Caring for Your Aging Parents:

Resources Handout-Part 2 Assessing Needs and Resources

GETTING THE CONVERSATION STARTED:

Caring for Your Parents (PBS Guide to read online or download)

http://www.pbs.org/wgbh/caringforyourparents/caregiver/gettingstarted/index.html

Additional PBS Checklists, National Associations

http://www.pbs.org/wgbh/caringforyourparents/community/index.html

Ten Tips for Talking to Your Aging Parents: A Guide for Discussing Options for Retirement Living http://www.actsretirement.org/retirement-resources/ten-tips-for-talking-to-your-aging-parents

AARP Caregiving Expert Explains How to Approach Difficult Family Conversations http://blog.aarp.org/2012/12/12/amy-goyer-tough-topics-to-discuss-with-older-loved-ones/?intcmp=AE-BLIL-BL

LEGAL CONSIDERATIONS:

National Elder Law Foundation (NELF): Find a Specialized Attorney Near You

www.nelf.org

Getting Your Affairs in Order (A “What and Where” Guide to Important Legal Documents)

http://www.nia.nih.gov/health/publication/getting-your-affairs-order

Legal, Financial and Healthcare Planning Documents: Wills, Living Wills, Durable Power of Attorney for Healthcare and Finances, Living Trusts and More

http://www.nia.nih.gov/alzheimers/publication/legal-and-financial-planning-people-alzheimers-disease-fact-sheet

What Is the Difference Between a Power of Attorney and a Durable Power of Attorney? http://www.360financialliteracy.org/Topics/In-Crisis/Planning-for-incapacity/What-is-the-difference-between-a-power-of-attorney-and-a-durable-power-of-attorney

American Bar Association's (ABA) Overview of Powers of Attorney and Agents http://www.americanbar.org/groups/real_property_trust_estate/resources/estate_planning/power_of_attorney.html

More Advance Directives: Information About Healthcare Proxies, Do-Not-Resuscitate Order (DNR) and Medical Orders for Life-Sustaining Treatments (MOLST) http://www.crouse.org/health/resources/advance-directives/

American Bar Association – several links to their consumer publications about managing other people’s money, advance directives, and much more

http://www.americanbar.org/groups/law_aging/publications.html

Managing Someone Else’s Money

http://files.consumerfinance.gov/f/201310_cfpb_lay_fiduciary_guides_agents.pdf

HOME SAFETY, HEALTH AND WELL-BEING:

Better Housing for Tompkins County (access for home modifications for elderly who qualify)

http://www.betterhousingtc.org/

Falls Prevention Resource Guide (Tompkins County Office for the Aging)

http://tompkinscountyny.gov/files/cofa/documents/2013%20June%20Fall%20Prevention%20Resource%20Guide%20COFA%20Web.pdf

This CaringHome.org (tips and tools for home safety for persons with dementia)

http://www.thiscaringhome.org/index.aspx

Signs and Symptoms of Depression in Older Adults and the Elderly http://www.helpguide.org/mental/depression_elderly.htm

Anxiety and Depression Association of America (ADAA): Tips for Family http://www.adaa.org/living-with-anxiety/older-adults/tips-family

What’s Happened to My Mother? How to Know When Your Family Member Isn’t Caring for Herself and What to Do About It

http://www.aarp.org/home-family/caregiving/info-11-2012/recognizing-abuse-self-neglect.html

Activities of Daily Living (ADLs) and Instrumental Activities of Daily Living (IADLs) http://longtermcare.gov/the-basics/what-is-long-term-care/

ADLs and IADLs Needs Assessment Worksheet http://www.caregiverslibrary.org/Portals/0/checklistsandforms_NeedsAssessmentWorksheet.pdf

It's So Much More Than Moving: Your Guide to Stress-Free Rightsizing and Relocation

http://www.nasmm.org/education/Guide_To_Rightsizing_and_Relocating.pdf

DRIVING SAFETY FOR THE AGING:

Senior Driving: Take an Interactive Quiz and Evaluate Your Driving Ability Online

http://seniordriving.aaa.com/evaluate-your-driving-ability

Older Driver Safety: Warning Signs and Knowing When to Stop

http://www.helpguide.org/elder/senior_citizen_driving.htm

Best Car Features for Caregivers

http://www.aarp.org/home-garden/transportation/info-11-2011/cars-for-caregivers.html

ITHACA AREA TRAVEL INFORMATION FOR OLDER PEOPLE:

Tompkins Consolidated Area Transit (TCAT) Half-Fare for Seniors

http://www.tcatbus.com/content/view/half-fare.html

Gadabout Bus Service for Tompkins County

http://ccetompkins.org/community/way2go/gadabout

Americans with Disabilities Act (ADA) Paratransit Bus

http://ccetompkins.org/community/way2go/ada-paratransit

Friends in Service Helping (FISH)

http://fishoftc.org/index.html

LEVELS OF CARE:

Quiz: How Much Do You Know About Planning for Long-Term Care? http://www.urmc.rochester.edu/encyclopedia/document.aspx?ContentTypeID=40&ContentID=LongTermCareQuiz

A Guide to Different Levels of Eldercare

http://www.insideeldercare.com/assisted-living/a-guide-to-different-levels-of-elder-care/

So Far Away: Twenty Questions and Answers About Long-Distance Caregiving

http://www.nia.nih.gov/sites/default/files/so_far_away_twenty_questions_about_long-distance_caregiving.pdf

HOMECARE

How to Select a Home Health Care Agency

www.cicoa.org/services/in-home-services/how-to-select-a-home-health-care-agency.html

Hiring Private Duty Home Care Workers: Why Work Through an Agency? http://www.caregiver.com/channels/ltc/articles/hiring_private_duty.htm

Hiring Help for Aging Parents? Read This First http://www.forbes.com/sites/ashleaebeling/2013/09/20/the-loophole-in-the-new-dol-home-care-worker-rules/

ASSISTED LIVING

Consumer Information Guide: Assisted Living Residence www.health.ny.gov/publications/1505.pdf

Information About Adult Care Facilities and Assisted Living Residences: An Informational Resource for NY Connects Professionals Prepared by Empire State Association of Assisted Living

www.esaal.org/pdf/NYConnectsGuide.pdf

Empire State Association of Assisted Living

http://www.ny-assisted-living.org/

Senior Living Options: Assisted Living

http://www.alfa.org/alfa/Assisted_Living_Information.asp

SKILLED NURSING FACILITIES

Nursing Homes: Making the Right Choice

http://www.nia.nih.gov/health/publication/nursing-homes

A Checklist to Help You Ask the Right Questions When Choosing a Long-Term Care Facility

http://www.aarp.org/home-family/caregiving/info-05-2012/caregiving-resource-center-asking-right-questions.2.html

Medicare Nursing Home Finder

http://www.medicare.gov/nursinghomecompare/search.html

Centers for Medicare and Medicaid Services: Your Guide to Choosing a Nursing Home

http://www.medicare.gov/Pubs/pdf/02174.pdf

FINANCING LONG-TERM CARE:

Financing Long-Term Care: A Resource Center for Families http://www1.extension.umn.edu/family/personal-finance/planning-for-health-care/long-term-care-resource-center/

Medicare: Type in Your Test, Item or Service and See If It’s Covered

http://www.medicare.gov/coverage/home-health-services.html

Genworth 2013 Cost of Care Survey: Home Care Providers, Adult Day Health Care Facilities, Assisted Living Facilities and Nursing Homes. Includes a Data Table Showing Daily Rates for Private and Semi-Private Rooms in the Ithaca Area. https://www.genworth.com/dam/Americas/US/PDFs/Consumer/corporate/New%20York_gnw.pdf

BenefitsCheckUp

www.benefitscheckup.org

HOW TO FIND HELP:

12 Resources Every Caregiver Should Know About

http://www.aarp.org/home-family/caregiving/info-08-2012/important-resources-for-caregivers.html

Caregiver Action Network (CAN)

http://caregiveraction.org

Official Social Security Website

http://www.socialsecurity.gov/

LongTermCare.gov

http://longtermcare.gov/

SeniorLiving.org

http://seniorliving.org/

Eldercare.gov

http://eldercare.gov/Eldercare.NET/Public/Index.aspx

NY Connects

http://www.nyconnects.ny.gov/nyprovider/consumer/indexNY.do

OFFICES FOR THE AGING:

Tompkins County http://tompkinscountyny.gov/cofa/

Cayuga County http://www.cayugacounty.us/LivingWorking/OfficefortheAging.aspx

Cortland County http://www.cortland-co.org/ofa/

Broome County http://www.gobroomecounty.com/senior/

Chemung County http://www.chemungcounty.com/index.asp?pageId=184

Schuyler County http://www.schuylercounty.us/Index.aspx?NID=157

Steuben County http://www.steubencony.org/Pages.asp?PGID=31

Tioga County http://www.tiogacountyny.com/agencies/department-of-aging.html

PENNSYLVANIA (select resources)

Pennsylvania Department of Aging

http://www.portal.state.pa.us/portal/server.pt?open=514&objID=616424&mode=2

PA Department of Public Welfare Long-Term Care Services

http://www.dpw.state.pa.us/foradults/healthcaremedicalassistance/longtermcareservices/

PA's Prescription Assistance Programs for Persons Age 65 and Older

http://www.portal.state.pa.us/portal/server.pt/community/pace_and_affordable_medications/17942

OPTIONS to Help PA Residents Aged 60 Years and Older Find Long-Term Care

http://www.portal.state.pa.us/portal/server.pt?open=514&objID=616552&mode=2

PDA’s Aging Waiver Program

http://www.portal.state.pa.us/portal/server.pt?open=514&objID=616549&mode=2

PA Free Transit Program for Persons 65 Years and Older

http://www.portal.state.pa.us/portal/server.pt?open=514&objID=616418&mode=2

Pennsylvania Homecare Association

http://www.pahomecare.org/index.php?pID=373

POLST: What It Is, and What It Is Not

http://reporter.phca.org/en/1311314/1/212/POLST-What-It-Is-and-What-It-Isn%27t.htm

PA State-Specific Data From the Genworth 2013 Cost of Care Survey: Home Care Providers, Adult Day Health Care Facilities, Assisted Living Facilities and Nursing Homes

https://www.genworth.com/dam/Americas/US/PDFs/Consumer/corporate/Pennsylvania_gnw.pdf

The Shared-Ride Program for Older Pennsylvanians http://www.portal.state.pa.us/portal/server.pt?open=512&objID=4984&PageID=481712&level=2&css=L2&mode=2

Get Connected to a Local Senior Center

http://www.portal.state.pa.us/portal/server.pt/community/senior_centers/17960

HELPFUL BLOGS AND ARTICLES:

The New Old Age

http://newoldage.blogs.nytimes.com/

AARP’s Caregiving

http://blog.aarp.org/category/caregiving-2/

As Our Parents Age

http://asourparentsage.net/

The Long Trip Into a Dark Season

http://newoldage.blogs.nytimes.com/2013/10/25/the-fifth-season-review/

A Novel Way to Document End-of-Life Preferences http://newoldage.blogs.nytimes.com/2013/07/25/a-novel-way-to-document-end-of-life-preferences/

Where’s That Advance Care Directive? http://newoldage.blogs.nytimes.com/2013/10/17/wheres-that-advance-care-directive/

Taking a Zen Approach to Caregiving

http://newoldage.blogs.nytimes.com/2013/01/11/taking-a-zen-approach-to-caregiving/

Hiring an End-of-Life Enforcer

http://newoldage.blogs.nytimes.com/2013/10/24/hiring-an-end-of-life-enforcer/?partner=rss&emc=rss

Family Caregiving Can Be Stressful, Rewarding and Life-Affirming http://www.npr.org/blogs/health/2013/10/16/235384054/family-caregiving-can-be-stressful-rewarding-and-life-affirming

Getting While the Getting Is Good

http://newoldage.blogs.nytimes.com/2013/09/10/getting-while-the-getting-is-good/

Advice About Assisted Living for Aging Relatives, Part 1

http://www.nytimes.com/2013/10/16/booming/advice-about-assisted-living-for-aging-relatives-part-1.html?src=recg

Advice About Assisted Living for Aging Relatives, Part 2

http://www.nytimes.com/2013/10/23/booming/advice-about-assisted-living-for-aging-relatives-part-2.html