„Der Informationsbedarf zum Thema Krebs“

1. At the beginning of the questionnaire we kindly request you to give some personal details:
Which group of person do you belong?
o / Patient, current treatment / o / Patient, after treatment
o / Relative / o / Others
Age: ______ / type of cancer :______
Gender : o male o female
2. How satisfied are you with the information on cancer you already received?
1 o
very / 2 o / 3 o / 4 o / 5 o
not at all
3. Which are the relevant factors ,when looking for information on cancer? (You can tick several points)
o / Round the clock availability / o / Comprehensive information
o / Individual information / o / Sympathy and empathy
o / Anonymity / o / Unchanging contact person
o / Possibility to inquire / o / High degree of expert know-how
o / Understandability / o / Reliability
o / Something missing (please add)______
4. Which source of information on cancer did you use until now? (You can tick several answers)
o / Relatives and friends / o / Telephonic consulting center
o / Non – medical practioner / o / Internet
o / Cancer counseling center / o / Self – help groups
o / Nurse / o / Oncologist/specialist
o / Consultation with a general practioner / o / Journals, book and booklets
o / Something missing (please add)______
5. Which theme you want to get more information to? (You can tick several answers)
o / Social law (e.g. Rehabilitation, services by health insurance, pension, care) / o / Therapy against the cancer (e.g. operation, radiotherapy, chemotherapy)
o / Diagnostic / o / Nutrition
o / Complementary medicine / o / Concomitante therapy (e.g. against the pain or other complaints)
o / After-care / o / Sport and physical activity
o / Psyche and cancer (handling a disease) / o / Palliative care (holistic treatment of progressed cancer by shortened life )
o / Others (please add) : ______
6. Do you use the Internet to get information about medical issues?
o / Yes, in general / o / Yes, sometimes / o / No
If you have answered above with “no”, why not? (You can tick several answers)
o / I have no Internet access. / o / I know nothing about that.
o / I cannot deal with the information. / o / Information in the Internet is not explained in a way that it helps me.
o / Other reasons:______
If you have answered above with “Yes”; how do you use the Internet?
o / I am looking for additional information after the medical consultation. / o / I prepare myself for the medical consultation.
o / I visit chatrooms to exchange with other concerned persons. / o / Other reasons:
______
Which qualities of information found in the internet deems important to you? (You can tick several answers)
o / Trustable source / o / Information from experts
o / Information from other concerned persons / o / Easy language without professional language
o / Illustrations for clarification / o / Actual information
o / Aftercare / o / Physical activity
Is there anything else, you deem important on the information found in the Internet.
If yes. please complete: ______
-- The following questions are only for patients:--
7. Do you use at present naturopathy, complementary and/or alternative medicine?
o Yes / o No
-- If you answered with “Yes“ continue with question 7, elsewhere with 10 .—
8. If you answered with “Yes“: do you disclosure the CAM use to professionals ?
o / My oncologist / o / My general practitioner
o / Other specialist / o / To no physician Arzt
o / I cannot remember.
9. If you use at present naturopathy, complementary and/or alternative medicine, which one do you use? (You can tick several answers)
o / Supplements (vitamine) / o / Medical herbs
o / Hyperthermia / o / acupuncture
o / Mistletoe / o / Meditation
o / A special diet / o / Homeopathy
o / Prayer / o / Yoga / Tai Chi / Qi Gong
o / Relaxation / o / Others: ______

10. Which source of information on naturopathy, complementary and/or alternative medicine did you use until now? (You can tick several answers)

o / Relatives and friends / o / Telephone hotline for cancer information
o / Non – medical practitioner / o / Internet
o / Direct information from a cancer counseling unit / o / Internet platform
o / Conversation with a physician/ nurse / o / Self - help groups
o / Journals, books or booklets
o / Something missing (please add)______

-- The following questions depend on your perception of your disease. You would help us in exploration of the information needs of cancer patients, if you also answer this questions. : --

12. In your opinion, what causes the cancer? (You can tick several answers)

o / Lifestyle (unhealthy nutrition, little sportive activity) / o / My own personality
o / Toxins in the environment / o / Weakness of the immune system
o / Severe mental shock / o / Stress
o / Genetic predisposition / o / Smoking, alcohol
o / I do not know. / o / Something else: ______

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