Annex D2 Non-Disclosure: Sensitive Tabulations
The HES Protocol
Annex D2 – Non-Disclosure: sensitive tabulations
D2. Hospital Episodes Statistics Non-Disclosure Agreement Form – Sensitive tabulations
This form is appropriate for requesting tabulations of Hospital Episodes Statistics (HES) data that are sensitive. For example, the table may have small numbers in the cells that cannot be suppressed in the normal manner.
Organisation:
Responsible lead:
Data custodian:
HES Reference:OPP/117/005
Project:HES Cardiac data
HES data provided:
Data presented as Excel pivot tables for different types of cancer, containing a selection of the following HES variables:
December 2004
The HES Protocol
Annex D2 – Non-Disclosure: sensitive tabulations
Trust
SHA of Trust
SHA of patient
PCT of patient
Specialty
Age band
Diagnosis
Main procedure
Sub procedure
December 2004
The HES Protocol
Annex D2 – Non-Disclosure: sensitive tabulations
Class of patient (ordinary admission, etc)
December 2004
The HES Protocol
Annex D2 – Non-Disclosure: sensitive tabulations
December 2004
The HES Protocol
Annex D2 – Non-Disclosure: sensitive tabulations
and of the following derived variables:
December 2004
The HES Protocol
Annex D2 – Non-Disclosure: sensitive tabulations
IT cluster of Trust
Network of Trust
Country of patient
Network of patient
Type of patient (cancer type)
Type of tumour (malignant, etc)
Site of tumour
Sub-site of tumour
December 2004
The HES Protocol
Annex D2 – Non-Disclosure: sensitive tabulations
Sensitivities:
Patients must not be identified -
- Patient information must not be used to identify (or recognise) individual patients. HES data must be handled with proper regard to the confidentiality of individuals.
- Any published HES figure(s) at a local level must be based on no fewer than 6 cases or else suppressed (eg replaced with an asterisk, with a note “* in this table means a figure between 1 and 5”). Low-level analyses might facilitate the identification of individual patients, especially with local knowledge. Care should be taken to ensure that values may not be more closely calculated by differencing from sub-totals. For practical purposes, any geographic reference smaller than Strategic Health Authority should be considered local.
I agree
a)that there is a business need for this work requiring data with the sensitivities indicated above.
b)to abide by the instructions given against the sensitivities.
c)that the data will be stored with proper safeguards to prevent unauthorised access.
d)that the data will not be copied or transferred to any third party without their appropriate sign-up to non-disclosure. Note: output based on the data may be shared provided it abides by the rules above.
e)to give prior notice of intention to publish HES data to the HES section (contact below) and where feasible provide a copy of the published work. Any published work containing HES data must acknowledge the source:“Hospital Episode Statistics (Department of Health)”.
f)to inform NATCANSAT as soon as possible if custodianship of the data should change.
Signed______
Name______
Telephone contact number______
E-mail address______
Date______
NATCANSAT contact:
Helen Forbes
NATCANSAT
Clatterbridge Centre for Oncology
Clatterbridge Road
Bebington
Wirral
CH63 4JY
Email:
Tel: 0870 8408033
Fax: 0151 482 7674
HES contact:
Sheila M Dixon
Rm 445B, Skipton House, Dept of Health, 80 London Rd, LondonSE1 6LH.
Email:
Tel: 0207 972 5523
Fax: 0207 972 5662
Please complete and return this form to the NATCANSAT contact above. The HES data can only be made available once the agreement is received.
December 2004