1.55-2.25 / Long-term Management of the Patient with a Mustard or Senning Repair / Dr Graham Stuart
2.25-2.55 / Is it better to have an arterial switch repair of transposition of the great arteries? / Dr Gareth Morgan
2.55-3.15 / Lifelong Management of the Patient with Congenitally Corrected Transposition / Dr Mark Turner

3.15-3.35 Coffee

Session 4
3.35-3.55 / PDA and Aortopulmonary window / Dr Beverly Tsai-Goodman
3.55-4.15 / Endocarditis in ACHD / Dr Radwa Bedair
4.15-5.00 / Endocarditis Round Table Discussion

5.00 End of Meeting

The venue and catering has been sponsored by Actelion Pharmaceuticals UK Ltd who have had no influence on the content of the curriculum


Regional Training Programme in Adult Congenital Heart Disease: Advanced ACHD

Monday 16th March 2015

Engineers’ House, Bristol

Aims and Objectives

Session 1

By the end of this session, participants will understand

·  the anatomy and physiology present in Ebstein’s anomaly

·  when to operate on the tricuspid valve in Ebstein’s anomaly

·  the surgical issues in repairing Ebstein valves

Session 2

By the end of this session, participants will be aware of

·  the types of sinus of Valsalva aneurysms, their presentation and management

·  the definition of transition and its importance in ACHD

·  the anatomy and physiology of atrioventricular septal defect

·  the management of the long term complications of AVSD repair

Session 3

By the end of this session, participants will be able to

·  understand the anatomy and physiology of both types of transposition of the great arteries and the reasons for different surgical approaches

·  understand the long term complications suffered by patients with repaired transposition

Session 4

By the end of this session, participants will be aware of

·  the presentation and management of PDA and AP window

·  the spectrum of disease in endocarditis in AHCD


Regional Training Programme in Adult Congenital Heart Disease: Advanced ACHD

Monday 16th March 2015

Engineers’ House, Bristol

Faculty

Dr Radwa Bedair, Consultant ACHD Cardiologist, University Hospitals Bristol

Dr Stephanie Curtis, Consultant ACHD Cardiologist, University Hospitals Bristol

Dr Gareth Morgan, Consultant ACHD and Paediatric Cardiologist, Evelina Children’s Hospital, London

Mr Andrew Parry, Consultant ACHD and Paediatric Cardiac Surgeon, University Hospitals Bristol

Dr Graham Stuart, Consultant ACHD and Paediatric Cardiologist, University Hospitals Bristol

Dr Bev Tsai-Goodman, Consultant Paediatric Cardiologist, University Hospitals Bristol

Dr Mark Turner, Consultant ACHD Cardiologist, University Hospitals Bristol

Mrs Sheena Vernon, Lead Clinical Nurse Specialist, University Hospitals Bristol

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