UCEDD Responses to Emergency Management (EM) Survey
May 2007
CenterEM Contact person
EM part of 5-Year Plan / Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A / Collaborators / EM Initiative
Funding Sources / Information Dissemination
Alaska:
Center for Human Development
Contact: Karen Ward
EM part of 5-Year Plan?: No / Preliminary discussions about incorporating emergency management into our training curriculum and possible research. / Municipality of Anchorage Department of Public health / For training, the Alaska Mental Health Trust Authority.
Research funding not identified. / No current information dissemination.
California:
USC UCEDD at CHLA
Contact: Barbara Wheeler
EM part of 5-Year Plan?: No /
- As disability consultant for California Volunteers (California's Americorps States program) we work at a policy level with statewide initiatives related to emergency response.
- We collaborated with one of CHLA's researchers on a submission to NIH to study the preparedness of school personnel to evacuate students with disabilities when an emergency occurs.
- *The DDC works more closely with emergency management than we do. We on occasion attend the same meetings. DD Act Partners has not made this a priority for our collaborative work.
Center for Disability Issues and the Health Professions (WesternUniversity)
- June Kailes wrote one of the manuals related to emergency response for people with disabilities which is used in the state.
- Brenda Premo, who is the Director of CDIHP, sends us materials to disseminate to our stakeholders.
California:
TarjanCenter for Developmental Disabilities
Contact: Olivia Raynor
EM part of 5-Year Plan?: No /
- We are involved, somewhat peripherally, through our work within national service and through the state DDCouncil.
- We attended an emergency management workshop aimed to exchange information about the needs of the disability community as it applies to planning for the state.
- *The Deputy Director of the DDC is part of the state’s emergency management team. We exchange information on an ongoing basis.
CaliforniaState Council on Developmental Disabilities / None / Information disseminatedthrough California State Council on Developmental Disabilities
Guam:
Center for Excellence in Developmental Disabilities Education, Research, and Service
Contact: Heidi San Nicolas
EM part of 5-Year Plan?: No /
- Though emergency management has become of great concern for the island, initiatives were not written into the current core grant work plan.
- *The P&A has taken the lead in planning emergency management initiatives to be implemented by the Tri Agency (P&A/DDC/UCEDD)
Guam Police Department
Guam Fire Department
Guam P&A / ADD provided funding for the P&A to attend the emergency management federal meeting, however grant funding is currently not available, nor is local funding to support the initiative. / No current information dissemination.
Hawaii:
Center on Disability Studies
Contact: Martha Guinan
EM part of 5-Year Plan?: Yes /
- *Planning activities
- *Developing grants to expand resources
Department of Civil Defense
American Red Cross
Hawaii DDC and P&A / Internal only at the present.
Have submitted two grants for support. / No current information dissemination.
Iowa:
Center for Disabilities and Development
Contact: Jane Gay
EM part of 5-Year Plan?: No /
- CDD is part of Iowa's State Emergency Management Team. This team has attended the two national meetings.
- CDD participated in first state meeting with community ER offices.The target audience of this meeting included consumers and staff from community
- *Iowa's DDC and P&A agreed that CDD should represent the Iowa DD Network at the national meeting ADD encouraged states to attend.
- *DDC helps support Iowa COMPASS (Iowa's statewide I&R system administered by CDD). COMPASS provides EM information.
- Department of Public Health
- Civil Rights Commission
- Department of Human Services
- Governor's office.
IDPH is seeking federal funding. / CDD newsletters.
Kansas:
KansasUniversityCenter on Developmental Disabilities
Contact: Glen White
EM part of 5-Year Plan?: No / Glen White, the KUCDD Associate Director, is engaged in a host of activities related to emergency preparedness. The most visible are activities identified on the 'Nobody Left Behind' web page at the mission of which is to investigate 30 randomly selected counties, cities, or boroughs in the United States that have recently experienced a natural or man-made disaster in order to:
- Determine if disaster plans and emergency response systems for homes, businesses, and the community include the health, safety, and survival needs for persons with mobility impairment
- Identify the morbidity and mortality of persons with mobility impairments in these disasters
- Assess if there were any post-disaster changes to address the needs of persons with mobility impairments
- Identify emerging or Best Practices models for counties to assist in disaster plans and emergency responses to meet the needs of persons with mobility impairments in hopes of preventing injuries, saving lives, and assuring Nobody is Left Behind.
Louisiana:
HumanDevelopmentCenter
Contact:
Sharon Holleran
or
Joan Guillory
EM part of 5-Year Plan?: No /
- *An unfunded statewide initiative, 'The Louisiana Delegates' Emergency Management Consortium' in collaboration with both the DDC and P&A.
- *A HumanDevelopmentCenter-AdvocacyCenter (LA P&A) collaboration- funded with HumanDevelopmentCenter discretionary funds.
- Primary: UCEDD, DDC, P&A, LA Department of Health and Hospitals (State Medicaid), LA Department of Social Services, American Red Cross, LA Governor's Office of Elderly Affairs
- Secondary: LA Assistive Technology Access Network, National Alliance of the Mentally Ill of Louisiana
Massachusetts:
Institute for Community Inclusion
Contact: Paula Sotnik
EM part of 5-Year Plan?
No / Through the National Service Inclusion Project, with funding from the Corporation from National and Community Service, ICI:
- developed and conducts training, Emergency/Disaster Planning and Response for and by People with Disabilities, for several state and national conferences
- facilitated action planning with LA and MS on inclusive disaster planning and response
- conducted webinars in this topic
- serve on a national service training provider committee
- provides TA on the topic
- website pages at
• CNCS Training providers
• state commissions and state offices
• those UCEDDs involved in NSIP activities / CNCS /
- website pages at
- TA on request from national and community service
- National Webinar (at least one per year)
Massachusetts:
EuniceKennedyShriverCenter
Contact: Erin McGaffigan
EM part of 5-Year Plan?: Yes / *Shriver is currently working with state and national partners in the area of emergency preparedness. Our project has three focus areas. The three focus areas are provided below with a sample of activities.
- Focus Area: Learn best practices.
- Literature and web searches
- Analyze and report on best practices
- Conduct informational interviews with stakeholders Identify gaps in planning at the national, state, community, and provider level
- Write a white paper on gaps and potential future design of activities
- Focus Area: Increase individual emergency preparedness of people with developmental disabilities.
- Assist DMR to review and strengthen Continuity of Operations (COOP) plans
- Collaborate with stakeholders
- Investigate efforts that are already in existence at the local level
- Pilot National Association of State Directors of Developmental Disabilities Services (NASDDDS) tool to assess and strengthen readiness
- Develop a vision
- Design materials and methods to improve individual preparedness
- Pilot tools and improve them
- Focus Area: Work across disability groups to strengthen individual preparedness.
- Attend meetings to this project is in line with regional, state, and federal efforts
- Assist in planning cross-disability summits
- Participate in information sharing on promising practices
For our cross disability efforts, our partners include the Massachusetts
- Emergency Management Agency
- Department of Public HealthOffice on Disability
- Office on Elder Affairs
- Executive Office of Public Safety.
The DD Council representative receives routine updates on our progress.
A representative from the DisabilityLawCenter (P&A) sits on our personal preparedness workgroup. / University of MassachusettsMedicalSchool
/
Maine:
Center for Community Inclusion and Disability Studies
Contact: Lu Zeph
EM part of 5-Year Plan?: No / *The DDC is our lead network partner in the area of emergency management. Our participation has been to provide input to their initiatives. / MaineDDC / None / No current information dissemination.
Minnesota:
Institute on Community Integration
Contact:
Patricia Salmi
or
Charlie Lakin
EM part of 5-Year Plan?: Yes /
- Joint project with NASDDDS to develop an emergency preparedness web-based instrument that state DD directors can use to assess their state's readiness and inclusion of people with disabilities in planning for emergencies.
- This instrument applies to six levels: Individual, service providers, local/municipal authorities, county/regional authorities, state agencies, and national emergency entities.
- It addresses three management levels: Preparing, responding, and recovering.
- The content areas include: communication and coordination, stakeholder involvement, shelter, transportation, collaboration with emergency management agencies, workforce, power generation, identification and tracking, specialized supports, and evacuation.
- This instrument will provide states with general reports as to how their state is doing, or can produce specialized reports on specific areas.
- The instrument is scheduled to be piloted in late spring, early summer and should be ready for states' use by fall, 2007.
- We are also involved in a state initiative that pulls together a number of state agencies to examine and plan for inclusion of people with disabilities in state emergency planning efforts.
Minnesota state agencies / For the joint project with NASDDDS, we are under contract with this organization.
There are no funders for the state initiatives. / Presentations at conferences and plans to write articles for various publications.
Missouri:
UMKC Institute for Human Development
Contact:
Laura Walker
EM part of 5-Year Plan?: Yes / *Joint planning with the Planning Council and P&A. / Missouri DDC & P&A
State Department of Transportation / None / No current information dissemination.
Montana:
The University of Montana Rural Institute
Contact:
Alexandra Enders
EM part of 5-Year Plan?: No /
- GIS activities for multiple states including Montana.
- Also involved in Campus activities to design emergency management procedures.
RRTC / Information will be posted on
New Mexico:
Center for Development and Disability
Contact: Anthony Cahill
EM part of 5-Year Plan?: Yes /
- Research: 'Assessing the Impact of Hurricane Katrina on Persons with Disabilities'; - joint project with the University of Kansas funded by NIDDR; 'Needs and Priorities of New Mexico Emergency Managers Regarding Disability'
- Tip Sheets for First Responders: over 40,000 of these have been distributed across the united States
- Development of Training Program for First Responders on Disability: this modularized, four hour training course will be piloted in the summer of 2007. It will focus on practical information for first responders, and will be modeled on the Tip Sheets for First Responders.
- The Prepared Community: A Guide for Community-Based Preparedness and Response: this three-part training program is designed to increase the capacity of community-based organizations such as community health councils to prepare inventories of resources that can be used in a disaster and identify and locate individuals with disabilities in their communities.
- Training and Technical Assistance to States: on-site training and technical assistance is being provided to states including Iowa, South Carolina, Wyoming and Maine on establishing a state task force on emergency preparedness and people with disabilities
- New Mexico Task Force on Targeted Populations and Emergency Preparedness and Response: the Center is co-lead on this task force which is assessing state plans and making recommendations for ensuring that the needs and priorities of people with disabilities are met.
- National Consortium on Disaster Planning and Emergency Response for People with Disabilities: the Center is co-lead, with the American Association on Health and Disability and the University of Kansas, of this national organization that has held two national meetings.
University of Kansas
New Mexico Office of Health Emergency Management;
New Mexico Office of Homeland Security / National Institute on Disability and Rehabilitation Research (NIDRR)
Disability and Health Program, Centers for Disease Control and Prevention
New Mexico Office of Health Emergency Management
New Mexico Office of Homeland Security / Katrina Study available at
Tip sheets available at
New York:
RoseF.KennedyCenter
Contact: Arnold Birenbaum
EM part of 5-Year Plan?: No /
- *We are working with the NYS DDPC, the P&A and the other 2 UCEDDS in NY State to determine what emergency plans are in place to assist people with developmental disabilities
- We are attempting to get the cooperation of the staff in the new emergency room at JacobiHospital in the Bronx to learn about how to better communicate with people with developmental disabilities.
NYS DDPC and P&
The other 2 UCEDDS in NY State / None / Information disseminated through the NYS DDPC.
Oregon:
Oregon Institute on Disability & Development
Contact: Charles Drum
EM part of 5-Year Plan?: Yes /
- *Collaborative discussion and update with the DDC and P&A
- Participation with at least one state task force
- Developed proposal to train EMS workers (one group of First Responders) on disability issues
- Proposal to train CILs on developing personal plans Testimony to a joint legislative committee
- Student project on developing info sheets based on diagnostic condition
CDC
Centers for Independent Living
Oregon DDC and P&A (plan to take the pending proposals to the DD Partners at our next meeting). / Self-funded; applying to CDC (through our ODH) and applying to the state PHS / we're still early in our process and not generating much information at this point; if we get funding, we'll publicize through the PHS, CILs, our own listserv, DDCouncil, etc
Pennsylvania:
Institute on Disabilities
Contact: George Heake
EM part of 5-Year Plan?: Yes / We are currently involved in the following initiatives
- City of Philadelphia Emergency Preparedness Review Implementation Task force, supporting all activities relating to Special Populations
- Readiness Region Campaign (Tri State PA, DE, NJ) involving the counties surrounding the Philadelphia area, supporting all activities related to Special Populations, which includes TA for section 508 compliance.
- *PA State Department of Health Emergency Preparedness Work group for Special Populations.
- SPAR-GIS: Special Population Analysis and Research with GIS initiative.
- PA-Argonne Pilot: 5 County pilot of Special Population database development with GIS Technology. The Special Population Planner (SPP) tool developed by Argonne National Labs is one of the primary tools being used in the pilot.
- Emergency Preparedness SIG at AUCD
- All major government agencies ofPhiladelphia
- Service provider agencies are being identified based on interest
- Center for Preparedness, Research, Education and Practice (CPREP)
- PA Department of Public Health
- Philadelphia Department of Health
- PA State Department of Health
Argonne National Lab:Emergency Preparedness Group and others. / As of 3/29/07 funding negotiations are still being conducted and have not been finalized. /
South Dakota:
Center for Disabilities
Contact: Shelly Grinde
EM part of 5-Year Plan?: No / *We have a staff person on a state planning group. / State agencies and DD Network on the state planning group. / None / No current information dissemination.
Tennessee:
BolingCenter for Developmental Disabilities
Contact: Ruth Roberts
EM part of 5-Year Plan?: No /
- *Tennessee Stakeholders Meeting on Emergency Preparedness and Response for Individuals with Functional Need. The Boling Center , in collaboration with the Vanderbilt University Kennedy Center, TN DD Council, TN Disability and Law Center and multiple stakeholders, has participated in meetings to inform state and local emergency planning to better meet the needs of people with disabilities and other special needs.
- Interdisciplinary Leadership Training Series. In April 2006, we presented a 4 hour seminar entitled 'Emergency Preparedness: Mid-South Perspectives,' with representatives from TN Emergency Management Agency, MS Protection and Advocacy (video connection), TN Disability Law and AdvocacyCenter (video connection), and Department of Earth Sciences, University of Memphis. The session was broadcast to sites across Tennessee.
- *At the Annual DD Nursing Conference sponsored by the BolingCenter, a representative from the TN Emergency Management Agency presented a talk entitled 'What Nurses Should Know About Emergency Preparedness.'
- TN Department of Health
- TN Deptartment of Homeland Security
- TN Emergency Management Agency
- TN Commission on Aging and Disability.
- TN Emergency Management Agency
- MS P&A(video connection)
- TN Disability Law and AdvocacyCenter (video connection)
- Department of Earth Sciences, University of Memphis (Center for Earthquake Research and Information).