Web Site Collection Protocol

Biobanking Grant

Leona Cuttler, P.I.

Web Site Collection Protocol

1/12/12

1.  Go to the main university page (e.g., www.utah.edu).

2.  Search for “IRB.”

3.  Follow all hits in order to establish the main root url(s) associated with IRB(s) at that university. If a prohibitively large number of urls emerges, representative(s) of the institution’s IRB will be consulted, and asked to provide the online locations of key documents relevant to this research. These will then be used to establish the url(s) to be searched.

4.  Use each main root url to conduct an Advanced Search in Google. For this search, use the following search protocol:

tissue OR specimen OR biospecimen OR biobank OR biobanking OR genetic research

5. Number the hits and save the list of pages/documents.

6. A screening process will identify those pages/documents with codable content. First, at least one variable in the coding scheme needs to be coded as something other than “0” for that page/document to be deemed codable. Pages/documents that are codable will be labeled as such on the list.

7. The following types of pages/documents will be excluded from analysis (i.e., deemed NOT codable): (a) A secondary source that simply repeats information more centrally conveyed in another page/document; these secondary sources will include such materials as newsletters and PowerPoint presentations, (b) Pages/documents that do not emanate from the institution’s IRB.

8. When redundant pages/documents of different vintages (dates) are encountered, only the most recent page/document will be used.

9. Simple distribution/outline web pages that serve only to direct the user to other pages will be excluded as being non-codable. However, we WILL check active links on these pages to make sure that any relevant linked pages have a main root url that has been searched in step 4 above. If not, some pages/documents may need to be added to the list of pages/documents referred to in step 5 above. (e.g., Case Western Reserve’s document “Chart Review and Discarded Tissue Studies” is linked from a uhhospitals.org/Research distribution page, but is not under that root url.)

10. A second researcher will repeat steps 1-9, and the results will be compared.

11. After concordance is established, the list of pages/documents (with live links to those pages/documents), and with codable pages/documents noted, will be placed online (currently, at the temporary Biobanking Grant web site: http://academic.csuohio.edu/kneuendorf/biobanking/).

12. Each page/document will serve as the unit of analysis. All coding scheme variables will be applied to each page/document.

end