1
Local Action Plan 2017-2020
North East, North Cumbria, Richmondshire & Hambleton
What are we going to do? / How will we do it? / Who will be involved? / Timeframe / Outcome ActivityRDP Outcome 1: Intelligence gathering, needs assessment and analysis
Gather and analyse data from the Transforming MND Care audit for (1) care centres/networks and (2) other services not funded by the Association / Support the Newcastle and Middlesbrough Care Centres to complete the audit as part of their contractual obligations
Support at least (one or two) other teams/services to complete the audit each year / RDM, RCDA, CCCs
RCDAs / By the end of 2017 and every 2 years
Annually / 1a, 1b
Gather and analyse data from other sources in relation to regional services / Use the following data sources to highlight shortfalls in services, and to inform local clinical and social care priorities:
-Improving MND Care survey
-Regional service mapping
-Other identified data sources (including those provided by NHS and Social Care e.g. HES data)
(Link to RDP Outcome 2 below: activity 2c) / LDT / Ongoing / 1c, 1d, 1e
Prioritise available data and intelligence to inform local and national campaigning, where appropriate / Work with LDT and other stakeholders (including B&Gs and volunteers) to use local data to inform local campaigning as appropriate
Specific priorities identified include:
XXX / CM, RCDAs, RDM, LDT / Ongoing / 1f, 1g, 1h
RDP Outcome 2: Driving service improvement
Create and implement improvement plans following the use of the Transforming MND Care audit / Work with Newcastle and Middlesbrough Care Centres to implement the audit improvement plans as required
Work alongside at least (one/two) other teams in the LDT area each year who have undertaken the audit, to implement their improvement plan / CCCs, RCDAs
RCDAs / By the end of 2017
Annually / 2a, 2b
Use influencing and negotiation to improve health and social care services not funded by the Association where there are identified shortfalls / Utilise LDT meetings and wider consultation to help identify shortfalls/inform local clinical and social care priorities, and work with regional staff and HSCPs to influence better provision.
Target commissioners where there appear to be fundamental shortfalls in provision.
In particular:
Patient respite and carers support
- Map the current availability of respite care for pwMND locally
- Map the current support available for carers locally
- Map/log local issues to bring back to LDT, focusing on particularly isolated and rural areas e.g. Cumbria
- Improve access to psychological support /develop a referral pathway to neuropsychological services in Newcastle (working in collaboration with existing hospice services?)
- Improve access to community respiratory services pathways in line with NICE guideline/Transforming MND Care audit tool (timely). Middlesbrough and Newcastle (including Cumbria)
RCDAs, CC, CM
RCDA, CC
RCDA, CC
RCDA, CC local hospice
RCDAs, CC / Ongoing
Ongoing
2017 and ongoing
2017 and ongoing
2017 and ongoing
2017 and ongoing / 2c
RDP Outcome 3: Protecting and extending care and support
Manage the contract and relationships with care centres and networks / Work collaboratively with Newcastle and Middlesbrough Care Centres to progress developments in clinical care services and pathways
Maintain membership of Care Centre Steering Groups and develop greater strategic focus, including attendance from CCG commissioners and NHS Trust Business Managers as appropriate. Refresh Terms of Reference.
Work collaboratively with the IBC funded post to progress developments in clinical care services and pathways (North & West Cumbria Community Outreach Practitioner post hosted by Eden Valley Hospice) / RDM, RCDAs, CCCs,
CCCs, RDM, RCDAs
NCC, EVH, RDM, RCDA / Ongoing
2017 and ongoing
Ongoing / 3a
Support and develop MDTs / Continue to support the development and delivery of community MDTs by regular attendance and assisting with assessing against the NICE guideline to highlight areas of improvement, including
-North Durham MDT (hosted by St Cuthbert’s)
-Newcastle MDT (hosted by Marie Curie hospice)
-South Durham and Darlington MDT (hosted by St Teresa’s)
-Middlesbrough MDT (alongside CC)
-Others?? / RCDAs, CCs / 2017 and ongoing / 3b
Increase the number of referrals to the Association / Ensure that all newly diagnosed pwMND are provided with adequate opportunities to engage with Association including understanding the offer of Association membership, e.g. localAssociation information, including B&G packs given out at clinic where appropriate/displayed at clinic etc.,
Secure the engagement of neurologists outside of Newcastle and Middlesbrough Care centres to ensure appropriate referrals are made
Monitor existing referral pathways, analyse where the number of pwMND known to the Association does not correlate to expected prevalence and take action where appropriate
Standardise referral pathways to volunteer Association Visitors (AVs), introducing the Association Visitor Coordinator (AVC) role where appropriate / RCDAs, CCCs, B&Gs
CCCs, RCDAs
RCDAs, CCCs
RCDAs, AV, AVCS, B&Gs / Ongoing
Ongoing
Ongoing
Ongoing / 3c
Facilitate the delivery of a programme of regional masterclasses / Promote the delivery of the 2017 regional Advanced Masterclasses for HSCPs on cognitive change in Preston on 10th May and York on 30th May. See link below
Contribute to the development of the ongoing masterclass programme, ensuring these are promoted throughout the LDT area to key HSCPs / All
LDT / Up to end of May 2017
Ongoing / 3d
Provide training and development opportunities for HSCPs according to local needs and priorities / Utilise existing meetings/structures/mechanisms to consult with HSCPs about local action plans including local training and development needs and priorities, e.g. MDTs,
Utilise Newcastle Study Day (to be held in Cumbria) on 19th May, to consult with HSCPs, via an informal MND Association stand and chat in breaks/lunchtimes
Utilise meeting with Cumbria Council to consult
Expand membership of LDT to include HSCP gaps particularly in relation to Social Care and Palliative Care (hospice) providing another route to consult about T&D needs and priorities
Support the care centres to plan and deliver a programme of education days including an annual study day for HSCPs
Address specialist MND training and development needs identified for paid carers/private care agencies (possible link here to local campaigning and to the work we have already done as an Association around competencies/JDs for paid carers?)
Continue to promote the Red Flags tool and NICE guideline as a way of increasing awareness amongst GPs and help speed up referras to neurologists / RCDAs, CCCs
CCCs (SW), RCDAs
CM (JC) & RCDA (SM)
LDT, RCDA (JJ)
RCDAs, CCCs
??
CC, RCDA / Ongoing
19th May 2017
?
2017 and ongoing
2017
??
Ongoing / 3e
Recruitment, retention and succession planning of all regionally based volunteers / Review and identify volunteer role requirements for each local Branch and Group, specific to local need
Review and identify care volunteer requirements (including Association Visitors) in this LDT area, ensuring the re-phasing of recruitment targets for 2017 are realistic and based on local need.
Develop/refresh written local volunteer recruitment plans, to include re-phasing care volunteers recruitment targets
Increase the number of active Care volunteers (including Asociation Visitors) to 40 by end of 2017 and review capacity and need beyond this date. See details below
Local need in CP’s patch (Cleveland, Richmonshire & Hambleton):
-1 x Care Volunteer in H&R,
(currently has 13 ; making the total 16)
Local need in JJ’s patch (North East):
-1 x AV in South Durham / Darlington
-1 x Care Volunteer in Durham / Darlington
-1x Care volunteer in North Durham / Tyne and Wear
(currently has 5; making the total here 8)
Local need in SM’s patch (North & West Cumbria)
-2 x AVs in N Cumbria
-1 x Care Volunteer in Barrow
-1 x AV in S Cumbria/N Lancs
-1 x AV in Blackpool
-1 x Care Volunteer in Blackpool
-1 x Care Volunteeer in East Lancs
(currently has 12 – about to lose 3 – making total here 16)
Recruit one AVC (Association Visitor Coordinator) per RCDA, according to local need, as appropriate
Continue to introduce new approaches to the recruitment of volunteers e.g. bespoke local training as appropriate, shared volunteering schemes through partnership approaches with local hospices etc.,
Continue to increase cross branch/group working and collaboration to improve sharing of best practice, support, fundraising, strategic awareness and maximise capacity/resources, e.g. Durham & Darlington Group working with Richmondshire & Hambleton
Scope a regional joint Branch Group Forum (strategic focus), alongside B&Gs
Develop and implement a recruitment plan to establish local Campaigns Contacts for all B&Gs by 2019. Aim to have 2 more campaigns contacts in each VDC area by end of 2017
Ensure local volunteer centres are up to date with the all our volunteering roles (including new ones)
Consider an article in Thumb Print– exploring what volunteering roles are available? (over 50 roles). Local marketing for this?
Encourage B&Gs to explore local volunteer recruitment
Explore potential for VDC and RCDA to attend educational days in Care Centres to promote volunteer recruitment (Preston model). Meet care centre staff to promote new care volunteering roles Discuss ?
Promote STRONG (new Association volunteering initiative) and encourage B&Gs to use this
Promote and encourage use of Volunteer Forum / VDC, Branches and Groups
RDM, RCDA, VDC
VDC
VDC, RCDAs
VDC, RCDA
VDCs, RCDAs
RCDAs, VDCs, CM, RF, B & Gs
Regional staff
CM, VDC, RCDA
VDC
VDC, B&Gs
VDC, RCDA, CC
VDC, B&Gs
VDC, RCDA, B&Gs / April 2017 and ongoing
April 2017 and ongoing
April 2017 and ongoing
By the end of 2017 and ongoing
April 2017 and ongoing
2017 and ongoing
2017 and ongoing
2017 and ongoing
2017 and
Ongoing
2017
2017 and ongoing
2017
2017 and ongoing
Ongoing / 3f
Provide support and learning and development opportunities for all regionally-based volunteers / Provide induction for all new volunteers and agree ongoing learning and development priorities for volunteers in all roles
Deliver AV/care volunteer development and training opportunities, as agreed by the Association’s Care Volunteers Steering Group/sub group. To include at least one AV/Care Volunteer Development Day per year to include an agreed core topic (2017: Whole Family approach and Safeguarding update)
Hold AV/Care volunteer support meetings for each AV team / VDC
RCDA
RCDA/AVC / Ongoing
Annually
Quarterley / 3g
Promote the Champion the Charter campaign as a means to influence local authorities and open doors for service development / Continue to promote the MND Champion the Charter campaign and achieve at least 4 more adoptions in this region to include Cumbria, Newcastle, Durham and Darlington
Following adoption, continue to work with the councils to monitor and improve services they offer for pwMND / CM, B&Gs,
CM, B&Gs, LDTs / 2017 and ongoing
2017 and ongoing / 3h
Develop and deliver local campaigns where needed / Use local data to inform priorities for local campaigning
Build and strengthen relationships between local campaigns contacts, AVs and RCDAs in order to better inform localised campaigning efforts and provide evidence / CM, RCDA, LCC, LDT
LCC, CM, RCDA, AVs (CVs), LDT / Ongoing
Ongoing / 3i
Support the delivery of national campaigns / To be advised of national campaigns and to promote these accordingly. Also to ensure coordinated with local initiatives where appropriate, e.g.
Scope the needs of pwMND, families and carers in relation to future financial security/planning, based on needs identified in local consultation questionnaire (January 2017) - and link to Association’s national campaigning work on ‘financial impact of MND on pwMND’ (DEMOS project). National piece of work to link back into the LDT
see also RDP outcome 4, activity 4b) / CM, LDT
RDM, Head of Policy, Trusts Fundraising, CM, others as appropriate, LDT / Ongoing
May 2017 and ongoing / 3j
Promote and increase numbers in the Campaigns Network / Widely promote to stakeholders in order to increase numbers in the Campaigns Network from342 to 489 by end of 2019 (for whole of North region)
Scope existing network numbers, identify gaps for CCs and develop recruitment plans
Increase volunteer campaigns contacts by two by end of 2017
Utilise national volunteering processes and initiatives to increase Campaigns networks. E.g. Campaigns Contacts/Network Members, STRONG, Microvolunteering.,
Promote Campaigning network using campaigning materials at local events / B&G events / Social Media etc. / CM, B&G
VDC, CM
VDC, CM
VDC, Regional staff, CM Volunteers
LDT / 2019 / 3k
Increase the number of B&Gs involved in campaigning / Utilise Campaigns Contacts / Campaigns Managers and regional staff to promote the validity of campaigning, forms of campaigning and reducing barriers / perceptions
Guest speakers using CC and CM at B&G events to share ideas / good practice / experiences.
Use Branch & Group Social Media / Newsletters / AGMs to share good practice / successes / CM / LCC, Regional Staff and Volunteers
LCC, CM, B&G
B&G, CM, LCC / Ongoing
Ongoing
Ongoing / 3l
RDP Outcome 4: Innovation and new work
Develop new volunteering roles / Establish and formalise the Association Visitor Cordinator Role (AVC), aiming to recruit 1 x per RCDA patch (3 in total)
Embed the new Care Volunteer roles and new bespoke modular training, dependent on local need. This includes the Support Group Facilitator, Carers Champion, MND Support Volunter (Clinic Volunter and Care Ambassador roles amalgamated)
See also RDP Outcome 3 above (activities 3f) / VDC, RCDA
RCDA, VDC, B&G / March 2018
Ongoing / 4a
Develop new care and support services / To develop a voice banking network to improve equity of access in the North East (Newcastle including N Cumbria).
To establish a new Parthership support service with Newcastle Care Centre, Marie Curie hospice and local Branches and Groups providing an integrated support service for newly diagnosed pwMND and their carers,utilising complimentary therapy support from LifeSpan
To scopea new bereavement support service to families and carers of pwMND, with St Oswald’s Hospice, North Tyneside
Scope the needs of pwMND, families and carers in relation to future financial security/planning, based on needs identified in local consultation questionnaire (January 2017) - and link to Association’s national campaigning work on ‘financial impact of MND on pwMND’ (DEMOS project). National piece of work to link back into the LDT (see also RDP outcome 3, activity 3j)
Scope a new project to work in partnership with Eden Valley Hospice (family support service), to assess and address the needs of children, young people and families bereaved by MND, using a ‘whole family approach’ (see also activity 4f)
Scope/consider use of neurological advocacy services / RCDA, Local SLTs
RCDA, CCC, B&Gs, pwMND/families/carers
RCDA, SOH, CCC, B&Gs, pwMND/families/carers
RDM, Head of Policy, Trusts Fundraising, CM, others as appropriate, LDT
RCDA, EVH, NCC, new MND community Outreach worker (IBC funded)
RCDA, VDC, NCC, Advocacy Centre North (Newcastle CVS) / Dec 2017
June 2017
Propose October 2017
May 2017 and ongoing
March 2018
?? / 4b
Engage people with MND and carers in co-producing and co-delivering our services / Develop, send out and analysis a consultation questionnaire for pwMND, to include in local action plan
Design and deliver a regional consultation/Get Connected event to feed into local action plan, with B&Gs (to include pwMND and carers)
Explore further opportunities for coproduction and codelivery as part of discrete project managed pieces of work
Deliver an outreach consultation event to North Cumbrian B&Gs to discuss local priorities and local action planning / LDT (Asociation regional staff and Care Centres)
LDT
LDT
Regional Team, B&Gs / Jan – March 2017
May 2017
Ongoing
May 2017 / 4d
Implement carers workplans / Increase number of carers grant awards
Ensure carers access support offered by local providers, B&Gs etc.,
Explore ideas and opportunities to provide and/or increase bereavement support (see above RDP outcome 4, activity 4b – st Oswalds bereavement project)
Consider development of carers support groups, e.g. in Cleveland (see RDP outcome 2, activity 2c) / B&Gs, VDC, RCDA
RCDA, CC, volunteers / Ongoing
2017 and ongoing / 4e
Implement children and young people’s workplans / Increase the number of CYP grant awards
Scope a new project to work in partnership with Eden Valley Hospice (family support service), to assess and address the needs of children, young people and families bereaved by MND, using a ‘whole family approach’ (see also RDP outcome
Scope holding a number of family days locally, in response to findingsof questionnaire with
pwMND ??? To discuss
Support the care centre(s) in jointly planning and co-delivering an event for CYP/families (see Manchester CC model). Build on beginnings of an audit to mscope numbers of CYP and young carers in both centes catchments area
Consider developing a link with National Citizenship Service (NCS) locally with a view to increasing the engagement of young people (see YH LDT)???? To discuss / B&Gs, RCDA, VDC
RCDA, EVH, NCC, new MND community Outreach worker (IBC funded)
RCDA, VDC, B&Gs
CC, LDT
RCDA, VDC, CM / Ongoing
March 2018
To be agreed
To be agreed
?? / 4f
RDP Outcome 5: Working with others
Map regional and local stakeholders and partners, analysing gaps, assessing effectiveness and prioritising involvement / Map provision of local services;
Advocacy?
Support for Carers?
Benefits & Entitlements advice?
Bereaved children/families? / RCDAs, RDM, CM / Ongoing / 5a
Form and manage relationships, partnerships and alliances and work effectively with them / From above identify where partnerships and alliances might improve our reach and/or effectiveness and develop local relationships, e.g. work with (but not exclusively)
-Local hospices
-Regional Neurological Alliances (Cumbria)
-Local bereavement services
-Local MPs, elected memebers, those driving forward policy
-Local commissioners
-Local National Citizenship Service (NCS) (see RDP outcome 4, activity 4f above) / All / Ongoing / 5b
RDP Outcome 6: Raising awareness, promotion and marketing
Promote and market our resources and services to pwMND/families/carers / Actively engage in MND Awareness month each year (June) sharing plans and promoting activities