ISSN1837-3801(Print)ISSN1837-381X(Online)

ANNUALREPORT2016–17

©CommonwealthofAustralia2017

ISSN1837-3801(Print)ISSN1837-381X(Online)

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OrganandTissueAuthority

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Alternativeformat

ThisAnnualReportisavailableelectronicallyontheOrganandTissueAuthority’swebsiteat

Acknowledgments

Editing McLeodMarketingManagement

DesignStuartPettigrewDesign

PrintingBambraPress

Transplantationisawell-establishedandeffectivetreatmentthatcansavelives,restorehealth,improvequalityoflife,andoffersignificantcostbenefitsto

thehealthsystemwhencomparedwiththeongoingcostoftreatment forpeoplerequiringtransplants.

TheavailabilityoftransplantationasatreatmentformembersoftheAustraliancommunityiswhollydependentonthepreparednessofindividuals andtheirfamiliestoconsenttodonation.Itispossibleforasinglepersontoimprovethelivesofmorethan

10peoplethroughorganandtissuedonation.

Organdonationisarareevent:onlyaround1–2%ofpeoplewhodieinhospitalsdieinthespecificcircumstancesrequiredtobeapotentialorgandonor.

THANKYOU

WethankandacknowledgethegenerousAustraliansandtheirfamilieswhosaveandtransformthelivesoftransplantrecipientsthroughorganandtissue

donation.ThisactofgenerositybydonorfamilieshasaprofoundimpactontheAustralianswhoreceiveatransplant,aswellastheirfamiliesandfriends.

STRUCTUREOFTHEREPORT

OVERVIEW

01

P.1–10

PERFORMANCEREPORTING

02

P.11–34

COLLABORATINGWITHOURKEYSTAKEHOLDERS

P.35–50

PROGRESSAGAINSTOUR

2016–2020STRATEGICPLAN

P.51–56

MANAGEMENTANDACCOUNTABILITY

05

P.57–68

FINANCIALSTATEMENTS

P.69–116

APPENDICES

07

P.117–131

iiAnnualReport2016–17

This reportispreparedinaccordancewiththeResourceManagementGuide

No.135AnnualReportsfornon-corporateCommonwealthentities,publishedbytheDepartmentofFinance.This publicationprovidesguidanceonannualreportrequirementsunderthePublic Governance,Performanceand AccountabilityAct

2013(thePGPAAct)andassociatedrules.

This annualreportprovidesdetailsoftheoperationsandperformanceoftheAustralianOrganandTissueDonationandTransplantationAuthority(also knownastheOrganandTissueAuthorityorOTA)in2016–17.ItisakeyaccountabilitydocumenttoourMinisterandakeysourceofinformationtoourstakeholdersandthegeneralpublic.

PART1–OVERVIEW

Thissectionprovidesasummaryofouractivitiesandachievements,reportedintheChiefExecutiveOfficer’sreviewandtheNationalMedicalDirector’sreport.Italsoreportsonourorganisationalstructureandcommitteearrangements.

PART2–PERFORMANCEREPORTING

Thissectionoutlinesouroutcomesandprogramframework.ItincludesourAnnualPerformanceStatementwhichreportsonourperformancemeasuresasdetailedinthe2016–17HealthPortfolioBudgetStatements.ItalsoincludesfinancialreportingonBudgetestimatesandactualexpensesfor2016–17,trendinformationaboutorganandtissuedonationandtransplantation,

andahighlightreportonthecontributionoflivingdonationtoouroutcomes.

PART3–COLLABORATINGWITHOURKEYSTAKEHOLDERS

ThissectionhighlightsthecontributionoftheDonateLifeNetworkineachstateandterritorytothenationalreformprogramin2016–17.ItalsohighlightstheworkundertakentoengageandcollaboratewithourcommunitystakeholderstoincreaseconsentratesbyencouragingAustralianstoregistertheirdonationdecisionontheAustralian

OrganDonorRegisterandsharetheirdecisionwith

theirlovedones.

PART4–PROGRESSAGAINSTOUR2016–2020

STRATEGICPLAN

Thissectionprovidesasummaryofprogressmadein2016–17againstthe2016–2020StrategicPlanobjectivesandstrategies.

PART5–MANAGEMENTANDACCOUNTABILITY

Thissectionsummarisesourcorporategovernancestructure,peoplemanagement,workplacehealthandsafety,resourcemanagementandlegislativereportingrequirements.

PART6–FINANCIALSTATEMENTS

Thissectionpresentsthefinancialstatementsforthe

OTAin2016–17.

PART7–APPENDICES

Theappendicesincludealistofkeystakeholders,alistofabbreviations,aglossaryoftermsused

inthereport,alistoftablesandfigures,alistofrequirementsforannualreports,andanalphabeticalindex.

AustralianOrganandTissueDonationandTransplantationAuthority

iii

LETTEROFTRANSMITTAL

HonKenWyattAM,MPMinisterforAgedCare

MinisterforIndigenousHealth

ParliamentHouse

CANBERRAACT2600

DearMinister

AstheChairoftheBoardoftheAustralianOrganandTissueDonationandTransplantationAuthority(theOTA),IamverypleasedtoprovideyouwiththeAnnualReportfortheperiod1July2016to30June2017.ThisreportdescribesourperformanceandfunctionsasrequiredunderSection46ofthePublicGovernance,PerformanceandAccountabilityRule2014.

Thereport,foryourpresentationtoParliament,fulfilstherequirementsoutlinedintheResourceManagementGuideNo.135Annualreportsfornon-corporateCommonwealthentities(May2017)publishedbytheDepartmentofFinance.

Thereportalsocontainsinformationrequiredbyotherapplicablelegislation,includingthePublicGovernance,PerformanceandAccountabilityAct2013,theEnvironmentProtectionandBiodiversityConservationAct1999,theFreedomofInformationAct1982,andtheWorkHealthandSafetyAct2011.

TheOTAhaspreparedfraudriskassessmentsandfraudcontrolplans;hasinplaceappropriatefraudprevention,detection,investigationandreportingmechanismsthatmeetthespecificneedsoftheOTA;andhastakenallreasonablemeasurestoappropriatelydealwithfraud.ThesefraudcontrolarrangementscomplywithSection10ofthePublicGovernance,PerformanceandAccountabilityRule2014.

Yourssincerely

DrMalWasher

Chair

OrganandTissueAuthorityBoard

18September2017

iv AnnualReport2016–17

CONTENTS

Structure ofthereportii

Letteroftransmittaliv

01 OVERVIEW1

ChiefExecutiveOfficer’sreview2

NationalMedicalDirector’sreport5

OrganandTissueAuthority7

02 PERFORMANCEREPORTING11

Ourprogram12

EntityResourceStatement2016–1713

ExpensesforOutcome 114

Financialperformance–departmental15

Financialperformance–administered16

AnnualPerformance Statement2016–1718

Trendinformation21

Livingorgandonation33

03 COLLABORATINGWITHOURKEYSTAKEHOLDERS35

DonateLifeNetwork37

NewSouthWales40

Victoria41

Queensland42

SouthAustralia43

WesternAustralia44

Tasmania45

NorthernTerritory46

AustralianCapitalTerritory47

Communitystakeholders48

AustralianOrganandTissueDonationandTransplantationAuthorityv

04 PROGRESSAGAINSTOUR2016–2020STRATEGICPLAN51

Objective1:Increasethenumberofpotentialorganandtissuedonors52

Objective2:ImproveorganandtissuedonorConversionrates54

Objective3:Enhancesystemstosupportorganandtissuedonationandtransplantation56

05 MANAGEMENTANDACCOUNTABILITY57

Corporategovernance58

Peoplemanagement62

Workplacehealthandsafety65

Resourcemanagement66

06 FINANCIALSTATEMENTS69

07 APPENDICES117

Appendix 1:Keystakeholders118

Appendix 2:Abbreviations120

Appendix 3:Glossary121

Appendix 4:Listoffiguresandtables123

Appendix 5:Listofrequirements124

Appendix 6:Alphabeticalindex129

01OVERVIEW

AustralianOrganandTissueDonationandTransplantationAuthority1

CHIEFEXECUTIVEOFFICER’SREVIEW

Recorddonationandtransplantationoutcomesin2016weretheresultofdonorfamilies’generosityandstrengthenedcollaborationbetweentheOrganandTissueAuthority(OTA),ourDonateLifedonationandtransplantationsectors,eye andtissuebanks,andourcommunitystakeholders.

1,447

503

20.8

dpmp

9,000+

LIVESWERETRANSFORMEDTHROUGHORGANDONATION

DECEASEDORGANDONORS

AUSTRALIA’SNATIONALDECEASEDDONATIONRATE

AUSTRALIANSBENEFITEDFROMEYEANDTISSUEDONATION

In2016,1,447livesweretransformedthrough

thegenerosityof503deceasedorgandonorsandtheirfamilies.Thisrepresentsmorethandoublethenumberofdeceaseddonorssincethenationalreformprogramstartedin2009.Therewereafurther267livingorgandonors,44ofwhomcamethroughtheAustralianPairedKidneyExchangeprogram.Inadditionover9,000Australiansbenefitedfromeyeandtissuedonation.The2016resultsshowthatwearedeliveringsustainedand

substantialgrowthindonationandtransplantation.

InMarch2017MsFelicityMcNeillPSMconcludedherappointmentasChiefExecutiveOfficer(acting)oftheOTA.IwouldliketorecogniseFelcity’scontributionandleadershipduringhertimeat

theOTA.

Australia’snationaldeceaseddonationratein2016 was20.8 donorspermillionpopulation(dpmp),exceedingthe2016nationaltargetof20.5 dpmpagreedbyallAustralianGovernmentHealthMinisters.

TheseresultshavebeenachievedthankstothegenerosityofthoseAustralianswhomadethedecisionfortheirlovedonetobecomeanorganortissuedonor,andthosewhomadethedecisiontobecomealivingorgandonor.

Theresultsareatributetotheeffortsofawiderangeofindividualsandorganisations,fromcommunitygroupsandreligiousandculturalleaderstothe

healthcareprofessionalsinvolvedinthedonation

andtransplantationsectors.

MsAnnSmith|ChiefExecutiveOfficer(Acting)

COMMUNITY AWARENESSANDSTAKEHOLDERENGAGEMENT

Engagementandcollaborationwithourcommunitypartnerswasakeypriorityduring2016–17.

Registrationandknowledgeofdonationdecisionshasaprofoundinfluenceonincreasingconsent

ratesinAustraliaandprovidingadegreeofcertaintyandcomfortforfamilies.In2016–17weworkedwithourcommunitypartnerstoeducatetheAustraliancommunityabouttheneedforfamilydiscussionandregistrationoforganandtissuedonationdecisions.

ThehighlightwasDonateLifeWeek2016withathemeof‘Whatareyouwaitingfor?JointheAustralianOrganDonorRegisteronlinetodayto

savelives–donatelife.gov.au.’ Over130communityeventstookplacearoundAustraliathroughouttheweek,supportedbyasocialmediacampaigntobroadentheimpact.EncouragingAustralianstoregistertheirdonationdecisionwasalsoafocus

ofourothercommunityawarenessandeducationactivitiesthatwereongoingthroughouttheyear.

InMarch2017theOTAarrangedaCommunityConsultativeForumtoexploretheissueofdonorfamiliesandtransplantrecipientshavingtheoptiontoconnectwhentheywishtodoso.Theforumprovidedanopportunityforopendiscussionofdifferentstakeholderexperiencesandperspectivesaroundthisissue.Therewasstrongcommunity

engagementandtheoutcomesarehelpingtoinformpolicyandpracticesforthefuture.

Aone-daynationalDonateLifeForumwasheldinMay2017.TheforumwasattendedbyDonateLifeNetworkstaff,OTAstaff,andeyeandtissuesectorpersonnel,aswellastransplantationsectorandcommunityrepresentatives.Theforumthemewas

‘Wheretofromhere?’andtheformatcomprisedacombinationofinvitedspeakersandabstractsessions.DrDaleGardiner,UnitedKingdomDeputyNationalClinicalLeadforOrganDonationforNationalHealthServiceBloodandTransplant,wasthekeynotespeakerandsharedmanyofthelearningsandachievementsthathaveoccurredintheUKfollowingasimilarnationalreformprocess.AttendeesleftenthusedandmotivatedtofurthertheirworkinimprovingallaspectsofdonationpracticeinAustralia.

OUTLOOKFOR2017–18

On16April2017theMinisterforAgedCareandMinisterforIndigenousHealth,KenWyattAM,MP,releasedtheFederalGovernment’sresponsetoanindependentreviewbyErnstYoungofthe

progressofthenationalreformprogramtoincreaseAustralia’srateoforganandtissuedonation.TheGovernmentacceptedalloftherecommendationsoftheErnstYoungreview.

Therecommendationsstronglysupportedthe2015

BudgetMeasure,AcceleratingGrowthinOrganandTissueDonationforTransplantation,whichincludedfundingfortheAustralianorganmatchingsystem,OrganMatch.InpartnershipwiththeAustralianRedCrossBloodService,workhasprogressedonthedevelopmentofOrganMatch,andimplementationofthesystemisscheduledfor2018.ThisnewsystemwillreplacethecurrentNationalOrganMatchingSystemandwillfacilitateoptimalmatchingofdonororganstotransplantrecipientstofurthermaximiseequityofaccessandenhancedclinicaloutcomesfortransplantsinAustralia.

ThekeyrecommendationsoftheErnstYoungreviewsupportedachangetothegovernancearrangementsfortheOTA.TheAustralianOrganandTissueDonationandTransplantationAuthorityAmendment(NewGovernanceArrangements)Act

2016(theAmendmentAct)receivedRoyalAssenton30November2016.TheAmendmentAct,tocomeintoeffectfrom1July2017,establishesaBoardtogoverntheOTAandtransferstotheBoardthekeypolicyandstrategicfunctionscurrentlyvestedintheCEO.AnewCEOwillalsobeappointedfortheOTA.

MyfocusasActingCEOhasbeentoensurethattheOTAiswellplacedtoengagethenewgovernancearrangementstosupportanddriveourconnectionwiththecommunityandthesectortoincrease

organandtissuedonationandtransplantation.TheOTAwillbethefirstnon-corporateCommonwealthentityunderthePublicGovernance,PerformanceandAccountabilityAct2013tohavethismodel

ofgovernance.TheCommonwealthDepartmentofHealthisresponsibleforestablishingtheOTABoardandwehavebeenworkingcloselywiththeDepartmenttoensureasuccessfultransitiontothisnewgovernancestructure.

OrganandTissueAuthoritystaffduringDonateLifeWeek

IamconfidentthattheOTAiswellpositioned

totransitiontothesenewarrangementsandwelookforwardtotheBoard’sstrategicdirectionandleadershipensuringcontinuedgrowthinAustralia’sdonationandtransplantationoutcomes.

FINANCIALPERFORMANCE

Wehaveastrongfocusonbudgetmanagementandensuringthatresourcesareappropriatelyallocatedtooptimiseourperformance.Theyearendedwithadepartmental$0.154millionoperatingsurplusnetofunfundeddepreciationandbeforetheassetrevaluationdeficit/surplus,comparedto

a$0.021millionoperatingsurplusin2015–16.

Administeredexpenditurefor2016–17was

$43.765milliontowardsthedeliveryofthenationalreformprogram.

THANKYOU

Optimisingpotentialdonationopportunitiesrequiresclosecollaborationandcooperationwithmanystakeholders.

Ifeelveryprivilegedtohavebeenprovidedtheopportunitytoworkinthissector.Iwouldliketoacknowledgethededicatedandprofessionalclinicalandtechnicalstaff,theDonateLifeNetworkand

theOTAstaffwhocontinuetoembracechangeandprogressthisprogramtoprovidelife-savingand

life-changingorganandtissuetransplantsforthoseinneed.

Finally,andmostimportantly,Iacknowledgethosewhobecameanorganand/ortissuedonorduringtheyear,alongwiththeirfamilies,withoutwhomtransplantationanditslife-changingbenefitswouldnotbepossible.

IamverypleasedtopresenttoyoutheOTA’s

2016–17AnnualReport.

MsAnnSmith

ChiefExecutiveOfficer(acting)

30June2017

NATIONALMEDICALDIRECTOR’SREPORT

Iwouldliketoacknowledgethe

commitmentanddedicationofthecliniciansinthedonationandtransplantsectorwhocontinuallyenhancetheirskills toensure

theprovisionofqualityorganandtissue

donationandtransplantationservices.

Therecordoutcomesin2016couldnothavebeenachievedwithouttheoverwhelminggenerosityofdonorsandtheirfamilieswhoagreedtotheirlovedonebecomingadonor.Thatsaid,Iwouldliketofocusmyreportthisyearonthelearningundertakenbyclinicianstoensurethattheycanbettersupportdonorfamiliesandoptimiseopportunitiesfororganandtissuedonation.

HIGHLIGHTS

Clinicalhighlightsfor2016–17includedcontinuationoftheDonateLifeCollaborativeandtheongoingdeliveryofeducationtohealthprofessionals

whosupportfamiliesinconversationsabouttheopportunityfororganandtissuedonation.HighlightsalsoincludedthedevelopmentoftheBestPracticeGuidelineforOfferingOrganandTissueDonation

inAustralia(theBestPracticeGuideline),andthe

2017DonationandTransplantationWorkshop.

CLINICALPRACTICEIMPROVEMENTPROGRAMPHASE2ANDTHEDONATELIFECOLLABORATIVE

During2016–17theOTAandtheDonateLifeNetworkcontinuedtoimplementtheClinicalPracticeImprovementProgramPhase2,includingtheDonateLifeCollaborative(DLC)in26Australianhospitalswiththegreatestcapacitytoincrease

donationoutcomes.TheaimoftheDLCwastosharelearningsandensuretheadoptionofbestpracticebetweenhospitalswithaviewtobroadeningthedonorpoolandincreasingconsentrates.

DonateLifeNetworkstafffromtheDLChospitalsattendedaseriesofworkshopsonimplementationoftheBestPracticeGuideline.

HelenOpdam|NationalMedicalDirector

Inaddition,DLChospitalteamsvisitedtheirpairedhospital/stosharelearningsandideas,informbestpractice,andcontinuetosupportgrowthindonationoutcomes.

FAMILYDONATIONCONVERSATIONTRAINEDSPECIALISTS

Theopportunityfororganandtissuedonationcomesatanintenselyemotionaltimeforfamiliesandcanbechallengingforallinvolved.Specificknowledgeandskillsarerequiredtooptimallysupportfamiliesandtheirdecision-makingatthistime.Itiscriticalthatinformationisprovidedinaclearandsensitivemannerthatisappropriatetotheneedsofindividuals.

ThetitleofFamilyDonationConversation

TrainedSpecialist(FDCTS)isusedtodescribeaclinicianwhohasundergonespecifictrainingandeducationtobestsupportandinformfamiliesinend-of-lifedecision-makingrelatedtoorganandtissuedonation.TrainingforthisroleisprovidedthroughthecoreFamilyDonationConversation(cFDC)workshop.

ThecFDCworkshopisspecificallytargetedtoseniorhealthprofessionalswhohaveakeyroleincommunicatingwithpotentialdonorfamiliesabouttheopportunityfordonation.

Theworkshopprovidesclinicianswithadvancedcommunicationskillstosupportgrievingfamilieswhenofferingdonation.Italsohelpstoensurefamiliesreceivesupportandsufficientinformationtoassisttheminmakingaproactiveandenduringdonationdecisionthatistherightonefortheirlovedoneandtheirfamily.Thiscouldbeeitherto

consentordeclinedonationbut,mostimportantly,itrepresentsadecisiontheywouldhavemadeonanordinaryday,withfullknowledgeoftheimpactandmeaningofdonationfortransplantation.

BESTPRACTICEGUIDELINE FOROFFERINGORGANANDTISSUEDONATIONINAUSTRALIA

TheBestPracticeGuidelinehasbeendevelopedtopromoteoptimalcareandcommunicationwithfamilieswhenorgandonationisapossibility.Itisinformedbypublishedresearchandinternationalbestpractice,andtheAustralianexperienceinthedeliveryandevaluationoftheFDCtraining.

Oneoftheunderlyingprinciplesofthisguidelineisthattheopportunityfordonationisdiscussedwithfamiliesofpotentialdonorsbystaffwhoareskilledcommunicators,areknowledgeableaboutdonation,andwhohavereceivedspecifictraininginthisarea.Inpractice,thismeansthatanFDCTSshouldbeinvolvedearlyintheplanningandshouldideallyactivelyparticipate(alongwiththetreatingteam)

inallfamilycommunicationsaboutdonation–inparticular,whendonationisfirstraisedwiththefamily.TheFDCTSsupportsfamiliesduringtheirtimeoflossandgrief,andsupportsthemtoreachadonationdecisionthatisrightforthepatientand

family–onethatthefamilywillbecomfortablewithforyearstocome.

Ourfocuswillnowshifttoembeddingthenationalimplementationoftheguidelineintoclinicalpractice.ManyelementsoftheguidelinehavealreadybeenadoptedsincecommencementoftheFDCtraining

in2012.FurtherworkisbeingundertakentoensurethatstaffwhoareinvolvedinFDCshaveattended

thecoreFDCworkshopandtomeasureandprovidefeedbackontheuptakeofotherkeyelementsoftheguideline.

2017 DONATIONANDTRANSPLANTATIONWORKSHOP

Theinter-sectorlearningandcollaborationevident

atthe2017CombinedDonationandTransplantationWorkshopwasinspiringtosee.Theworkshopwasheldon10MayattheBrisbaneConventionandExhibitionCentreandwasco-hostedbytheOTAandtheTransplantationSocietyofAustraliaandNewZealand.

Thethemeoftheworkshop,‘Donor-relatedinfectiontransmissionandrisk’,aimedtoadvanceourunderstandingofhowwecanensurethebestuseofallavailabledonororgans.Thisincludedthosethathaveahigher-than-usualriskofinfectiousdiseasetransmission,especiallyofblood-borneviruses(HIVandhepatitisBandC).NewcurativetreatmentsforhepatitisC,andteststhatvastlyreducetheresidualriskofinfectiontransmission,makethisareaone

forevolvingpracticeandwherethereispotentialtoincreaseopportunitiesforlife-savingdonationandtransplantation.

WewereveryfortunatetohaveMichaelIson,AssociateProfessorofInfectiousDiseasesand

OrganTransplantationattheNorthwesternUniversityintheUnitedStates,asakeynotespeakertosharehisexpertiseandknowledgeofUSpracticeinthisspace.

Ithankourdonationspecialistsfortheirstrongandongoingprofessionalcommitmenttoimproving

allaspectsofthedonationprocessasweallworktogethertosaveandimprovethelivesofmoreAustraliansthroughoptimisingeverypotentialorganandtissuedonationopportunity.

HelenOpdam

NationalMedicalDirector

30June2017

ORGANANDTISSUEAUTHORITY

On2July2008theAustralianGovernmentannouncedanationalreformprogramtoimplementaworld’sbestpracticeapproachtoorganandtissuedonationfortransplantation.Thiswasendorsed

bytheCouncilofAustralianGovernmentson

3July2008.

TheOTAwasestablishedin2009tomanagetheimplementationofthenationalreformprogram.WeworkwiththeDonateLifeNetwork,stateandterritorygovernments,thebroaddonationandtransplantationclinicalsectors,eyeandtissuebanks,andcommunityorganisationstoimproveaccesstolife-transformingtransplantsforallAustralians.AlistofkeystakeholderswithwhomweworkisprovidedatAppendix1.

TheOTA:

» isanindependentmicroagencywithintheAustralianGovernmentHealthportfolio,locatedinCanberra

» wasestablishedbytheAustralianOrganandTissueDonationandTransplantationAuthorityAct2008,whichsetsouttheOTA’sprimaryresponsibilitiesandthefunctionsoftheCEO

» isanon-corporateCommonwealthentityunderthePublicGovernance,PerformanceandAccountabilityAct2013.

27.46

FULL-TIME EQUIVALENTSTAFFBUSINESSUNITS

In2016–17ourSeniorExecutiveteamcomprised:

» MsFelicityMcNeillPSM(ActingChiefExecutive

Officerfrom14February2016toMarch2017)

» MsAnnSmith(ActingChiefExecutiveOfficerfromMarch2017)

» DrHelenOpdam(NationalMedicalDirector)

» MsJudyHarrison(ChiefFinancialOfficer).

At30June2017theOTAemployed27.4full-timeequivalentstaffacrosssixbusinessunits.Ourskilled,expertanddedicatedpeoplewereintegraltoimplementingthenationalreformprogramandachievingouroutcomesandstrategicprioritiesin

2016–17.Ourorganisationalstructurefor2016–17isshowninFigure1.

FIGURE 1:OTAorganisationalstructure

MSANNSMITH | ChiefExecutiveOfficer(Acting)

DRHELENOPDAM |MedicalDirectorMSJUDYHARRISON | ChiefFinancialOfficer

ANALYTICSANDTECHNOLOGY

CLINICALPROGRAMS

LIAISONAND

REPORTINGPROJECTS

SOCIALMARKETINGANDCOMMUNICATIONS

CORPORATESUPPORTANDCOMPLIANCE

TheOTAhasacommitteestructurethatgives

keystakeholderstheopportunitytoparticipateinthedecision-makingprocessesthatsupporttheimplementationofthenationalreformprogram.

Thecommitteestructurecomprises:

» committeesfocusingonprogramgovernanceandadvice,comprisingthe:

— Australian OrganandTissueDonationandTransplantationAdvisoryCouncil(from1July2016to31December2016)

—Jurisdictional AdvisoryGroup

» committeesestablishedbytheCEOtoprovidesector-specificadvice,comprisingthe:

— ClinicalGovernance Committee

— Transplant LiaisonReferenceGroup

» purpose-specificworkinggroups.

ADVISORYCOUNCIL

TheAustralianOrganandTissueDonationandTransplantationAdvisoryCouncil(theAdvisoryCouncil)wasestablishedundertheAustralianOrganandTissueDonationandTransplantationAuthorityAct2008(theAct)toadvisetheCEOonorgan

andtissuedonationandtransplantationmatters.TheAdvisoryCouncil’stermendedinDecember

2016.ThelegislationthatwaspassedinNovember

2016establishedanewgovernancemodelfortheOTAfrom1July2017andendedthetermoftheAdvisoryCouncil.

DuringtheperiodoftheAdvisoryCouncil’stenure,itsmembersskilfullycounselledtheOTA’sCEO

onarangeofdiverseandsensitiveissues.WeacknowledgethecontributionofthemembersandthankthemforsupportingtheOTAinraisingpublicawarenessoforganandtissuedonationandimplementingbestpracticeorganandtissue

donationandtransplantationprocessesthroughout

Australia.

JURISDICTIONALADVISORYGROUP

ThepeakgovernancecommitteefortheDonateLifeNetwork(DLN)in2016–17wastheJurisdictionalAdvisoryGroup(JAG).ItcomprisesStateMedicalDirectorsandjurisdictionalhealthdepartmentrepresentatives.

Thisgroup,chairedbytheOTA’sCEO,consideredandmaderecommendationsaboutallaspectsof

thenationalreformprogram.Thisincludesstrategicpriorities,clinicalanddatagovernance,andprogramplanningfortheDLN.

Abriefreportonoutcomeswaspublishedonthe

DonateLifewebsiteaftereachJAGmeeting.

From1July2017theJAGwillprovideadviceandrecommendationstotheOTABoardforconsideration.

CLINICAL GOVERNANCECOMMITTEE

TheClinicalGovernanceCommitteeisthepeakclinicalcommitteefortheDLN.ItischairedbytheNationalMedicalDirectorandcomprisestheCEO,StateMedicalDirectors,andclinicalmanagers

fromeachstateandterritory.Thecommitteemakesrecommendationsrelatingtotheclinicalaspectsofthenationalreformprogramforconsiderationby

theJAG.

TRANSPLANTLIAISONREFERENCEGROUP

TheTransplantLiaisonReferenceGroupprovidesadvicetotheCEOandfacilitatesengagementwiththetransplantsectoronmattersrelevanttothe

nationalreformprogram.MembershipcomprisestheCEO,theNationalMedicalDirector,arepresentativeofconsumerandcommunitygroups,andrepresentativesfromthe:

» AustralasianTransplantCoordinatorsAssociation

» AustralianandNewZealandIntensiveCare

Society

» AustraliaandNewZealandOrganDonation

Registry

» DonateLifeNetwork

» TransplantAustralia

» TransplantNursesAssociation

» TransplantationSocietyofAustraliaandNew

Zealand.

PURPOSE-SPECIFIC WORKINGGROUPS

Wehaveanumberofpurpose-specificworkinggroups,establishedbytheCEO.In2016–17thefollowingpurpose-specificgroupswereactive:

» CommunicationsReferenceGroup

» DataandAuditWorkingGroup

» DonationafterCirculatoryDeathWorkingGroup

» FamilySupportAdvisoryGroup(previouslyknownasDonorFamilySupportImplementationGroup)

» EducationCoordinatorsNetwork

» ElectronicDonorRecordWorkingGroup

» EyeElectronicDonorRecordUserGroup

» EyeandTissueAdvisoryCommittee

» FamilyConversationsSteeringGroup

» ReferralsWorkingGroup

» VigilanceandSurveillanceWorkingGroup.

DrDaleGardineranswersquestionsfromtheaudienceatthe2017DonateLifeForum

AsupporterofDonateLifeWeek