EXAMINING PHYSICIAN
/ or identifying stampLast name:
First name:
Center:
Year ______
Last name of patient: ______
First name of patient:______
SOCIAL DATA
Professional situation
1- / Profession: / ______2- / If active
a) / Full time...... /
Part time...... /
b) / General area...... /
Specialized area...... /
3- / If inactive / Date: ______
______
a) / Due to illness...... /
b) / Not due to illness...... /
Source of income
1- / None (Welfare)...... / 2- / Social security, retirement...... /
3- / Unemployment insurance...... /
4- / Other (specify).... / ______
Lifestyle(at home)
1- / Lives alone /
2- / Family /
3- / In an institution /
Housing
1- / Adapted / 2- / Partially adapted /
3- / Non adapted /
Technical assistance
1- / No assistance / 2- / Assistance when in movement
1) / Manual wheelchair /
2) / Electric wheelchair /
3) / Electric wheelchair with vertical lift /
4) / Pushchair /
5) / Scooter /
3- / Assistance with communication
1) / Computer(to write/communicate) /
2) / Adapted communication system
(example: vocal synthesizer) /
4- / Assistance in hygiene
1) / Adapted toilets /
2) / Adapted bathroom /
5- / Assistance for transportation
1) / Adapted transportation /
2) / Adapted vehicle /
6- / Human assistance
1) / None /
2) / Home care for essential, every day living, for example: hygiene, eating , dressing) /
3) / Assistance in social situations(activities, errands) /
SUPERIOR FUNCTIONING
Education
1- / Primary / 2- / Secondary /
3- / College /
4- / University /
5- / Age when studies ended
Education/Age:
Personality disorder / yes / / no /
Behavioural problems / yes / / no /
1- / Diabetes (glycaemia >7.1 mmol/L)
...... / yes / / no /
Insulin therapy...... / yes / / no /
Oral hypoglycaemic agents ...... / yes / / no /
2- / Thyroid pathology...... / yes / / no /
Type: …………………………………………
3- / Other (Specify): …………………………………
OBSTETRICAL ASSESSMENT
1- / Pregnancies total......2- / FCS (before 22 WA), total......
3- / Fœtal death (after 22 WA), total......
4- / Neonatal death (before D29), total......
5- / Definite sterilization...... / yes / / no /
6- / Sterility (failed to become pregnant for 18 month period) / yes / / no /
Diurnal drowsiness / Yes / No
Epworth Scale
Never / Rarely / Sometimes / Frequently
While sitting down reading / 0 / 1 / 2 / 3
While watching television / 0 / 1 / 2 / 3
While seated in a public place / 0 / 1 / 2 / 3
Passenger in a car for over an hour non-stop / 0 / 1 / 2 / 3
When lying down at lunch time / 0 / 1 / 2 / 3
Seated and speaking with someone / 0 / 1 / 2 / 3
Seated after a meal (without alcohol consumption) / 0 / 1 / 2 / 3
In a car stopped in traffic / 0 / 1 / 2 / 3
EDS Score (0-24):
DSS Scale
Never / Rarely / Often / Always
Do you take one or several naps during the
day? / 0 / 1 / 2 / 3
Do you feel an overwhelming and sudden need to sleep during the day? / 0 / 1 / 2 / 3
Do you fall asleep while watching television or at the movies? / 0 / 1 / 2 / 3
Do you have difficulty remaining inactive for long periods of time during the day? / 0 / 1 / 2 / 3
Do you usually feel well during the day? / 3 / 2 / 1 / 0
DSS Score (0-15):
Motor - MRC
/Right
/Left
· /Neck flexors
· / Shoulder abductors· / Elbow flexors
· / Elbow extendors
· / Wrist extendors
· / Finger flexors
· / Hip flexors
· / Knee extendors
· / Knee flexors
· / Posterior foot flexors
· / Plantar flexors
MRC Score:
Functional testing
· / Dynamometrics( 2 JAMAR dynamometrics measurements on average) (kg)Right hand ______
Left hand ______
· / Handicap scale:
Normal...... / 0
Walking, running, normal jumps, some cramps and fatigue...... / 1
Normal walking, running, jumping impossible...... / 2
Abnormal walking but without assistance...... / 3
Abnormal walking with simple cane...... / 4
Abnormal walking with English cane...... / 5
Abnormal walking with walker...... / 6
Wheelchair...... / 7
Bedridden...... / 8
Score (0-8):
· / Time needed to walk 10 m (sec): / ______
With walker, cane...... /
With human assistance...... /
Impossible...... /
· / Myotonia (delay in muscle relaxation)
Absent / 0
Electrical/Percussion only / 1
Gripping ability: moderate / 2
Gripping ability: severe / 3
Muscular Disability Rating Scale (MDRS)
No clinical signs. Diagnosis by EMG or DNA analysis......
/ 1Myotonia, weakness in the face, neck, palpebral ptosis, nasal voice, no distal weakness except for finger flexors / 2
Distal weakness without proximal weakness except for triceps......
/ 3Moderate proximal weakness......
/ 4Severe proximal weakness (wheelchair needed)...... / 5
BILAN CARDIAQUE
Year of examination: / ______Examiner______
Normal cardiac assessment? / / yes
Pace-maker (year it was put in) / ______
Defibrillator(year it was put in) / ______
ECG
Rhythm:
- оо
ESA or ESV 2...... / 1
ESA or ESV 2...... / 2
FA or Flutter...... / 3
TV...... / 4
Rhythm score ( /4)
Auricular conduction
- о
/ Normal...... / 0
BAV 1...... / 1
BAV 2...... / 2
BAV 3...... / 3
Other...... /
Conduction score ( /3)
Ventricular conduction
Normal / 0
BB incomplete...... / 1
Bibloc (BBD + hemiBBG)..... / 2
BB complete...... / 3
Other...... /
Conduction score ( /3)
RESPIRATORY ASSESSMENT
Year of examination: / ______Normal respiratory assessment?
/ / yesAssisted breathing
No...... / 0Upon effort...... / 1
At night...... / 2
Permanent...... / 3
Invasive (tracheotomy).. / 4
Vital capacity (% predicted value)
/ Sitting down
/ Lying down
Blood gas
/ PaO2 (mm Hg)
/ PaCO2 (mm Hg)
/ Saturation (%)
Respiratory handicap scale
CV 75%...... / 140% ≤CV < 75%...... / 2
CV < 40%...... / 3
DIGESTIVE ASSESSMENT
Normal digestive assessment? yesGastrostomia / yes / Year: ______
Cholecystectomia / yes / Year: ______
Coughing while eating or drinking:
0 Never or < 2/mos
1 > 2/mos
2 > 1/week
Time required to swallow 80 CCs of water: sec Chocking: yes no
(cone shaped plastic cup)
Anal/urinary incontinence / no / / yes /
Height(m) ______
Weight loss in the past year (related to the disease): 5% / no / / yes /
Current weight (kg) ______
Last year’s weight (kg)______
Loss(kg) ______
Loss (%)______
Digestive handicap scale
No problems...... / 0Coughing when eating or drinking more than twice/month and swallowing time >6 sec and ≤ 18 sec., no weight loss
………………………………………………………………………………………………………………. / 1
Coughing when eating or drinking more than once/week and/or swallowing time >18 sec., choking on water and/or weight loss / 2
Gastrostomia...... / 3
Score:
OPHTALMOLOGICAL ASSESSMENT
Year of examination: / ______Cataract(posterior with coloured opaqueness)
Absent...... 0
Present and visible via ophthalmoscope...... 1
Operated on...... 2
Year of first operation: / ______
Associated hereditary disease: ______
Consultations and hospitalizations: (over the course of the previous year)
Number of consultations and/or hospitalizations / ______
Number of consultations and/or hospitalizations (in relation with the disease) / ______
Therapeutic protocols:
1- / Previous inclusion: / yes / / no / / Year of last protocol / ______
2- /
Refusal
/ (Revised December 2, 2008) / 1