Therapeutics and Palliative Care Directorate
Patient Panel
Introduction
The Therapeutic and Palliative Care Patient Panel (formerly known as Professional Services) is part of the Directorate of Therapeutics and Palliative Care in Sheffield NHS Teaching Hospitals Foundation Trust. The Panel was set up in May 2014 to ensure the patients voice is at the heart of our research. The Panel is made up of patients, carers and members of the public who have an interest in diagnostic and therapeutic research and many have had experience our services. We have members who attend meetings, and those who contribute remotely as Associate members.
This information sheet is designed to let you get to know a little bit about the people who are on the Patient Panel in the form of short pen portraits.
Jim Gordon - Chair of the Panel, and Academic Board member
Jim chairs the Therapeutics and Palliative Care Patient Panel and is a patient and public member on the Combined Community and Acute Care Group Academic Board. As a Principal Psychologist in the Department of Employment he carried out and commissioned research and evaluation reports for executive Boards, following a period of working with individuals providing assessment, guidance and employment rehabilitation. He is therefore familiar with the context of the contribution of professional groups in large organisations.
Latterly he moved across to Senior Civil Service posts including the management of staff, programs and budgets. He feels the experience he gained there in consulting the users of services, establishing developmental priorities and securing funding will help him play his part in making the Therapeutic and Palliative Care Panel a successful initiative for patients and Trust staff.
Sue Franklin – Academic Board Member and Panel member
Sue started her career as a dental nurse at Charles Clifford Dental Hospital and after obtaining a teaching qualification became nurse tutor. In 1990 she took up a secondment at Sheffield Health Authority Training and Development department. During that time she studied for a MSc in Human Resource Development at Nottingham Trent University Business School. Until recently Sue was employed by Sheffield Hallam University as a principal lecturer inthat role she was academic lead for undergraduate programs in Health and Social Care Management and Leadership. In addition she also was involved in postgraduate programs leading modules, one-to-one supervision for Masters dissertations. She was responsible for the quality of the academic provision and attended exam boards regularly and was chair of exam boards for collaborative provision with other health care providers. Another part of her role was to provide consultancy for Health and Social Care organisations. This entailed identifying particular problems within teams and to design and deliver bespoke programs or interventions. Following a spinal injury two years ago Sue retired from her academic role and is using her knowledge and experience as a service user to contribute to developments within healthcare as a patient representative.
Alan Scotson – Panel member
My name is Alan Scotson. I am 66 years of age and although retired I still work part time as a consultant Metallurgist. My work background has always been of a Technical, Research, and Production nature within the Steel and Iron Founding Industries. In 2009, I underwent radiotherapy, which did not have the desired effect on removing my Cancer of the vocal chords. In 2010 I required a full laryngectomy to remove the cancer. I am now a self-taught oesophageal speaker. In return for the excellent clinical services and surgery I received as a patient, I want be to an active Patient and Public representative. Also I want to be an active supporter and monitor of the excellent research undertaken in the Sheffield Teaching Hospitals.
Andrea Shore – Panel member
My name is Andrea shore and I am a retired Teacher. I am married, with three grown up children, and a hyperactive collie dog. I was invited to join the Therapeutics and Palliative Care Patient Panel by the Speech and Language department, having accessed their services during treatment for a squamous cell carcinoma in 2011. I also took part in a clinical trial involving the use of PET scanning for the treatment of head and neck cancer. In the past I have worked on several projects with Dr. James Mackay, a Clinical Genetic Oncologist and was a patient representative for seven years on the Interface Group in Oncoplastic Breast surgery. The NHS has been quite remarkable in what it has done for me over many years, and so I welcome any opportunity that enables me to give something back.
Helena Davis – Panel member
Helena has a complex rheumatology problem which has attacked her nerves, muscles and other organs. She has also had cancer. Mobility, pain and stamina are particularly significant problems. Her health problems mean that she has had a lot of hospital admissions and had input from OT, physiotherapy, speech and language therapy, psychology and others! Unfortunately her health problems have also meant that she has had to take early retirement from her job as a consultant paediatrician at the Children’s Hospital. She was heavily involved in clinical research when she was working. Her background means that she has both a patient perspective and experience as a professional in the NHS and she is pleased to be able to use her experience by being part of the patient panel.
Anne Holroyd – Panel member
Prior to taking early retirement in 2009, I spent all my professional life (30+ years) working in the NHS and the Department of Health in a wide range of roles and organisations. Unfortunately, my plans for retirement came to an abrupt halt in November 2012 when my husband had a major stroke. I am now his carer. We have experience of physiotherapy, speech & language therapy, occupational therapy, and psychology services in a variety of settings. We have participated in several research studies and are always keen to take part in any projects that might help to improve our situation.
Jasvinder Khosa – Panel member
I had a brain haemorrhage in 1992 when I was 31. I was a Deputy Head Teacher in Bradford but following my stroke and 3 brain operations and I was forced to retire. I have aphasia and lots of experiences as a patient and out-patient in different regions. I am committed to (by volunteering, speaking and writing about) people with aphasia and stroke. I am involved in various projects at Connect (the communication disability network) where I have been actively involved as a member of board of trustees for 5 years. I have also been an advisor on the Stroke Policy by the Department of Health, which was published in 2008.
Mary Dalgleish – Panel member
I worked as an occupational psychologist for many years, initially carrying out research and evaluation related to health, social care and disability. For 10 years I was Chief Psychologist for the Department for Work and Pensions, which included management of a national employment assessment service for disabled people. I left in 2004 when, following a severe illness and nearly a year in hospital, my husband came home requiring 24 hour care and support from a range of therapists: physio, speech and language, occupational. Among other Patient and Public involvement roles, I worked for NIHR’s Stroke Research Network, providing a carer perspective on local and national research studies. As a patient, I have received a number of physiotherapy interventions.
Steven Storey – Panel member
Simon Cork – Panel member
Simon worked as an engraver in the Sheffield cutlery and pewter trade for 25 years, before retiring early to undertake mature study at Sheffield University. He is an ex- carer, his wife passed away from cancer seven years ago. He initially joined the North Trent Cancer Research Network before spending three years working with Clare Gardiner as a PPI representative on the study 'Transitions to Palliative Care for Older People'. This then became the Palliative Care Studies Advisory Group. In 2016 he joined the Therapeutics and Palliative Care Patient Panel.
Anna Roman – Combined Community and Acute Care Group Patient Research Ambassador and Panel Member
My name is Anna and I have recently been appointed as Patient Research Ambassador for the Combined Community and Acute Care Group. I am also a member of the Therapeutics and Palliative Care Patient Research Panel. I am currently in full-time education and hope to become a radiographer. Before moving to this country I was team leader for a large charitable organisation in Poland which raises funds for cancer research. I gained valuable experience of working in a team and talking to members of the public. In my role as Patient Research Ambassador I look forward to raising patients and carer awareness of the research that is happening in the Care Group so that people feel more informed about asking about opportunities to participate in research studies. I’m also looking forward to giving my patient perspective to the Directorate’s research. I live in Sheffield with my boyfriend, and Bengal cat called Shelia.
Terry Schofield – Associate member
I am a 78 year old retired Coal Mining Engineer who has Bronchiectasis. I have been a patient of the Sheffield Chest Clinic since 1974 when I was diagnosed with Chronic Bronchitis. With the introduction of CT Scanning, I was then diagnosed with Bronchiectasis. In 2012 I was referred to the Pulmonary Rehabilitation Programme and eventually got through it with help of Ambulatory Oxygen and have continued with an Exercise Regime which includes Gym work and Home Pulmonary Rehabilitation. I am interested in trying to improve all aspects of patient care and am particularly involved with COPD patients.
Ann Rebori – Associate member
Further information
If you have any further questions and would like to meet the Panel please contact the PPI Coordinator Carolyn Taylor on 0114 226 1247 or via email on