Pediatric Palliative Care and End-of-Life Coalitions

Contact Information – Updated December 2007

California

Children’s Hospice and Palliative Care Coalition

Lori Butterworth

65 Neilson St.

Watsonville, CA 95076

831-763-3070 ext. 204

Los Angeles Children's Comfort ProgramClarke Anderson

UCLA Jonsson Cancer Center

22-464 MDCC

10833 LeConte Ave.

Los Angeles, CA 90095-1752

310-825-0731

Northern California Pediatric Palliative Care Collaboration

Christy Torkildson

George Mark Children’s House
2121 George Mark Lane
San Leandro, CA 94578
925-984-3201

Connecticut

Greenwich Coalition for Improving End of Life Care

Paul Drager

P.O. Box 370548

West Hartford, CT 06137-0548

860-543-0036

District of Columbia (D.C.)

District of Columbia Pediatric Palliative Care Collaborative

Susan K. Rogers

1537 30th Street, NW

Washington, DC 20007

202-965-1564

Florida

Suncoast Children's Care Coalition

Stacy Orloff

2640 St. Andrews Dr.

Clearwater, FL 33761

727-523-3457

Massachusetts

Central Massachusetts Partnership to Improve Care at the End of Life

Christine McCluskey

120 Thomas St.

Worchester, MA 01608

508-767-9877

Maryland

Initiative for Pediatric Palliative Care

Deborah Dokken

2802 Blaine Dr
Chevy Chase, MD 20815
301-589-0090

Pediatric Palliative Care Coalition of Maryland

Cynda Rushton

525 North Wolfe St., Box 420

Baltimore, MD 21205

410-614-2223

Maine

The Jason Program

Kate Eastman

13 Industrial Park Road

Saco, ME 04072

207-294-8255

Minnesota

Minnesota Pediatric Palliative Care Coalition

Jody Chrastek

Children's Hospitals and Clinics

2525 Chicago Ave So

Minneapolis, MN 55404

612-183-6996

North Carolina

Kid’s Path –A Program of Hospice and Palliative Care of Greensboro

Marion Taylor

2504 Summit Ave

Greensboro, NC 27405

336-544-5437

Mecklenberg County End-of-Life Coalition

Joyce Conway

Hospice at Charlotte

1420 East 7th Street

Charlotte, NC 28204

704-335-3524

Pediatric Community Alliance

Shannon Bruggen

Hospice & Palliative Care Center

121 Hospice Lane

Winston-Salem, NC 27103

336-768-6157

Pediatric Palliative Care Coalition of North Carolina

Shannon Bruggen

Hospice & Palliative CareCenter

101 Hospice Lane

Winston-Salem, NC 27103

336-768-6157

New York

All Inclusive Care of Children Coalition

Laurie Fazekas

12 Rhoads Drive

Utica, NY 13502

315-731-9629

Ohio

Ohio Pediatric Palliative End-of-Life Network (OPPEN)

Sarah Friebert

Oncology Akron Children's Hospital

One Perkins Square

Akron, Ohio 44308

330-543-3343

Pennsylvania

Pittsburgh Pediatric Palliative Care Coalition

Meghan O'Donnell

939 Sheridan Ave.

Pittsburgh, PA 15206

724-969-2541

South Carolina

Tri-County End-of-Life Coalition

Paula Mellichamp

Hospice of Charleston -Kids Path

3870 Leeds Ave

North Charleston, SC 29405

843-529-3100

Tennessee

Mid-South Biomedical Ethics CenterChristopher Church

Baptist College of Health Sciences

1003 Monroe Avenue

Memphis, TN 38104

901-572-2493

Utah

Children's End of Life Waiver

Lisa Ann Morrise

Bureau of Managed Health Care

P.O. Box 143108

Salt Lake City, UT 84114-3108

801-538-6499

Vermont

Pediatric Supportive Care

Keven Eriksen

Visiting Nurse Association

1110 Prim Road

Colchester, VT 05446

802-860-4420

West Virginia

West Virginia Pediatric Palliative Care Network

Cindi Jamison

PO Box 9022

Morgantown, WV 26506

877-209-8086

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