National Lung Cancer Audit (NLCA) – Information for Trusts regarding 2014 Data Report
The contract for delivering the NLCA has now moved from the NHS Health and Social Care Information Centre (HSCIC) to the Royal College of Physicians (RCP). The RCP are working in partnership with the National Cancer Registration Service (NCRS) to collect the NLCA data items.
The former LUCADA system for data collection via Open Exeter previously run by the HSCIC has now ceased. The NLCA core and site-specific data will be collected through the NCRS via the existing Cancer Outcomes and Services Dataset (COSD).
The NLCA clinical team recognises that many Trusts have been collecting data for 2014 with a view to submission via Open Exeter in June 2015, which is no longer possible. The NCRS will try to secure these data for 2014 from a combination of COSD feeds already received by the NCRS and by inviting Trusts, where appropriate, to submit their ‘LUCADA’ extracts. To align with the NCRS and COSD rules, the NLCA will be reporting by date of diagnosis, not date first seen. For reporting purposes, data can still be allocated to the Trust where the patient was first seen.
The NLCA clinical team has advised the NCRS to aim to secure a reduced set of data items for 2014 in order to ‘hold the ring’ during transition and to try to maintain the planning for the data collection, analysis and production of a 2014 Annual Report. These 29 key data items are listed on page 2.
The timescales for this work to be completed are quite tight, but please be assured that the NCRS is keen to work with Trusts to improve the data completeness of the key data items. If your Trust is not able to submit a LUCADA extract, please contact your NCRS Data Improvement (DI) Lead and they will discuss options with you. It is acknowledged that there are some differences in the definition of key data items in COSD and LUCADA, so rules have been put in place to help process the data. If there are discrepancies between COSD and LUCADA data, the LUCADA data will take precedence for this exercise, based on the assumption that it has been validated by the clinical teams.
Outline of steps for 2014 data processing
· NCRS produce data completeness reports per trust based on the key data items submitted through COSD – by 31 March 2015
· Trusts work to complete key data items for patients diagnosed in 2014 and submit LUCADA extract – by 29 May 2015
· NCRS process all data sources, including LUCADA and deliver 2014 data to NLCA project team for analysis – by 31 July 2015
The data completeness reports will include the number of cases submitted and the completeness of the key data items that have already been submitted for COSD. Trusts will also be able to request the patient level data behind the data completeness reports. Please contact your NCRS DI Lead to arrange this.
If you are able to submit LUCADA data from your Trust, please submit the standard extract, i.e., containing all data fields, and the NCRS will extract the 29 key data items for processing. Please send the CSV file to your local NCRS as per COSD submissions. As the timescales are tight, we would welcome extracts ahead of the deadline if possible.
Key Data Items for 2014 data
Data items 1-5 are required for linkage.
Data Item for Report / COSD Data Item / LUCADA Data Item / Notes / Rules1. NHS Number / CR0010 NHS NUMBER / 1.1 NHS NUMBER
2. Date of Birth / CR0100 PERSON BIRTH DATE / 1.10 BIRTH DATE
3. Date of Diagnosis / CR2030 DATE OF DIAGNOSIS (CLINICALLY AGREED) / 4.1 DIAGNOSIS DATE (CANCER) / Note that the definitions are slightly different. The COSD clinically agreed date of diagnosis will be used in the annual report.
4. Primary Diagnosis / CR0370 PRIMARY DIAGNOSIS (ICD) / 4.2 PRIMARY DIAGNOSIS (ICD) / LUCADAinclusioncriteria:
ICD-10 Codes for Primary Site
C34Malignant neoplasm of bronchus or lung
C34.0Main bronchus, Carina,Hilusof lung
C34.1Upper lobe, bronchus or lung
C34.2Middle lobe, bronchus or lung
C34.3Lower lobe, bronchus or lung
C34.8Overlapping lesion of bronchus and lung
C34.9Bronchus or lung, unspecified
C33Trachea
C38Malignant neoplasm of heart,mediastinumand pleura
C38.4Pleura
C38.3Mediastinum, part unspecified
C38.8Overlapping lesion of heart,mediastinumand pleura
C45Mesothelioma
C45.0Mesotheliomaof pleura
5. Tumour laterality / CR0380 TUMOUR LATERALITY / 4.3 TUMOUR LATERALITY
Age at Diagnosis / N/A / N/A / To be derived from Date of Birth & Date of Diagnosis
6. Sex / CR3170 PERSON STATED GENDER CODE / 1.9 SEX
7. Postcode / CR0080 POSTCODE OF USUAL ADDRESS (AT DIAGNOSIS) / 1.8 POSTCODE OF USUAL ADDRESS (AT DIAGNOSIS)
8. Organisation code first seen / CR1400 ORGANISATION SITE CODE (PROVIDER FIRST CANCER SPECIALIST) if populated, else use
CR1410 ORGANISATION SITE CODE (PROVIDER FIRST SEEN) / 1.3 ORGANISATION CODE (PROVIDER FIRST SEEN) / Please note this is an important data item as it will be used to allocate patients in the annual report.
9. Date first seen / CR1360 DATE FIRST SEEN (CANCER SPECIALIST) if populated, else use
CR0230 DATE FIRST SEEN / 2.9 DATE FIRST SEEN
10. Basis of diagnosis / CR0390 BASIS OF DIAGNOSIS (CANCER) / 4.4 BASIS OF DIAGNOSIS (CANCER)
11. Histology (diagnosis) / CR0400 MORPHOLOGY (SNOMED) / 4.5 HISTOLOGY (SNOMED)
12. Performance status / CR0510 PERFORMANCE STATUS (ADULT) / 5.10 PERFORMANCE STATUS (ADULT)
13. T category (final pre-treatment) / CR0520 T CATEGORY (FINAL PRE-TREATMENT) / 6.1 T CATEGORY (FINAL PRE-TREATMENT) / As per COSD guidelines, it is expected that TNM version 7 is used.
14. N category (final pre-treatment) / CR0540 N CATEGORY (FINAL PRE-TREATMENT) / 6.3 N CATEGORY (FINAL PRE-TREATMENT)
15. M category (final pre-treatment) / CR0560 M CATEGORY (FINAL PRE-TREATMENT) / 6.5 M CATEGORY (FINAL PRE-TREATMENT)
16. TNM category (final pre-treatment) / CR0580 TNM CATEGORY (FINAL PRE-TREATMENT) / 6.7 TNM CATEGORY (FINAL PRE-TREATMENT)
17. T category (integrated stage) / CR0620 T CATEGORY (INTEGRATED STAGE) / 8.16 T CATEGORY (PATHOLOGICAL)
18. N category (integrated stage) / CR0630 N CATEGORY (INTEGRATED STAGE) / 8.17 N CATEGORY (PATHOLOGICAL)
19. M category (integrated stage) / CR0640 M CATEGORY (INTEGRATED STAGE) / 8.18 M CATEGORY (PATHOLOGICAL)
20. TNM stage grouping (integrated) / CR0610 TNM STAGE GROUPING (INTEGRATED) / 8.19 TNM CATEGORY (PATHOLOGICAL)
21. Patient seen by clinical nurse specialist / CR2050 CLINICAL NURSE SPECIALIST INDICATION CODE / L47 PATIENT ASSESSED BY LUNG CANCER NURSE SPECIALIST / Definitions differ slightly – mapping rules will be applied for Y/N
22. MDT date / CR0430 MULTIDISCIPLINARY TEAM DISCUSSION DATE (CANCER)
(meeting when the care plan discussed and treatment planning decision made) / 5.2 MULTIDISCIPLINARY TEAM DISCUSSION DATE
(date of the MDT closest to the first treatment)
23. Chemotherapy date / CR2040 CANCER TREATMENT MODALITY – 02 (Anti-cancer drug regimen (Cytotoxic Chemotherapy)), 03 (Anti-cancer drug regimen (Hormone Therapy)), 14 (Anti-cancer drug regimen (other)) & 15 (Anti-cancer drug regimen (Immunotherapy)) AND CR1370 TREATMENT START DATE (CANCER) / 9.10 START DATE (ANTI-CANCER DRUG REGIMEN) / For COSD both data items to be used
24. Radiotherapy (Teletherapy) date / CR2040 CANCER TREATMENT MODALITY – 05 (Teletherapy (Beam Radiation excluding Proton Therapy)) AND
CR1370 TREATMENT START DATE (CANCER) / 10.8 START DATE (TELETHERAPY TREATMENT COURSE) / For COSD both data items to be used
25. Radiotherapy (Brachytherapy) date / CR2040 CANCER TREATMENT MODALITY – 06 (Brachytherapy) AND
CR1370 TREATMENT START DATE (CANCER) / 11.9 START DATE (BRACHYTHERAPY TREATMENT COURSE) / For COSD both data items to be used
26. Surgery date / CR0710 PROCEDURE DATE / 7.9 PROCEDURE DATE
27. Histology (post surgery) / CR0850 MORPHOLOGY (SNOMED) / 8.10 HISTOLOGY (SNOMED)
28. Surgery hospital site code / CR1450 ORGANISATION SITE CODE (PROVIDER TREATMENT START DATE (CANCER) AND
CR2040 CANCER TREATMENT MODALITY – 01 / 7.1 SITE CODE (OF SURGERY)
29. Surgery procedure (OPCS code) / CR0730 PROCEDURE (OPCS) / 7.10 PRIMARY PROCEDURE (OPCS) / Common procedure codes for lung cancer:
(NEC=Not Elsewhere Classified)
E44.1Carinalresection
E46.1 Sleeve resection of bronchus and anastomosis
E54.1 Total pneumonectomy (includesPneumonectomy NEC)
E54.2 Bilobectomy of lung
E54.3 Lobectomy of lung
E54.4 Excision of segment of lung
E54.5 Partial lobectomy of lung NEC
E54.8 Other specified
E54.9 Unspecified
E57 Other open operation on lung
E59.5 Lung radiofrequency ablation
T01 Partial excision of chest wall
T07 Open excision of pleura
T17.1 Excision lesion of diaphragm
K67 Excision pericardium
T87/T86/T85 Excision/sampling/block dissection of lymph nodes
T07.9 Pleurectomy
T07.1 Decortication of pleura
T10.2 Endoscopic pleurodesis using talc
T10.3 Endoscopic pleurodesis NEC
T09.3 Mechanical open pleurodesis
T09.4 Chemical open pleurodesis
T09.5 Open pleurodesis NEC
T13 Introduction of substance into pleural cavity
NCRS Data Improvement Leads
East Midlands & National: Karen Graham (, 07949 004649)
Eastern: Andrew Murphy (, 01223 213499) and DonnaGibbard(, 01223 213499)
London: Michael Sharpe(, 07958 758 297)
North West: Elsita Payne (, (161 918 7317)
Northern and Yorkshire: Christine Head (, 0113 2068142)
Oxford: Jacquie Almond (, 01865 334785)
South West: James Withers (, 0300 303 8162 ext 69056)
West Midlands: Donna Lloyd (, 0121 214 9164)
NCRS Audit Project Manager: Tasha Wood (, 07813 189856)
NLCA Senior Clinical Lead: Dr Ian Woolhouse, (, 0121 3714911)
Filename: NLCA NCRS 2015 - Trust guidance final 17.03.15.docx6Last updated: 17/03/15